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題名 側彎人生正向行-早發性脊椎側彎青少年與疾病共舞之生命經驗
The experiences of adolescents living in harmony with early onset scoliosis作者 陳思淳
Chen, Szu-Chun貢獻者 呂寶靜
Lu, Pau-Ching
陳思淳
Chen, Szu-Chun關鍵詞 早發性脊椎側彎
青少年
發展任務
復原力
Early onset scoliosis
Adolescents
Developmental tasks
Resilience日期 2014 上傳時間 2-五月-2019 14:45:51 (UTC+8) 摘要 本研究以深度訪談的方式,訪談6位早發性脊椎側彎青少年患者,了解他們罹病的主觀感受與經驗詮釋,分析疾病對青少年發展的影響,並探究少年在罹病過程中復原力的展現。 脊椎側彎的青少年生理上許多不舒適的感受,包括痠痛、睡不好、活動受限,或因器官受壓迫,而有喘、尿床、進食困難的症狀。脊椎側彎少年的治療經驗,是隨著病況依時續向前延伸的歷程,本研究將其歷程分為四個階段:(1)焦急的四處求醫;(2)治療的挫折與無力;(3)不得不的手術;(4)治療後的影響與調適。 罹病少年與一般青少年有著相同的發展職責,卻面對與一般青少年有不同的壓力與考慮,他們的人生選擇也會圍繞著疾病,而存在著相當程度的限制。研究發現青少年(1)身體心像紊亂;(2)過度保護下失去對自主的掌控;(3)人際關係遭霸凌與排拒;(4)在治療與學業中分身乏術;(5)生涯選擇影響上:青少年因健康因素帶來生涯選擇的限制,家長也會對少年職涯發展期待降低。但青少年則較希望從事助人工作;(6)消極的婚姻擇偶考量:擔心身體的限制成為交往上的阻礙及能否正常生育。 青少年經歷疾病的歷程後,支持他們度過這些困境的復原力量為何,這股復原的動能又如何對少年的生命或未來產生影響。研究發現影響復原力的保護因子有(1)個人保護因子:獨立、懂得努力並勇於嘗試、主動爭取資源、樂觀面對疾病苦痛、忍耐、疾病中求生存,發展出因應疾病的方式;(2)家庭保護因子:情緒性支持(家人引導正向思考、家人給予無條件心理支持)、工具性支持(協助身體照顧);(3)社區保護因子:學校環境的支持(提供少年機會擁有正向經驗、師長適度關心,增加少年安全感、同儕關心和接納,獲得團體歸屬感)、醫療環境的支持(醫療人員給予專業的建議與協助、支持與鼓舞、醫療補助減輕家庭經濟負擔、病友間同理與激勵的力量)。復原力量展現的結果面貌可分為四個面向,分別為(1)改變慣性認知,重新建構生命意義;(2)感同身受,滋養寬以待人的同理能力;(3)樂於助人;(4)生命態度的樣貌-懷抱感恩心情,並更珍惜當下,勇於表達愛與感謝。
In-depth interviews were conducted in this study, and six adolescents with early onset scoliosis were interviewed to understand their subjective feelings and experience interpretations, analyzing the impact of the illness on their development, and investigating the demonstrations of resiliencies in the course of the illness. Adolescents with scoliosis experience much physiological discomfort, including pain and soreness, poor sleep quality, limited mobility, or symptoms caused by organ compression such as shortness of breath, bed-wetting, and difficulties in eating. The treatment experiences of adolescents with scoliosis are continuous processes extending alongside their conditions; the process is divided into four stages in this study: (1) a frantic search of medical help; (2) frustration and helplessness during the treatment; (3) unavoidable surgery; (4) impacts and adaption after the treatment. The adolescents with the illness have the same responsibilities to develop themselves as normal adolescents do, but have to face different pressures and concerns; moreover, with their life choices revolving around the illness, there are considerable levels of limitations. Studies have found the adolescents to be: (1) disturbed in body images; (2) deprived of autonomy due to overprotection; (3) bullied and rejected in relationships; (4) unable to handle medical treatments and academic work at the same time; (5) affected in career choices: the adolescents’ career choices are limited by their health, and their parents also have lower expectations for their career development; (6) pessimistic when it comes to considering marriage or partner choices: they worry that their body limits may become dating obstacles, and that they may not have be able to have children normally. After the adolescents go through the journey of the illness, what are the resiliencies supporting them through the difficulties, and how do the resiliencies impact their life and future? Studies have found that protecting factors that can influence recovery include: (1) personal protecting factors: independence, an understanding that hard work is required and courage in venturing, positivity in facing the pain from the illness, resilience, the will to survive the illness and figure out ways to cope with it; (2) family protecting factors: emotional support (guidance in positive thinking and unconditional psychological support from the family), instrumental support (body care assistance); (3) community protecting factors: school environmental support (opportunities to create positive experiences, appropriate attention from teachers, a sense of safety, acceptance and affection from peers, which can provide a sense of belonging), medical environmental support (professional advice and assistance from the medical staff, support and cheering from the medical staff, medical financial support to alleviate family burdens, empathy and the power of encouragement between patient friends). 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國立政治大學
