Publications-Theses
Article View/Open
Publication Export
-
Google ScholarTM
NCCU Library
Citation Infomation
Related Publications in TAIR
題名 失落與悲傷經驗探究：一位身心障礙者手足與喪親者的自我民族誌
The Research on Loss and Grief: An Autoethnography of a Sibling of the Disabled and a Bereaved Child作者 林鎮漢
Lin, Cheng-Han貢獻者 王素芸
Wang,Su-Yun
林鎮漢
Lin, Cheng-Han關鍵詞 自我民族誌
失落與悲傷
身心障礙者手足
喪親者
Autoethnography
Loss and grief
Sibling of the disabled
Bereaved child日期 2023 上傳時間 1-Feb-2024 11:42:10 (UTC+8) 摘要 本研究以自我民族誌為研究方法詮釋與分析研究者身為身心障礙者手足與喪親者之生命經驗之於社會文化脈絡的關係，分為對自我初步的探索、對問題意識的洞察、產出自我民族誌的行動等三階段研究歷程。研究者希望以本研究示範個人在生活中前行、改變、轉化的可能性並藉此啟發讀者，也希望能以本研究為媒介吸引讀者進入研究者的內在世界與研究者互動。 以研究結論而言，研究者洞察自身在與他者互動歷程中因為不同社會文化脈絡而經驗身心障礙者手足與喪親者角色亦洞察自身對自我概念形成的詮釋以及對失落與悲傷的詮釋受不同社會文化脈絡影響，此外研究者過本研究統合個人經驗、建構個人意義的歷程中更以教育範疇為視角連結個人與自身所處的社會文化脈絡。 以研究貢獻而言，本研究使研究者帶著新自我認同準備投身助人工作中、以研究者自身經驗示範對特殊性與獨特性之倡議與行動、豐富他者對失落與悲傷命題之想像與視野，研究者也期許完成本研究後自身能投入教育活動倡議失落與悲傷、身心障礙者手足、喪親者相關主題。
This research is composed of exploration of self, insight into problematic and taking action by autoethnography, which intend to make connection between research’s life experience and social context by approaching autoethnography to interpret and analyze the researcher’s life experience as a sibling of the disabled and as a bereaved child. The researcher hopes to demonstrate how a person move, change and transform, and also hopes readers can be attracted to researcher’s internal world and interact with the researcher by this research. The research conclusions show that researcher insight that interactions with others build up the experience as sibling of the disabled and bereaved child, and the social context influenced the researcher’s interpretation of the self-concept and the loss and grief. By the way the researcher intergraded personal experience and constructed personal meaning by educational perspectives, by which intend to connect himself and social context. As for research contribution, this research helps the researcher carry on new self-identity to engage in helping professions, demonstrates the advocacy and action on specialty and distinctiveness by research’s induvial experience, broaden others imagination and view of loss and grief, and the research also hopes he can engage in educational advocacy related to themes about loss and grief, sibling of the disabled and bereaved child after finishing this research.參考文獻 中文部份 Hill, C. E.（2017）。助人技巧: 探索、洞察與行動的催化〔林美珠、田秀蘭譯，第4版〕。學富。（原著出版年：2014） Sharf, R. S.（2013）。諮商與心理治療〔馬長齡、羅幼瓊、葉怡寧、林延叡譯，第2版〕。心理。（原著出版年：2012） Verderber, R. F & Verderber, K. S（2015）。人際關係與溝通〔陸洛、周君倚、梁錦泉、陳楓媚、範學良譯，第13版〕。前程。（原著出版：1980） Winokuer, H. R. & Harris, D. L.（2016）。悲傷諮商：原理與實務〔陳増穎譯〕。心理。（原著出版於2012） 丁思惠（1995）。癌症病逝者其配偶悲傷過程之研究〔未出版之碩士論文〕。東吳大學。 丁興祥（2012）。自我敘說研究：一種另類心理學。應用心理研究，6，15-132 。 中央研究院近代史研究所（編）（1992）。近世家族與政治比較歷史論文集。中央研究院近代史研究所。 文化部（無日期）。文化平權。2023年12月30日，取自https://www.moc.gov.tw/cp.aspx?n=137 王仁音（2012）。自閉症者成年手足之生命經驗〔未出版之碩士論文〕。國立高雄師範大學。 王秀槐（2015）。從「以我為榮」到「證明自己」：華人文化脈絡下知覺不同父母期待之大學生的生涯因應組型初探研究。輔導與諮商學報，37（1），79‐97。 王純娟（2006）。一位喪兒父親的蛻變。中華輔導學報，20，1‐50。 王懿晨（2019）。一個愛奇兒母親生命經驗之自我敘說〔未出版之碩士論文〕。國立臺北護理健康大學。 立法院（2006）。立法院第6屆第4會期第4次會議議案關係文書。台北。 何國華（2004）。特殊兒童親職教育。五南。 何粵東（2005）。敘說研究方法論初探。應用心理研究，25，55-72。 何粵東（2010）。自我民族誌的課程研究初探。中正教育研究，9（1）。 余德慧（1992）。中國人的人際苦痛及其分析。載於楊中芳（編），中國人，中國心：人格社會篇（291-364 頁）。遠流出版社。 余德慧、李維倫、許敏桃（2002，11 月）。從家庭失親處境探討集體化的形成過程。第四屆華人心理學術研討會暨第六屆華人心理與行為科學學術研討會〔研討會〕。台北：中央研究院民族學研究所。 吳月娟（1999）。非障礙手足心理適應之探討。特殊教育季刊，73，29‐34。 吳秀碧（2016）：傳統喪禮儀式在哀傷諮商的省思和啟發。輔導季刊，52（1），1-13。 吳秀碧（2017）。客體角色轉化在非複雜性哀傷諮商影響之初探。中華輔導與諮商學報，48，71-106。 吳佩玲、李玉嬋（2015）。二次喪失手足者悲傷反應對手足關係影響之研究。應用心理研究，62，5‐58。 吳美麗（2017）。目睹雙親自殺之遺族青少女生命故事之敘說研究〔未出版碩士論文〕。屏東大學。 吳清山、林雍智（2021）。教育學門論文寫作格式指引：APA格式第七版之應用（2022年全新修訂版）。心理。 呂欣芹、方俊凱、林綺雲（2007）。自殺者遺族悲傷調 適之任務—危機模式初步建構。中華輔導學報，37，185-221。 巫志忠（2008）。喪失手足青少年之悲傷調適與輔導。諮商與輔導，275，40‐42。 李亦園（2010）。信仰與文化。華藝數位。 李秉倫、黃光國、夏允中（2015）。建構本土哀傷療癒理論：儒家關係主義和諧哀傷癒理論。諮商心理與復健諮商學報，28，7‐33。 李美枝（1998）。親子關係的內涵與功能。本土心理學研究，9，3-52。 李麗玲（1995）。智障兒童青少年手足與一般家庭青少年親子關係與生活適應之比較研究〔未出版碩士論文〕中國文化大學。 汪文聖（2021）。心理創傷敘事療癒的理論與實務探討。中華輔導與諮商學報，61，89‐117。 身心障礙者權益保障法（民國110年1月20日）修正公布。 林文瑛、王振武（1995）。中國父母的教養觀：嚴教觀或打罵觀？。本土心理學研究，3，2‐92。 林佩儀、黃傳永（2020）。以雙歷程模式對喪親青少年悲傷歷程之探究。諮商與輔導，413，30-37。 林昀芊、郭瓈灩（2018）。運用正念取向心理諮商陪伴男性高齡者經歷喪偶哀痛歷程之個案報告。諮商與輔導，11，394，11-15。 林娟芬（1999）。認識死亡、失落與悲傷。神學與教會，25（1），36-82。 林培涵（2014）。回頭看，與你相遇的青春—青少年時期與自閉症手足的互動經驗〔未出版之碩士論文〕。國立臺灣大學。 林綺雲（2005）。社會文化與悲傷反應。生死學研究，（2），107-127。 林綺雲、曾煥棠、林慧珍、陳錫琦、李佩怡、方蕙玲（2000）。生死學。洪葉。 林耀盛（2011）。幽緲邊界下的創慟處境：探究九二一震災身心障礙者的失能體驗與喪親經驗。身心障礙研究季刊，9（3）。 林耀盛、侯懿真、許敏桃（2011）。悲悼的歧義：癌症新近喪偶者的心理反應經驗探究。生死學研究，（11），1‐40。 施宇峰、譚子文（2011）。依附關係和自我概念之關聯性研究。臺中教育大學學報，25（1），1-27。 柯菀榕（2010）。自閉症兒童之一般手足的壓力與因應方式之探討〔未出版之碩士論文〕樹德科技大學。 洪雅琴（2013）。傳統喪葬儀式中的哀悼經驗分析：以往生到入殮為例。中華輔導與諮商學報，37，55‐88。 洪瑞斌、陳筱婷、莊騏嘉。自我敘說研究中的真實與真理：兼論自我敘說研究之品質參照標準。應用心理學研究，（56），19‐53。 唐婉如（2008年5月）。原住民青少年之生死觀－以阿美族、泰雅族為例。安寧療護雜誌，13（2），156-167。 徐欣萍（2015）。華人社會互動關係中的緣觀認知運作歷程與因應行動探討〔未出版之博士學位論文〕。國立台灣大學。 張文珠、詹碧端（2012）。協助一位喪子父親渡過悲傷期之護理經驗。領導護理，13（3）。 張玉仕（1997）。試論當今喪親輔導模式之過程適用否。安寧照顧會訊，25，19‐23。 張春興（2006）。張氏心理學辭典。東華。 張英熙（2002）。特殊兒童家長的失落經驗。特殊教育季刊，82，16‐22。 張素貞（1999）。"智障手足"自我概念與生活適應之研究〔未出版碩士論文〕國立高雄師範大學。 張淑芬（1996）。喪子悲傷反應及意義治療的應用。諮商與輔導，127，24-27。 張達人、黃梅羹、那姍姍、陳良娟、鄧世雄（1998）。喪親者之團體心理治療—一位傷慟者領悟歷程，中華心理衛生學刊，11（3），69-80。 教育百科（2023年，6月11日）。國家教育研究院辭書。https://pedia.cloud.edu.tw/Entry/Detail?title=%E6%95%99%E8%82%B2&search=%E6%95%99%E8%82%B2#glossary 許玉霜、蘇完女、許鶯珠（2012）。喪手足女性成人的悲傷反應及調適歷程之探究。生死學研究，（13），121‐173。 許敏桃、余德慧、李維倫（2005）。哀悼傷逝的文化模式：由連結到療癒。本土心理學研究，24，49-84。 許詩淇、葉光輝（2019）。華人人際及群際關係主題研究的回顧與前瞻。本土心理學研究，51，33-88。 郭于華（1994）。死的困惑與生的執著。洪葉。 郭秀敏、柯佳緣、孫可書（2019）。台灣喪偶者的社會心理需求評估與協助資源—以台北市一葉蘭喪偶家庭成長協會為例。諮商與輔導，13，401，13‐16。 陳永銓、曾煥棠（2015）。男性喪偶者的悲傷不同於女性嗎？應用心理研究，62，113‐161。 陳紹韻（1999）。阿含經之喪親輔導個案初探〔未出版論文〕中華佛學研究所。 陳維樑、鍾秀筠（1999）。哀傷輔導手冊：概念與方法。贐明會。 陳鳳苓（2014）。智能障礙者與其手足互動歷程之研究〔未出版碩士論文〕玄奘大學。 陸洛（2003）。人我關係之界定：折衷自我的現身。本土心理學研究，29，39-207。 費孝通（1948）。鄉土中國與鄉土重建。觀察社。 黃光國（2005）。儒家關係主義：文化反思與典範重建。台灣大學出版中心。 黃光國（2009）。儒家關係主義：哲學反思、理論建構與實徵研究。心理。 黃姝文、卓紋君（2012）。一位喪子單親母親對器官捐贈的母親對器官捐贈的母親對器官捐贈的悲傷調適經驗。諮商輔導學報－高師輔導所刊，24，95‐130。 黃迺毓（2016）。家庭教育導論。五南。 黃淑清、修慧蘭（2003）。失落之探討：以青少年期父母過世的成人為例。應用心理研究，20，217‐238。 黃雅薇（2008）。不只是妹妹—一位身心障礙手足的生命故事〔未出版碩士論文〕。國立臺北教育大學。 黃傳永（2012）。藝術治療運用在失落悲傷調適之探討。台灣心理諮商季刊，4（2），22-41。 楊國樞（1993）。我們為什麼要建立中國人的本土心理學？本土心理學研究，1，6-88。 楊懋春（1981）。中國家庭與倫理。中央文物供應社。 葉文虎、鄭凱芸（2018）。翻牆的記憶－身心障礙者的手足關係。臺灣社會工作學刊，20，41-73。 葉安華（2016）。我的負傷之旅—一個負傷療癒者的自傳式民族誌〔未出版博士論文〕國立臺灣師範大學。 葉育婷、李姿瑩（2017）。哥哥的守護者—一位聽障手足的真情告白。特殊教育發展期刊，64，53-64。 劉彥成（2006）。明清時代大眾的功名心態。史轍，2，1-33。 劉益蓉、邱春瑜、張恒豪、柯秋雪（2020）。家成、業就？擔任特教老師的非障礙手足之邊界跨越經驗探究，特殊教育研究學刊，45，3，29‐51。 劉淑娟（2013）。障礙者手足承擔照顧之因素與影響-以台中市某長期照護機構為例〔未出版碩士論文〕臺北大學。 蔡珊珊（2010）。聽人與其聽障手足互動歷程之敘事研究〔未出版之碩士論文〕。國立臺灣師範大學。 蔡榮美、吳晶萍、黃初雪（2007年7月）。失落之概念分析。馬偕護理雜誌，1（2），16-23。 蔡維民（2010）。台灣基督教創新喪葬儀式之研究－以客家教會「創新喪禮」為例。新世紀宗教研究，8（3），51-94。 鄭伯壎（1995）。差序格局與華人組織行為。本土心理學研究，3，142-219。 鄭雅薇（2002）。智能障礙之正常青少年手足壓力及因應方式之研究〔未出版之碩士論文〕國立高雄師範大學。 謝宗榮、李秀娥（2016）。圖解台灣民俗工藝。晨星。 鍾文佳、郭怡芬、夏允中（2019）。建構儒釋道喪禮儀式的悲傷療癒歷程模式。中華輔導與諮商學報，54，59‐90。 顏鏡如、張美雲（2021）。一位極重度身心障礙手足的自我敘說探究。障礙者理解學刊，17，2，26‐48。 英文部份 Adams, T. E., Jones, S. H., &Ellis, C. (2015). Autoethnography: Understanding qualitative research. Oxford University Press. American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders (5th ed., text rev.). Attig, T. (1996). How we grieve: Relearning the world. Oxford University Press. Attig, T. A. (2001). Relearning the world: Making and finding meanings. In R. A. Neimeyer (Ed.), Meaning reconstruction and experience of loss (pp.33‐53). American Psychological Association. Balk, D.E. (2011). Adolescent Development and Bereavement: An Introduction. The prevention researcher, 18, 3-10. Blacher, J. & Begum, G. (2011). Sibling relationship quality and adjustment: Considerations of family, genetics, cultural exceptions and disability type. International Review of Research in Developmental Disabilities. 41, 163‐197. Bochner, A. P. (2001). Narrative’s Virtues. Qualitative Inquiry, 7(2), 131-157. Boer, F., & Dunn, J. (Eds.). (1992). Children's sibling relationships: Developmental and clinical issues. Lawrence Erlbaum Associates, Inc. Boerner, K., & Heckhausen, J. (2003). To have and have not: Adaptive bereavement by transforming mental ties to the deceased. Death Studies, 27, 199-226. Boss, P. (1999). Ambiguous loss. Harvard University Press. Bowlby, J. (1969). Attachment and loss: Attachment (Vol. 1). Hogarth. Bowlby, J. (1973). Attachment and loss: Speration (Vol. 2). Basic Books. Bowlby, J. (1980). Attachment and loss: Volume 3 loss: Sadness and depression. Penguin Books. Bowlby, J., & Parkes, C.M. (1970). Separation and loss within the family. In E.J.Anthony (Ed.), The child in his family (pp. 197‐216). Wiley. Bradshaw, J., & Lawton, D. (1978). Tracing the causes of stress in families with handicapped children. British Journal of Social Work, 8(2), 181-192. Braun, V. & Clarke, V. (2013). Successful Qualitative Research: a practical guide for beginners. Sage. Bruce, E. J., & Schultz, C. L. (2002). Nonfinite loss and challenges to communication between parents and professionals. British Journal of Special Education, 29(1),9‐13. Buckley, T., Sunari, D., Marshall, A., Bartrop, R., McKinley, S., & Tofler, G. (2012). Physiological correlates of bereavement and the impact of bereavement interventions. Dialogues in clinical neuroscience, 14(2), 129‐139. Cafferky, J., Banbury, S., & Athanasiadou-Lewis, C. (2018). Reflecting on parental terminal illness and death during adolescence: An interpretative phenomenological analysis. Interpersona: An International Journal on Personal Relationships, 12(2), 180‐196. Casey, K. (1995). The new narrative research in education. Review of Research in Education, 21, 211‐253. Chang, H. (2008). Autoethnography as method. Left Coast Press. Christ, G. H., Siegel, K., & Christ, A. E. (2002). Adolescent grief: "It never really hit me...until it actually happened". JAMA, 288(10), 1269‐1278. Cicirelli, V. G. (1995). Sibling relationships across the life span. Plenum Press. Clandinin, D.J., Pushor, D. and Orr, A.M. (2007) Navigating Sites for Narrative Inquiry. Journal of Teacher Education, 58(1), 21-35. Cohen, S. & Wills, T. A. (1985). Stress, social support and the buffering hypothesis. Psychological Bulletin, 98, 310-357. Connelly, F. M. & Clandinin, D. J. (1990). Stories of experience and narrative inquiry. Educational research, 19(4), 2‐14. Connelly, F. M. & Clandinin, D. J. (2006). Narrative inquiry. In. J. LGreen, G. Camilli, & P. Elmore (Eds.), Handbook of complementary methods in education research (3rd ed., pp. 477‐487). Lawrence Erlbaum. Corr, C. A., Nabe, C. M., & Corr, D. M. (2003). Death and dying, life and living (4th ed.). Brooks/Cole. Creswell, J. (2007). Qualitative inquiry and research design: Choosing among five approaches. Sage. Crocker, A. C. (1981). The involvement of siblings of children with handicaps. In A. Milunsky. (Ed.)., Coping with crisis and handicap. Plenum Press. Davis, C. G. (2001). The tormented and the transformed: Understanding responses to loss and trauma. In R. A. Neimeyer (Ed.), Meaning reconstruction & the experience of loss (pp. 137–155). American Psychological Association. Davis, C.G., Nolen-Hoeksema, S., &Larson, J. (1998). Making sense of loss and benefiting from the experience: Two construals of meaning. Journal of Personality and Social Psychology, 75(2), 561‐574. De Spelder, L. A., & Strickland, A. L. (2005). The last dance: Encountering death and dying (7th ed.). McGraw Hill. Dehlin, L., & Reg, L. M. (2009). Adolescents' experiences of a parent's serious illness and death. Palliative & supportive care, 7(1), 13‐25. Denzin, N. (1989). Interpretive biography. Sage. Díaz, M. M., Bocanegra, O. L., Teixeira, R. R., Tavares, M., Soares, S. S., & Espindola, F. S. (2013). The relationship between the cortisol awakening response, mood states, and performance. Journal of strength and conditioning research, 27(5), 1340‐1348. Doka, K. (1989). Disenfranchised grief: Recognizing hidden sorrow. Lexington Books. Doka, K. (2002). Disenfranchised grief: New directions, challenges, and strategies for practice. Research press. Drew, C.J., Hardman, M.L., & Logan, D.R. (1996). Mental retardation: A life cycle approach. Prentice-Hall. Ellis, C. S. (2004). The ethnographic I: A methodological novel about autoethnography. AltaMira Press. Ellis, C. S., & Bochner, A. P. (2000). Autoethnography, personal narrative, and personal reflexivity. 