社會工作研究所
97264007資料來源 http://thesis.lib.nccu.edu.tw/record/#G0097264007 資料類型 thesis dc.contributor.advisor 呂寶靜 zh_TW dc.contributor.advisor Lu, Pau-Ching en_US dc.contributor.author (作者) 陳思淳 zh_TW dc.contributor.author (作者) Chen, Szu-Chun en_US dc.creator (作者) 陳思淳 zh_TW dc.creator (作者) Chen, Szu-Chun en_US dc.date (日期) 2014 en_US dc.date.accessioned 2-五月-2019 14:45:51 (UTC+8) - dc.date.available 2-五月-2019 14:45:51 (UTC+8) - dc.date.issued (上傳時間) 2-五月-2019 14:45:51 (UTC+8) - dc.identifier (其他 識別碼) G0097264007 en_US dc.identifier.uri (URI) http://nccur.lib.nccu.edu.tw/handle/140.119/123238 - dc.description (描述) 碩士 zh_TW dc.description (描述) 國立政治大學 zh_TW dc.description (描述) 社會工作研究所 zh_TW dc.description (描述) 97264007 zh_TW dc.description.abstract (摘要) 本研究以深度訪談的方式,訪談6位早發性脊椎側彎青少年患者,了解他們罹病的主觀感受與經驗詮釋,分析疾病對青少年發展的影響,並探究少年在罹病過程中復原力的展現。 脊椎側彎的青少年生理上許多不舒適的感受,包括痠痛、睡不好、活動受限,或因器官受壓迫,而有喘、尿床、進食困難的症狀。脊椎側彎少年的治療經驗,是隨著病況依時續向前延伸的歷程,本研究將其歷程分為四個階段:(1)焦急的四處求醫;(2)治療的挫折與無力;(3)不得不的手術;(4)治療後的影響與調適。 罹病少年與一般青少年有著相同的發展職責,卻面對與一般青少年有不同的壓力與考慮,他們的人生選擇也會圍繞著疾病,而存在著相當程度的限制。研究發現青少年(1)身體心像紊亂;(2)過度保護下失去對自主的掌控;(3)人際關係遭霸凌與排拒;(4)在治療與學業中分身乏術;(5)生涯選擇影響上:青少年因健康因素帶來生涯選擇的限制,家長也會對少年職涯發展期待降低。但青少年則較希望從事助人工作;(6)消極的婚姻擇偶考量:擔心身體的限制成為交往上的阻礙及能否正常生育。 青少年經歷疾病的歷程後,支持他們度過這些困境的復原力量為何,這股復原的動能又如何對少年的生命或未來產生影響。研究發現影響復原力的保護因子有(1)個人保護因子:獨立、懂得努力並勇於嘗試、主動爭取資源、樂觀面對疾病苦痛、忍耐、疾病中求生存,發展出因應疾病的方式;(2)家庭保護因子:情緒性支持(家人引導正向思考、家人給予無條件心理支持)、工具性支持(協助身體照顧);(3)社區保護因子:學校環境的支持(提供少年機會擁有正向經驗、師長適度關心,增加少年安全感、同儕關心和接納,獲得團體歸屬感)、醫療環境的支持(醫療人員給予專業的建議與協助、支持與鼓舞、醫療補助減輕家庭經濟負擔、病友間同理與激勵的力量)。復原力量展現的結果面貌可分為四個面向,分別為(1)改變慣性認知,重新建構生命意義;(2)感同身受,滋養寬以待人的同理能力;(3)樂於助人;(4)生命態度的樣貌-懷抱感恩心情,並更珍惜當下,勇於表達愛與感謝。 zh_TW dc.description.abstract (摘要) In-depth interviews were conducted in this study, and six adolescents with early onset scoliosis were interviewed to understand their subjective feelings and experience interpretations, analyzing the impact of the illness on their development, and investigating the demonstrations of resiliencies in the course of the illness. Adolescents with scoliosis experience much physiological discomfort, including pain and soreness, poor sleep quality, limited mobility, or symptoms caused by organ compression such as shortness of breath, bed-wetting, and difficulties in eating. The treatment experiences of adolescents with scoliosis are continuous processes extending alongside their conditions; the process is divided into four stages in this study: (1) a frantic search of medical help; (2) frustration and helplessness during the treatment; (3) unavoidable surgery; (4) impacts and adaption after the treatment. The adolescents with the illness have the same responsibilities to develop themselves as normal adolescents do, but have to face different pressures and concerns; moreover, with their life choices revolving around the illness, there are considerable levels of limitations. Studies have found the adolescents to be: (1) disturbed in body images; (2) deprived of autonomy due to overprotection; (3) bullied and rejected in relationships; (4) unable to handle medical treatments and academic work at the same time; (5) affected in career choices: the adolescents’ career choices are limited by their health, and their parents also have lower expectations for their career development; (6) pessimistic