1n N. K. Denzin & Y. S. Lincoln (Eds.), Handbook 01 qualitative research (2nd ed.) (pp. 733 768). Sage. Ellis, C., Adams, T. E., & Bochner, A. P. (2010). Autoethnography: An Overview. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 12(1). Fewell, R.R (1986). A handicapped child in the family. In R.R. Fewell & P.F Vadasy (eds). Families of handicapped children: Needs and Supports across the life span (pp. 3–31) Austin, TX: PRO – ED, Inc. Field, N. P. (2006). Continuing bonds in adaptation to bereavement: Introduction. Death Studies, 30(8), 709‐714. Fisher, W. K. (1985). The narrative paradigm: In the beginning. Journal of Communication, 35(4), 79-84. Fleming, S.J., & Adolph, R. (1986). Helping bereaved adolescents: Needs and responses. In C.A. Corr & J.N. McNeil (Eds.), Adolescence and death (pp. 97‐118). Springer. Gergen, K. J., & Gergen, M. M. (1988). Narrative and the self as relationship. In L. Berkowitz (Ed.), Advances in experimental social psychology, Vol. 21. Social psychological studies of the self: Perspectives and programs (pp. 17‐56). Academic Press. Goodall, H. L., Jr. (1996). Divine signs: Connecting spirit to community. Southern Illinois University Press. Graff, C., Mandleco, B., Dyches, T. T., Coverston, C. R., Roper, S. O., & Freeborn, D. (2012). Perspectives of adolescent siblings of children with Down Syndrome who have multiple health problems. Journal of Family Nursing, 18(2), 175‐199. Hacking, I. (1995). The looping effects of human kinds. In D. Sperber（Ed.）, Causal cognition: An interdisciplinary approach (pp.351-183). Oxford University Press. Harris, D. L. (2020). Non-death loss and grief: Laying the foundation. In D. L. Harris (Ed.), Non-death loss and grief: Context and clinical implications (pp. 7‐16). Routledge/Taylor & Francis Group. Harris, D. L. (Ed.). (2019). Non-Death Loss and Grief: Context and Clinical Implications. Routledge. Hayslip, B., O’Brien, D. R., & Guarnaccia, C. A. (1999). The relationship of cause of death at attitude toward funerals and bereavement adjustment. Omega, 38(4), 297-312. Hodapp, R. M., Glidden, L. M., & Kaiser, A. P. (2005). Siblings of persons with disabilities: Toward a research agenda. Mental Retardation, 43(5), 334‐338. Holzinger, A., Matschinger, H., Schomerus, G., Carta, M. G., & Angermeyer, M. C. (2011). The loss of sadness: The public’s view. Acta Psychiatrica Scandinavica, 123, 307-313. Huges, S., Pennington, J., &Markris, S. (2012). Translating autoethnography across the AREA standards: Toward understanding autoethnographic scholarship as empirical research. Educational Research, 41(6), 209‐219. Janoff-Bulman, R. (1992). Shattered assumptions: Towards a new psychology of trauma. Free Press. Jones, S. H. (2005). Autoethnography: Making the personal political. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitive research (3rd ed.) (pp.763‐792). Sage. Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of child psychology and psychiatry, and allied disciplines, 43(2), 225–232. Kaplow, J. B., Shapiro, D. N., Wardecker, B. M., Howell, K. H., Abelson, J. L., Worthman, C. M., & Prossin, A. R. (2013). Psychological and environmental correlates of HPA axis functioning in parentally bereaved children: preliminary findings. Journal of traumatic stress, 26(2), 233‐240. Kaslow, F. W., & Cooper, B. (1978). Family therapy with the learning disabled child and his/her family. Journal of Marriage and Family Counseling, 4(1), 41‐49. Kavanaugh, R. E. (1972). Facing death. Penguin Books. Kessler, D. (2019). Finding meaning: the sixth stage of grief. First Scribner hardcover edition. Scribner. Kim, J. H., & Macintyre Latta, M. (2010). Narrative inquiry: Seeking relations as modes of interactions. Journal of education Research, 103, 69‐71. Klapper, J., Moss, S., Moss, M. & Rubinstein, R. L. (1994). The social context of grief among adult daughters who have lost a parent. Journal of Aging Studies, 8,29-43 Klass, D. (2001). Continuing bonds in the resolution of grief in Japan and North America. American Behavioral Scientist, 44(5), 742‐763. Klass, D., & Goss, R. (2003). The politics of grief and continuing bonds with the dead: The cases of Maoist China and Wahhabi Islam. Death Studies, 27(9), 787‐811. Klass, D., Silverman, P., & Nickman, S (1996). Continuning bonds: New understandings of grief. Taylor & Francis. Klein, M. (1965). Mourning and its relation to manic-depressive states. In M. Klein (Ed.). Contributions to psychoanalysis 1921-1945 (pp.311-418). Hillary. Kleinman, A. (2012). Culture, bereavement, and psychiatry. The Lancet, 379, 608-609. Kübler Ross, E. (1969). ON death and dying. MacMillan. Kübler-Ross, E., & Kessler, D. (2005). On grief and grieving: finding the meaning of grief through the five stages of loss. Scribner. Lazare, A. (1979). Unresoloved grief. In A. Lazare (Ed.), Outpatient psychiatry diagnosis and treatment (pp. 498-512). Williams & Wilkens. Lee, W.-L., Yu, H.-T., & Lin, Y.-S. (2022). Ethical Bonds Transformation in Bereaved Taiwanese Families: A Preliminary Study. OMEGA - Journal of Death and Dying, 0(0). Lewis, L., & Hoy, W. G. (2011). Bereavement rituals and the creation of legacy. In R. A. Neimeyer, D. L. Harris, H. R. Winokuer, & G. F. Thornton (Eds.), Grief and bereavement in ontemporary society: Bridging research and practice (pp. 315‐323). Routledge/Taylor & Francis Group. Lindemann, E. (1944). Symptomatology and management of acute grief. American Journal of Psychiatry, 101, 141-148. Lytje M. (2017). Towards a model of loss navigation in adolescence. Death studies, 41(5), 291–302. Malchiodi, C. A. (2002). The soul's palette. Shambhala. Malchiodi, C. A. (Ed.). (2012). Handbook of art therapy (2nd ed.). The Guilford Press. Marsh, D. T. (1992). Families and mental retardation: New directions in professional practice. Praeger Publishers. McCoyd, J. L. M., Koller, J. M., & Walter, C. A. (2021). Grief and loss across the lifespan: A biopsychosocial perspective (3rd ed.). Springer Publishing Company. Mchale, S. M. & Gamble, W. C. (1989). Sibling relationships of children with disabled and non‐disabled brothers and sisters. Developmental Psychology, 25, 421‐429. McLeod, J. (2001). Qualitative research in counselling and psychotherapy. SAGE Publications Ltd. Neimeyer, R. A. (2001). The language of loss: Grief therapy as a process of meaning reconstruction. In R. A. Neimeyer (Ed.), Meaning reconstruction and experience of loss (pp.261‐292). American Psychological Association. Neimeyer, R. A., & Sands, D. C. (2011). Meaning reconstruction in bereavement: From principles to practice. In R. A. Neimeyer, D. L. Harris, H. R. Winokuer, &G. F. Thornton (Eds.), Grief and bereavement in contemporary society: Bridging research and practice (pp. 9‐22). Routledge/Taylor & Francis Group. Norton, M. I., & Gino, F. (2014). Rituals alleviate grieving for loved ones, lovers, and lotteries. Journal of experimental psychology. General, 143(1), 266–272. Olshansky, S. (1962). Chronic Sorrow: A Response to Having a Mentally Defective Child. Social Casework, 43(4), 190-193. Oltjenbruns, K. A. (1996). Death of a friend during adolescence: Issues and impacts. In C. A. Corr & D. E. Balk (Eds.), Handbook of adolescent death and bereavement (pp. 196–215). Springer Publishing Company. Orsmond, G. I., & Seltzer, M. M. (2007). Siblings of individuals with autism spectrum disorders across the life course. Mental retardation and developmental disabilities research reviews, 13(4), 313‐320. Parkes C. M., Laungani P., Young B. (2000). Death and bereavement across cultures. New York, NY. Routledge. Parkes, C. M. (1971). Psycho-social transitions: A field for study. Social Science & Medicine, 5(2), 101‐115. Parkes, C. M. (1972). Bereavement: Studies of grief in adult life. Universities Press. Parkes, C. M. (1975). What becomes of redundant world models? A contribution to the study of adaptation to change. British Journal of Medical Psychology, 48(2), 131‐137. Parkes, C. M. (1998). Bereavement. In D. Doyle, G. W. C. Hanks, & N. MacDonald (Eds.), Oxford textbook of palliative medicine (pp. 995-1010). Oxford University Press. Parkes, C. M., Laungani, P., & Young, B. (2015). Death and bereavement across cultures (2nd ed.). Routledge/Taylor & Francis Group. Parkes, C.M. (1996). Bereavement: Stories of grief in adult life. Routledge. Parkes, C.M., & Weiss, R. S. (1983). Recover from bereavement. Basic Books. Pelias, R. J. (2004). A methodology of the heart: Evoking academic and daily life.AltaMira Press. Peretz, D. (1970). Reaction to loss,Loss and grief :Psychological management in medical practice. Columbia University Press. Poulos, C. N. (2021). Essentials of autoethnography. American PsychologicalAssociation. Powell, T. H. & Gallagher, P. A. (1993). Brothers and sisters—A special part of exceptional families (2nd. Ed.) (pp. 35‐81). Paul H. Brookes. Prigerson, H. G., Horowitz, M. J., Jacobs, S. C., Parkes, C. M., Aslan, M., Goodkin, K., et al. (2009). Prolonged grief disorder: Psychometric validation of criteria proposed for DSM-V and ICD-11. PLoS Medicine, 6(8), 1-12. Punazino, A. C., Montagna, L., Mastroianni, C., Giuseppe, C., Piredda, M., & de Marinis, M. G. (2014). Losing a Parent: Analysis of the Literature on the Experiences and Needs of Adolescents Dealing With Grief. Journal of Hospice & Palliative Nursing 16(6), 362-373. Rando, T. A. (1993). Treatment of complicated mourning. Research Press. Reed, M. D. (1998). Predicting grief symptomatology among the suddenly bereaved. Suicide & Life: Threatening Behavior, 28(3), 285-301. Reed-Danahay, D. (1997). Introduction. In D. Reed-Danahay (Eds.). Auto/ Ethnography: Rewriting the self and the social (pp. 1-17). Berg. Richardson, L. (2000). Evaluating Ethnography. Qualitative Inquiry, 6(2), 253-255. Ricoeur, P. (1990). Time and Narrative (Vol. 3) (K. Blamey & D. Pellauer, Trans.). The University of Chicago Press. (Original work published 1988). Rogers, N. (1993). The Creative Connection: Expressive Arts as Healing. Science and Behavior Books. Romanoff, B. D., & Terenzio, M. (1998). Rituals and the grieving process. Death Studies, 22, 697-711. Rubin, S., Malkinson, R., & Wituzm, E. (2011). The two track model of bereavement: The double helix of research and clinical practice. In R. Neimeyer, D. Harris, H. Winokuer, &G. Thornton (Eds.), Grief and bereavement in contemporary society: Bridging research and practice (pp. 47‐56). Routledge. Sanders, C. (1999). Grief: The mourning after: Dealing with adult bereavement (2nd ed.). Wiley. Sarbin, T. R. (1986). The narrative as a root metaphor for psychology. In T. R. Sarbin (Ed.), Narrative psychology: The storied nature of human conduct (pp.3‐21). Praeger. Seligman, M. (1979). Strategies for helping parents of exceptional children: a guide for teachers. The Free Press. Seligman, M., & Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability (3rd ed.). Guilford Press. Shear, M. K., Simon, N., Wall, M., Zisook, S., Neimeyer, R., Duan, N., et al. (2011). Complicated grief and related bereavement issues for DSM-5. Depression and Anxiety, 28, 103-117. Smith, R. J. (1994). China’s cultural heritage: The Qing dynasty, 1644‐1912. Westview Press. Spry, T. (2001). Perfonning autoethnography: An embodied methodological praxis. Qualitative Inquiry, 7(6), 706‐732. Storr, A. (1972). The dynamics of creation. Secker & Warburg. Stroebe, M., Schut, H., & Strobe, W. (2005). Attachment in coping with Bereavement: A theoretical integration. Review of General Psychology, 9(1), 48‐66. Summers, C. R., White, K. R., & Summer, M. (1994). Siblings of children with a disability: A review and analysis of the empirical literature. Journal of Social Behavior & Personality, 9(5), 169‐184. Sundaresan, M., Nalin, R. (2017). Siblings of Children with disabilities: Views from Pilot Study. Journal Of Humanities And Social Science, 3, 20‐23. Thompson, N., & Cox, G.R. (Eds.). (2017). Handbook of the Sociology of Death, Grief, and Bereavement: A Guide to Theory and Practice (1st ed.). Routledge. Thompson, N., & Doka, K. J. (2017). Disenfranchised grief. In N. Thompson & G. R. Cox (Eds.), Handbook of the sociology of death, grief, and bereavement: A guide to theory and proactice (pp. 177-190). Routledge. Tracy, E. M., & Biegel, D. E. (1994). Preparing social workers for social network interventions in mental health practice. Journal of Teaching in Social Work, 10(1), 19-41. Turnbull, A. P., & Turnbull, R. H. (1990). Families, professional, and exceptionality: A special partnership (2nd ed.). Merrill Prentice Hall. Turnbull, A. R., Turnbull, Erwin, E. J., Soodak, L.C. & Shogren, K. A. (2010). Families, professional, and exceptionality: Positive outcomes through partnerships and trust (6th. ed.). Merrill Prentice Hall. Weenolsen, P. (1988). Transcendence of loss over the life span. Hemisphere Publishing Corp. Worden, J. W. (1998). Grief counseling and grief therapy: A handbook for the mental health practitioner (2nd ed.). New York, NY: Springer Publish Company. Worden, J. W. (2002). Grief counseling and grief therapy: A handbook for the mental health practitioner (3rd ed.). New York, NY: Springer Publish Company. Worden, J. W. (2009). Grief counseling and grief therapy: A handbook for the mental health practitioner (4th ed.). New York, NY: Springer Publish Company. Worden, J. W., & Winokuer, H. R. (2011). A task-based approach for counseling the bereaved. In R. A. Neimeyer, D. L. Harris, H. R. Winokuer, & G. F. Thornton (Eds.), Grief and bereavement in contemporary society: Bridging research and practice (pp. 57‐67). Routledge/Taylor & Francis Group. 描述 碩士
國立政治大學
輔導與諮商碩士學位學程
109172007資料來源 http://thesis.lib.nccu.edu.tw/record/#G0109172007 資料類型 thesis dc.contributor.advisor 王素芸 zh_TW dc.contributor.advisor Wang,Su-Yun en_US dc.contributor.author (Authors) 林鎮漢 zh_TW dc.contributor.author (Authors) Lin, Cheng-Han en_US dc.creator (作者) 林鎮漢 zh_TW dc.creator (作者) Lin, Cheng-Han en_US dc.date (日期) 2023 en_US dc.date.accessioned 1-Feb-2024 11:42:10 (UTC+8) - dc.date.available 1-Feb-2024 11:42:10 (UTC+8) - dc.date.issued (上傳時間) 1-Feb-2024 11:42:10 (UTC+8) - dc.identifier (Other Identifiers) G0109172007 en_US dc.identifier.uri (URI) https://nccur.lib.nccu.edu.tw/handle/140.119/149651 - dc.description (描述) 碩士 zh_TW dc.description (描述) 國立政治大學 zh_TW dc.description (描述) 輔導與諮商碩士學位學程 zh_TW dc.description (描述) 109172007 zh_TW dc.description.abstract (摘要) 本研究以自我民族誌為研究方法詮釋與分析研究者身為身心障礙者手足與喪親者之生命經驗之於社會文化脈絡的關係，分為對自我初步的探索、對問題意識的洞察、產出自我民族誌的行動等三階段研究歷程。研究者希望以本研究示範個人在生活中前行、改變、轉化的可能性並藉此啟發讀者，也希望能以本研究為媒介吸引讀者進入研究者的內在世界與研究者互動。 以研究結論而言，研究者洞察自身在與他者互動歷程中因為不同社會文化脈絡而經驗身心障礙者手足與喪親者角色亦洞察自身對自我概念形成的詮釋以及對失落與悲傷的詮釋受不同社會文化脈絡影響，此外研究者過本研究統合個人經驗、建構個人意義的歷程中更以教育範疇為視角連結個人與自身所處的社會文化脈絡。 以研究貢獻而言，本研究使研究者帶著新自我認同準備投身助人工作中、以研究者自身經驗示範對特殊性與獨特性之倡議與行動、豐富他者對失落與悲傷命題之想像與視野，研究者也期許完成本研究後自身能投入教育活動倡議失落與悲傷、身心障礙者手足、喪親者相關主題。 zh_TW dc.description.abstract (摘要) This research is composed of exploration of self, insight into problematic and taking action by autoethnography, which intend to make connection between research’s life experience and social context by approaching autoethnography to interpret and analyze the researcher’s life experience as a sibling of the disabled and as a bereaved child. The researcher hopes to demonstrate how a person move, change and transform, and also hopes readers can be attracted to researcher’s internal world and interact with the researcher by this research. The research conclusions show that researcher insight that interactions with others build up the experience as sibling of the disabled and bereaved child, and the social context influenced the researcher’s interpretation of the self-concept and the loss and grief. By the way the researcher intergraded personal experience and constructed personal meaning by educational perspectives, by which intend to connect himself and social context. As for research contribution, this research helps the researcher carry on new self-identity to engage in helping professions, demonstrates the advocacy and action on specialty and distinctiveness by research’s induvial experience, broaden others imagination and view of loss and grief, and the research also hopes he can engage in educational advocacy related to themes about loss and grief, sibling of the disabled and bereaved child after finishing this research. en_US dc.description.tableofcontents 目 次 第一章 緒論 5 第一節 問題意識與前見 5 第二節 研究問題 10 第三節 研究目的 11 第二章 文獻探討 12 第一節 失落與悲傷 12 第二節 喪親者 25 第三節 身心障礙者手足 31 第四節 何謂自我民族誌 38 第五節 研究者與社會文化脈絡 42 第三章 研究方法 46 第一節 為何選擇自我民族誌 46 第二節 自我民族誌研究之原則 49 第三節 研究流程 55 第四節 自傳文本的敘事時序 57 第五節 研究品質檢核方式 58 第六節 研究倫理預計之處遇方式 59 第四章 自傳：迷途 60 第一節 渴望認同的兒子 61 第二節 我只想當好一位兄長 71 第三節 潮境 80 第四節 我的失落與悲傷 85 第五節 失落過後 97 第五章 結論與討論 100 第一節 與文獻之對話 100 第二節 本研究之結論 105 第三節 本研究相關討論 114 參考文獻 122 zh_TW dc.format.extent 1717742 bytes - dc.format.mimetype application/pdf - dc.source.uri (資料來源) http://thesis.lib.nccu.edu.tw/record/#G0109172007 en_US dc.subject (關鍵詞) 自我民族誌 zh_TW dc.subject (關鍵詞) 失落與悲傷 zh_TW dc.subject (關鍵詞) 身心障礙者手足 zh_TW dc.subject (關鍵詞) 喪親者 zh_TW dc.subject (關鍵詞) Autoethnography en_US dc.subject (關鍵詞) Loss and grief en_US dc.subject (關鍵詞) Sibling of the disabled en_US dc.subject (關鍵詞) Bereaved child en_US dc.title (題名) 失落與悲傷經驗探究：一位身心障礙者手足與喪親者的自我民族誌 zh_TW dc.title (題名) The Research on Loss and Grief: An Autoethnography of a Sibling of the Disabled and a Bereaved Child en_US dc.type (資料類型) thesis en_US dc.relation.reference (參考文獻) 中文部份 Hill, C. E.（2017）。助人技巧: 探索、洞察與行動的催化〔林美珠、田秀蘭譯，第4版〕。學富。（原著出版年：2014） Sharf, R. S.（2013）。諮商與心理治療〔馬長齡、羅幼瓊、葉怡寧、林延叡譯，第2版〕。心理。（原著出版年：2012） Verderber, R. F & Verderber, K. S（2015）。人際關係與溝通〔陸洛、周君倚、梁錦泉、陳楓媚、範學良譯，第13版〕。前程。（原著出版：1980） Winokuer, H. R. & Harris, D. L.（2016）。悲傷諮商：原理與實務〔陳増穎譯〕。心理。（原著出版於2012） 丁思惠（1995）。癌症病逝者其配偶悲傷過程之研究〔未出版之碩士論文〕。東吳大學。 丁興祥（2012）。自我敘說研究：一種另類心理學。應用心理研究，6，15-132 。 中央研究院近代史研究所（編）（1992）。近世家族與政治比較歷史論文集。中央研究院近代史研究所。 文化部（無日期）。文化平權。2023年12月30日，取自https://www.moc.gov.tw/cp.aspx?n=137 王仁音（2012）。自閉症者成年手足之生命經驗〔未出版之碩士論文〕。國立高雄師範大學。 王秀槐（2015）。從「以我為榮」到「證明自己」：華人文化脈絡下知覺不同父母期待之大學生的生涯因應組型初探研究。輔導與諮商學報，37（1），79‐97。 王純娟（2006）。一位喪兒父親的蛻變。中華輔導學報，20，1‐50。 王懿晨（2019）。一個愛奇兒母親生命經驗之自我敘說〔未出版之碩士論文〕。國立臺北護理健康大學。 立法院（2006）。立法院第6屆第4會期第4次會議議案關係文書。台北。 何國華（2004）。特殊兒童親職教育。五南。 何粵東（2005）。