when it comes to considering marriage or partner choices: they worry that their body limits may become dating obstacles, and that they may not have be able to have children normally. After the adolescents go through the journey of the illness, what are the resiliencies supporting them through the difficulties, and how do the resiliencies impact their life and future? Studies have found that protecting factors that can influence recovery include: (1) personal protecting factors: independence, an understanding that hard work is required and courage in venturing, positivity in facing the pain from the illness, resilience, the will to survive the illness and figure out ways to cope with it; (2) family protecting factors: emotional support (guidance in positive thinking and unconditional psychological support from the family), instrumental support (body care assistance); (3) community protecting factors: school environmental support (opportunities to create positive experiences, appropriate attention from teachers, a sense of safety, acceptance and affection from peers, which can provide a sense of belonging), medical environmental support (professional advice and assistance from the medical staff, support and cheering from the medical staff, medical financial support to alleviate family burdens, empathy and the power of encouragement between patient friends). The results of recovering strength demonstration can be divided into four aspects: (1) adjustment of habitual mindsets and the reconstruction of life meaning; (2) feeling for others and the cultivation of the ability to be forgiving and have empathy; (3) eagerness in helping others; (4) exhibiting a life attitude embracing feelings of gratitude, and possessing a stronger appreciation of the moment and courage in expressing love and gratefulness. en_US dc.description.tableofcontents 第一章 緒論 第一節 研究緣起 1第二節 研究動機與目的 4第二章 文獻探討第一節 脊椎側彎症與治療現況 7第二節 青少年發展 15第三節 青少年復原力 24第三章 研究方法與設計第一節 研究方法 34第二節 研究對象 37第三節 資料蒐集與分析 45第四節 研究者角色與研究倫理 49第四章 研究發現第一節 脊椎側彎的症狀與治療驗 52第二節 脊椎側彎對青少年社會心理發展的影響 72第三節 青少年復原力的展 85第五章 研究結論與建議第一節 研究結論 112第二節 研究討論與建議 117第三節 研究限制 128參考文獻一、中文部分 129二、英文部分 133附錄一 訪談大綱 136附錄二 訪談同意書 138表次3-2-1 受訪者基本資料 394-2-1 疾病對青少年發展的影響 824-3-1 影響復原的因子 1074-3-2 復原力展現的結果 108圖次2-1-1 科卜氏角度(cobb’s angle)測量示意圖 104-1-1 脊椎側彎青少年疾病治療的歷程 69 zh_TW dc.format.extent 1189075 bytes - dc.format.mimetype application/pdf - dc.source.uri (資料來源) http://thesis.lib.nccu.edu.tw/record/#G0097264007 en_US dc.subject (關鍵詞) 早發性脊椎側彎 zh_TW dc.subject (關鍵詞) 青少年 zh_TW dc.subject (關鍵詞) 發展任務 zh_TW dc.subject (關鍵詞) 復原力 zh_TW dc.subject (關鍵詞) Early onset scoliosis en_US dc.subject (關鍵詞) Adolescents en_US dc.subject (關鍵詞) Developmental tasks en_US dc.subject (關鍵詞) Resilience en_US dc.title (題名) 側彎人生正向行-早發性脊椎側彎青少年與疾病共舞之生命經驗 zh_TW dc.title (題名) The experiences of adolescents living in harmony with early onset scoliosis en_US dc.type (資料類型) thesis en_US dc.relation.reference (參考文獻) 壹、中文部份小兒脊椎側彎(2013)。小兒脊椎側彎定義與分類。取自http://rehab.ym.edu.tw/child/Untitled-2.html。王金蓮、黃春梅、奉季光、林麗華(2010)。兒童早發性脊柱側彎的治療與照護。榮總護理,27(2),188-194。包康寧(2011)。臺北市國中生依附關係、求助態度與復原力之相關研究(未出版之碩士論文)。國立台灣師範大學,台北市。台灣脊椎中心(2012)。脊柱側彎各類診斷。取自http://www.taiwanspinecenter.com.tw/web/00_diagnosis/01Scoliosis_1.htm。江振亨(2009)。從復原力探討矯治社會工作在犯罪矯治之運用與發展。社區發展季刊,125,424-439。行政院主計處與青輔會合編 (1997)。中華民國台灣地區青少年狀況調查報告。台北。行政院青輔會(1998)。青少年白皮書。台北。吳文興(2010)。談脊椎側彎與矯正。傳統醫學雜誌,21(1),83-92。吳宇娟(2004)。少年家庭照顧者之生命故事(未出版之碩士論文)。國立政治大學,台北市。吳芝儀(2003)。生涯輔導與諮商:理論與實務。嘉義:石濤文化。吳麗敏(2001)。化療期間患童的身體心像滿意度及其相關因素(未出版之碩士論文)。高雄醫學大學,高雄市。宋淑偵(2010)。新診斷癌症青少年之疾病症狀與復原力(未出版之碩士論文)。國立國防醫學院,台北市。宋麗玉、施教裕(2003)。優勢觀點:社會工作理論與實務。臺北:洪葉文化。李宜芳(2001)。癌症靑少年社會關係與疾病適應之硏究(未出版之碩士論文)。國立台灣大學,台北市。林哲立、邱曉君、顏菲麗譯(2007)。人類行為與社會環境(原作者:J.B.Ashford,C.W.Lecroy,K.L. 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