敘說研究方法論初探。應用心理研究，25，55-72。 何粵東（2010）。自我民族誌的課程研究初探。中正教育研究，9（1）。 余德慧（1992）。中國人的人際苦痛及其分析。載於楊中芳（編），中國人，中國心：人格社會篇（291-364 頁）。遠流出版社。 余德慧、李維倫、許敏桃（2002，11 月）。從家庭失親處境探討集體化的形成過程。第四屆華人心理學術研討會暨第六屆華人心理與行為科學學術研討會〔研討會〕。台北：中央研究院民族學研究所。 吳月娟（1999）。非障礙手足心理適應之探討。特殊教育季刊，73，29‐34。 吳秀碧（2016）：傳統喪禮儀式在哀傷諮商的省思和啟發。輔導季刊，52（1），1-13。 吳秀碧（2017）。客體角色轉化在非複雜性哀傷諮商影響之初探。中華輔導與諮商學報，48，71-106。 吳佩玲、李玉嬋（2015）。二次喪失手足者悲傷反應對手足關係影響之研究。應用心理研究，62，5‐58。 吳美麗（2017）。目睹雙親自殺之遺族青少女生命故事之敘說研究〔未出版碩士論文〕。屏東大學。 吳清山、林雍智（2021）。教育學門論文寫作格式指引：APA格式第七版之應用（2022年全新修訂版）。心理。 呂欣芹、方俊凱、林綺雲（2007）。自殺者遺族悲傷調 適之任務—危機模式初步建構。中華輔導學報，37，185-221。 巫志忠（2008）。喪失手足青少年之悲傷調適與輔導。諮商與輔導，275，40‐42。 李亦園（2010）。信仰與文化。華藝數位。 李秉倫、黃光國、夏允中（2015）。建構本土哀傷療癒理論：儒家關係主義和諧哀傷癒理論。諮商心理與復健諮商學報，28，7‐33。 李美枝（1998）。親子關係的內涵與功能。本土心理學研究，9，3-52。 李麗玲（1995）。智障兒童青少年手足與一般家庭青少年親子關係與生活適應之比較研究〔未出版碩士論文〕中國文化大學。 汪文聖（2021）。心理創傷敘事療癒的理論與實務探討。中華輔導與諮商學報，61，89‐117。 身心障礙者權益保障法（民國110年1月20日）修正公布。 林文瑛、王振武（1995）。中國父母的教養觀：嚴教觀或打罵觀？。本土心理學研究，3，2‐92。 林佩儀、黃傳永（2020）。以雙歷程模式對喪親青少年悲傷歷程之探究。諮商與輔導，413，30-37。 林昀芊、郭瓈灩（2018）。運用正念取向心理諮商陪伴男性高齡者經歷喪偶哀痛歷程之個案報告。諮商與輔導，11，394，11-15。 林娟芬（1999）。認識死亡、失落與悲傷。神學與教會，25（1），36-82。 林培涵（2014）。回頭看，與你相遇的青春—青少年時期與自閉症手足的互動經驗〔未出版之碩士論文〕。國立臺灣大學。 林綺雲（2005）。社會文化與悲傷反應。生死學研究，（2），107-127。 林綺雲、曾煥棠、林慧珍、陳錫琦、李佩怡、方蕙玲（2000）。生死學。洪葉。 林耀盛（2011）。幽緲邊界下的創慟處境：探究九二一震災身心障礙者的失能體驗與喪親經驗。身心障礙研究季刊，9（3）。 林耀盛、侯懿真、許敏桃（2011）。悲悼的歧義：癌症新近喪偶者的心理反應經驗探究。生死學研究，（11），1‐40。 施宇峰、譚子文（2011）。依附關係和自我概念之關聯性研究。臺中教育大學學報，25（1），1-27。 柯菀榕（2010）。自閉症兒童之一般手足的壓力與因應方式之探討〔未出版之碩士論文〕樹德科技大學。 洪雅琴（2013）。傳統喪葬儀式中的哀悼經驗分析：以往生到入殮為例。中華輔導與諮商學報，37，55‐88。 洪瑞斌、陳筱婷、莊騏嘉。自我敘說研究中的真實與真理：兼論自我敘說研究之品質參照標準。應用心理學研究，（56），19‐53。 唐婉如（2008年5月）。原住民青少年之生死觀－以阿美族、泰雅族為例。安寧療護雜誌，13（2），156-167。 徐欣萍（2015）。華人社會互動關係中的緣觀認知運作歷程與因應行動探討〔未出版之博士學位論文〕。國立台灣大學。 張文珠、詹碧端（2012）。協助一位喪子父親渡過悲傷期之護理經驗。領導護理，13（3）。 張玉仕（1997）。試論當今喪親輔導模式之過程適用否。安寧照顧會訊，25，19‐23。 張春興（2006）。張氏心理學辭典。東華。 張英熙（2002）。特殊兒童家長的失落經驗。特殊教育季刊，82，16‐22。 張素貞（1999）。"智障手足"自我概念與生活適應之研究〔未出版碩士論文〕國立高雄師範大學。 張淑芬（1996）。喪子悲傷反應及意義治療的應用。諮商與輔導，127，24-27。 張達人、黃梅羹、那姍姍、陳良娟、鄧世雄（1998）。喪親者之團體心理治療—一位傷慟者領悟歷程，中華心理衛生學刊，11（3），69-80。 教育百科（2023年，6月11日）。國家教育研究院辭書。https://pedia.cloud.edu.tw/Entry/Detail?title=%E6%95%99%E8%82%B2&search=%E6%95%99%E8%82%B2#glossary 許玉霜、蘇完女、許鶯珠（2012）。喪手足女性成人的悲傷反應及調適歷程之探究。生死學研究，（13），121‐173。 許敏桃、余德慧、李維倫（2005）。哀悼傷逝的文化模式：由連結到療癒。本土心理學研究，24，49-84。 許詩淇、葉光輝（2019）。華人人際及群際關係主題研究的回顧與前瞻。本土心理學研究，51，33-88。 郭于華（1994）。死的困惑與生的執著。洪葉。 郭秀敏、柯佳緣、孫可書（2019）。台灣喪偶者的社會心理需求評估與協助資源—以台北市一葉蘭喪偶家庭成長協會為例。諮商與輔導，13，401，13‐16。 陳永銓、曾煥棠（2015）。男性喪偶者的悲傷不同於女性嗎？應用心理研究，62，113‐161。 陳紹韻（1999）。阿含經之喪親輔導個案初探〔未出版論文〕中華佛學研究所。 陳維樑、鍾秀筠（1999）。哀傷輔導手冊：概念與方法。贐明會。 陳鳳苓（2014）。智能障礙者與其手足互動歷程之研究〔未出版碩士論文〕玄奘大學。 陸洛（2003）。人我關係之界定：折衷自我的現身。本土心理學研究，29，39-207。 費孝通（1948）。鄉土中國與鄉土重建。觀察社。 黃光國（2005）。儒家關係主義：文化反思與典範重建。台灣大學出版中心。 黃光國（2009）。儒家關係主義：哲學反思、理論建構與實徵研究。心理。 黃姝文、卓紋君（2012）。一位喪子單親母親對器官捐贈的母親對器官捐贈的母親對器官捐贈的悲傷調適經驗。諮商輔導學報－高師輔導所刊，24，95‐130。 黃迺毓（2016）。家庭教育導論。五南。 黃淑清、修慧蘭（2003）。失落之探討：以青少年期父母過世的成人為例。應用心理研究，20，217‐238。 黃雅薇（2008）。不只是妹妹—一位身心障礙手足的生命故事〔未出版碩士論文〕。國立臺北教育大學。 黃傳永（2012）。藝術治療運用在失落悲傷調適之探討。台灣心理諮商季刊，4（2），22-41。 楊國樞（1993）。我們為什麼要建立中國人的本土心理學？本土心理學研究，1，6-88。 楊懋春（1981）。中國家庭與倫理。中央文物供應社。 葉文虎、鄭凱芸（2018）。翻牆的記憶－身心障礙者的手足關係。臺灣社會工作學刊，20，41-73。 葉安華（2016）。我的負傷之旅—一個負傷療癒者的自傳式民族誌〔未出版博士論文〕國立臺灣師範大學。 葉育婷、李姿瑩（2017）。哥哥的守護者—一位聽障手足的真情告白。特殊教育發展期刊，64，53-64。 劉彥成（2006）。明清時代大眾的功名心態。史轍，2，1-33。 劉益蓉、邱春瑜、張恒豪、柯秋雪（2020）。家成、業就？擔任特教老師的非障礙手足之邊界跨越經驗探究，特殊教育研究學刊，45，3，29‐51。 劉淑娟（2013）。障礙者手足承擔照顧之因素與影響-以台中市某長期照護機構為例〔未出版碩士論文〕臺北大學。 蔡珊珊（2010）。聽人與其聽障手足互動歷程之敘事研究〔未出版之碩士論文〕。國立臺灣師範大學。 蔡榮美、吳晶萍、黃初雪（2007年7月）。失落之概念分析。馬偕護理雜誌，1（2），16-23。 蔡維民（2010）。台灣基督教創新喪葬儀式之研究－以客家教會「創新喪禮」為例。新世紀宗教研究，8（3），51-94。 鄭伯壎（1995）。差序格局與華人組織行為。本土心理學研究，3，142-219。 鄭雅薇（2002）。智能障礙之正常青少年手足壓力及因應方式之研究〔未出版之碩士論文〕國立高雄師範大學。 謝宗榮、李秀娥（2016）。圖解台灣民俗工藝。晨星。 鍾文佳、郭怡芬、夏允中（2019）。建構儒釋道喪禮儀式的悲傷療癒歷程模式。中華輔導與諮商學報，54，59‐90。 顏鏡如、張美雲（2021）。一位極重度身心障礙手足的自我敘說探究。障礙者理解學刊，17，2，26‐48。 英文部份 Adams, T. E., Jones, S. H., &Ellis, C. (2015). Autoethnography: Understanding qualitative research. Oxford University Press. American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders (5th ed., text rev.). Attig, T. (1996). How we grieve: Relearning the world. Oxford University Press. Attig, T. A. (2001). Relearning the world: Making and finding meanings. In R. A. Neimeyer (Ed.), Meaning reconstruction and experience of loss (pp.33‐53). American Psychological Association. Balk, D.E. (2011). Adolescent Development and Bereavement: An Introduction. The prevention researcher, 18, 3-10. Blacher, J. & Begum, G. (2011). Sibling relationship quality and adjustment: Considerations of family, genetics, cultural exceptions and disability type. International Review of Research in Developmental Disabilities. 41, 163‐197. Bochner, A. P. (2001). Narrative’s Virtues. Qualitative Inquiry, 7(2), 131-157. Boer, F., & Dunn, J. (Eds.). (1992). Children's sibling relationships: Developmental and clinical issues. Lawrence Erlbaum Associates, Inc. Boerner, K., & Heckhausen, J. (2003). To have and have not: Adaptive bereavement by transforming mental ties to the deceased. Death Studies, 27, 199-226. Boss, P. (1999). Ambiguous loss. Harvard University Press. Bowlby, J. (1969). Attachment and loss: Attachment (Vol. 1). Hogarth. Bowlby, J. (1973). Attachment and loss: Speration (Vol. 2). Basic Books. Bowlby, J. (1980). Attachment and loss: Volume 3 loss: Sadness and depression. Penguin Books. Bowlby, J., & Parkes, C.M. (1970). Separation and loss within the family. In E.J.Anthony (Ed.), The child in his family (pp. 197‐216). Wiley. Bradshaw, J., & Lawton, D. (1978). Tracing the causes of stress in families with handicapped children. British Journal of Social Work, 8(2), 181-192. Braun, V. & Clarke, V. (2013). Successful Qualitative Research: a practical guide for beginners. Sage. Bruce, E. J., & Schultz, C. L. (2002). Nonfinite loss and challenges to communication between parents and professionals. British Journal of Special Education, 29(1),9‐13. Buckley, T., Sunari, D., Marshall, A., Bartrop, R., McKinley, S., & Tofler, G. (2012). Physiological correlates of bereavement and the impact of bereavement interventions. Dialogues in clinical neuroscience, 14(2), 129‐139. Cafferky, J., Banbury, S., & Athanasiadou-Lewis, C. (2018). Reflecting on parental terminal illness and death during adolescence: An interpretative phenomenological analysis. Interpersona: An International Journal on Personal Relationships, 12(2), 180‐196. Casey, K. (1995). The new narrative research in education. Review of Research in Education, 21, 211‐253. Chang, H. (2008). Autoethnography as method. Left Coast Press. Christ, G. H., Siegel, K., & Christ, A. E. (2002). Adolescent grief: "It never really hit me...until it actually happened". JAMA, 288(10), 1269‐1278. Cicirelli, V. G. (1995). Sibling relationships across the life span. Plenum Press. Clandinin, D.J., Pushor, D. and Orr, A.M. (2007) Navigating Sites for Narrative Inquiry. Journal of Teacher Education, 58(1), 21-35. Cohen, S. & Wills, T. A. (1985). Stress, social support and the buffering hypothesis. Psychological Bulletin, 98, 310-357. Connelly, F. M. & Clandinin, D. J. (1990). Stories of experience and narrative inquiry. Educational research, 19(4), 2‐14. Connelly, F. M. & Clandinin, D. J. (2006). Narrative inquiry. In. J. LGreen, G. Camilli, & P. Elmore (Eds.), Handbook of complementary methods in education research (3rd ed., pp. 477‐487). Lawrence Erlbaum. Corr, C. A., Nabe, C. M., & Corr, D. M. (2003). Death and dying, life and living (4th ed.). Brooks/Cole. Creswell, J. (2007). Qualitative inquiry and research design: Choosing among five approaches. Sage. Crocker, A. C. (1981). The involvement of siblings of children with handicaps. In A. Milunsky. (Ed.)., Coping with crisis and handicap. Plenum Press. Davis, C. G. (2001). The tormented and the transformed: Understanding responses to loss and trauma. In R. A. Neimeyer (Ed.), Meaning reconstruction & the experience of loss (pp. 137–155). American Psychological Association. Davis, C.G., Nolen-Hoeksema, S., &Larson, J. (1998). Making sense of loss and benefiting from the experience: Two construals of meaning. Journal of Personality and Social Psychology, 75(2), 561‐574. De Spelder, L. A., & Strickland, A. L. (2005). The last dance: Encountering death and dying (7th ed.). McGraw Hill. Dehlin, L., & Reg, L. M. (2009). Adolescents' experiences of a parent's serious illness and death. Palliative & supportive care, 7(1), 13‐25. Denzin, N. (1989). Interpretive biography. Sage. Díaz, M. M., Bocanegra, O. L., Teixeira, R. R., Tavares, M., Soares, S. S., & Espindola, F. S. (2013). The relationship between the cortisol awakening response, mood states, and performance. Journal of strength and conditioning research, 27(5), 1340‐1348. Doka, K. (1989). Disenfranchised grief: Recognizing hidden sorrow. Lexington Books. Doka, K. (2002). Disenfranchised grief: New directions, challenges, and strategies for practice. Research press. Drew, C.J., Hardman, M.L., & Logan, D.R. (1996). Mental retardation: A life cycle approach. Prentice-Hall. Ellis, C. S. (2004). The ethnographic I: A methodological novel about autoethnography. AltaMira Press. Ellis, C. S., & Bochner, A. P. (2000). Autoethnography, personal narrative, and personal reflexivity. 1n N. K. Denzin & Y. S. Lincoln (Eds.), Handbook 01 qualitative research (2nd ed.) (pp. 733 768). Sage. Ellis, C., Adams, T. E., & Bochner, A. P. (2010). Autoethnography: An Overview. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 12(1). Fewell, R.R (1986). A handicapped child in the family. In R.R. Fewell & P.F Vadasy (eds). Families of handicapped children: Needs and Supports across the life span (pp. 3–31) Austin, TX: PRO – ED, Inc. Field, N. P. (2006). Continuing bonds in adaptation to bereavement: Introduction. Death Studies, 30(8), 709‐714. Fisher, W. K. (1985). The narrative paradigm: In the beginning. Journal of Communication, 35(4), 79-84. Fleming, S.J., & Adolph, R. (1986). Helping bereaved adolescents: Needs and responses. In C.A. Corr & J.N. McNeil (Eds.), Adolescence and death (pp. 97‐118). Springer. Gergen, K. J., & Gergen, M. M. (1988). Narrative and the self as relationship. In L. Berkowitz (Ed.), Advances in experimental social psychology, Vol. 21. Social psychological studies of the self: Perspectives and programs (pp. 17‐56). Academic Press. Goodall, H. L., Jr. (1996). Divine signs: Connecting spirit to community. Southern Illinois University Press. Graff, C., Mandleco, B., Dyches, T. T., Coverston, C. R., Roper, S. O., & Freeborn, D. (2012). Perspectives of adolescent siblings of children with Down Syndrome who have multiple health problems. Journal of Family Nursing, 18(2), 175‐199. Hacking, I. (1995). The looping effects of human kinds. In D. Sperber（Ed.）, Causal cognition: An interdisciplinary approach (pp.351-183). Oxford University Press. Harris, D. L. (2020). Non-death loss and grief: Laying the foundation. In D. L. Harris (Ed.), Non-death loss and grief: Context and clinical implications (pp. 7‐16). Routledge/Taylor & Francis Group. Harris, D. L. (Ed.). (2019). Non-Death Loss and Grief: Context and Clinical Implications. Routledge. Hayslip, B., O’Brien, D. R., & Guarnaccia, C. A. (1999). The relationship of cause of death at attitude toward funerals and bereavement adjustment. Omega, 38(4), 297-312. Hodapp, R. M., Glidden, L. M., & Kaiser, A. P. (2005). Siblings of persons with disabilities: Toward a research agenda. Mental Retardation, 43(5), 334‐338. Holzinger, A., Matschinger, H., Schomerus, G., Carta, M. G., & Angermeyer, M. C. (2011). The loss of sadness: The public’s view. Acta Psychiatrica Scandinavica, 123, 307-313. Huges, S., Pennington, J., &Markris, S. (2012). Translating autoethnography across the AREA standards: Toward understanding autoethnographic scholarship as empirical research. Educational Research, 41(6), 209‐219. Janoff-Bulman, R. (1992). Shattered assumptions: Towards a new psychology of trauma. Free Press. Jones, S. H. (2005). Autoethnography: Making the personal political. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitive research (3rd ed.) (pp.763‐792). Sage. Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of child psychology and psychiatry, and allied disciplines, 43(2), 225–232. Kaplow, J. B., Shapiro, D. N., Wardecker, B. M., Howell, K. H., Abelson, J. L., Worthman, C. M., & Prossin, A. R. (2013). Psychological and environmental correlates of HPA axis functioning in parentally bereaved children: preliminary findings. Journal of traumatic stress, 26(2), 233‐240. Kaslow, F. W., & Cooper, B. (1978). Family therapy with the learning disabled child and his/her family. Journal of Marriage and Family Counseling, 4(1), 41‐49. Kavanaugh, R. E. (1972). Facing death. Penguin Books. Kessler, D. (2019). Finding meaning: the sixth stage of grief. First Scribner hardcover edition. Scribner. Kim, J. H., & Macintyre Latta, M. (2010). Narrative inquiry: Seeking relations as modes of interactions. Journal of education Research, 103, 69‐71. Klapper, J., Moss, S., Moss, M. & Rubinstein, R. L. (1994). The social context of grief among adult daughters who have lost a parent. Journal of Aging Studies, 8,29-43 Klass, D. (2001). Continuing bonds in the resolution of grief in Japan and North America. American Behavioral Scientist, 44(5), 742‐763. Klass, D., & Goss, R. (2003). The politics of grief and continuing bonds with the dead: The cases of Maoist China and Wahhabi Islam. Death Studies, 27(9), 787‐811. Klass, D., Silverman, P., & Nickman, S (1996). Continuning bonds: New understandings of grief. Taylor & Francis. Klein, M. (1965). Mourning and its relation to manic-depressive states. In M. Klein (Ed.). Contributions to psychoanalysis 1921-1945 (pp.311-418). Hillary. Kleinman, A. (2012). Culture, bereavement, and psychiatry. The Lancet, 379, 608-609. Kübler Ross, E. (1969). ON death and dying. MacMillan. Kübler-Ross, E., & Kessler, D. (2005). On grief and grieving: finding the meaning of grief through the five stages of loss. Scribner. Lazare, A. (1979). Unresoloved grief. In A. Lazare (Ed.), Outpatient psychiatry diagnosis and treatment (pp. 498-512). Williams & Wilkens. Lee, W.-L., Yu, H.-T., & Lin, Y.-S. (2022). Ethical Bonds Transformation in Bereaved Taiwanese Families: A Preliminary Study. OMEGA - Journal of Death and Dying, 0(0). Lewis, L., & Hoy, W. G. (2011). Bereavement rituals and the creation of legacy. In R. A. Neimeyer, D. L. Harris, H. R. Winokuer, & G. F. Thornton (Eds.), Grief and bereavement in ontemporary society: Bridging research and practice (pp. 315‐323). Routledge/Taylor & Francis Group. Lindemann, E. (1944). Symptomatology and management of acute grief. American Journal of Psychiatry, 101, 141-148. Lytje M. (2017). Towards a model of loss navigation in adolescence. Death studies, 41(5), 291–302. Malchiodi, C. A. (2002). The soul's palette. Shambhala. Malchiodi, C. A. (Ed.). (2012). Handbook of art therapy (2nd ed.). The Guilford Press. Marsh, D. T. (1992). Families and mental retardation: New directions in professional practice. Praeger Publishers. McCoyd, J. L. M., Koller, J. M., & Walter, C. A. (2021). Grief and loss across the lifespan: A biopsychosocial perspective (3rd ed.). Springer Publishing Company. Mchale, S. M. & Gamble, W. C. (1989). Sibling relationships of children with disabled and non‐disabled brothers and sisters. Developmental Psychology, 25, 421‐429. McLeod, J. (2001). Qualitative research in counselling and psychotherapy. SAGE Publications Ltd. Neimeyer, R. A. (2001). The language of loss: Grief therapy as a process of meaning reconstruction. In R. A. Neimeyer (Ed.), Meaning reconstruction and experience of loss (pp.261‐292). American Psychological Association. Neimeyer, R. A., & Sands, D. C. (2011). Meaning reconstruction in bereavement: From principles to practice. In R. A. Neimeyer, D. L. Harris, H. R. Winokuer, &G. F. Thornton (Eds.), Grief and bereavement in contemporary society: Bridging research and practice (pp. 9‐22). Routledge/Taylor & Francis Group. Norton, M. I., & Gino, F. (2014). Rituals alleviate grieving for loved ones, lovers, and lotteries. Journal of experimental psychology. General, 143(1), 266–272. Olshansky, S. (1962). Chronic Sorrow: A Response to Having a Mentally Defective Child. Social Casework, 43(4), 190-193. Oltjenbruns, K. A. (1996). Death of a friend during adolescence: Issues and impacts. In C. A. Corr & D. E. Balk (Eds.), Handbook of adolescent death and bereavement (pp. 196–215). Springer Publishing Company. Orsmond, G. I., & Seltzer, M. M. (2007). Siblings of individuals with autism spectrum disorders across the life course. Mental retardation and developmental disabilities research reviews, 13(4), 313‐320. Parkes C. M., Laungani P., Young B. (2000). Death and bereavement across cultures. New York, NY. Routledge. Parkes, C. M. (1971). Psycho-social transitions: A field for study. Social Science & Medicine, 5(2), 101‐115. Parkes, C. M. (1972). Bereavement: Studies of grief in adult life. Universities Press. Parkes, C. M. (1975). What becomes of redundant world models? A contribution to the study of adaptation to change. British Journal of Medical Psychology, 48(2), 131‐137. Parkes, C. M. (1998). Bereavement. In D. Doyle, G. W. C. Hanks, & N. MacDonald (Eds.), Oxford textbook of palliative medicine (pp. 995-1010). Oxford University Press. Parkes, C. M., Laungani, P., & Young, B. (2015). Death and bereavement across cultures (2nd ed.). Routledge/Taylor & Francis Group. Parkes, C.M. (1996). Bereavement: Stories of grief in adult life. Routledge. Parkes, C.M., & Weiss, R. S. (1983). Recover from bereavement. Basic Books. Pelias, R. J. (2004). A methodology of the heart: Evoking academic and daily life.AltaMira Press. Peretz, D. (1970). Reaction to loss,Loss and grief :Psychological management in medical practice. Columbia University Press. Poulos, C. N. (2021). Essentials of autoethnography. American PsychologicalAssociation. Powell, T. H. & Gallagher, P. A. (1993). Brothers and sisters—A special part of exceptional families (2nd. Ed.) (pp. 35‐81). Paul H. Brookes. Prigerson, H. G., Horowitz, M. J., Jacobs, S. C., Parkes, C. M., Aslan, M., Goodkin, K., et al. (2009). Prolonged grief disorder: Psychometric validation of criteria proposed for DSM-V and ICD-11. PLoS Medicine, 6(8), 1-12. Punazino, A. C., Montagna, L., Mastroianni, C., Giuseppe, C., Piredda, M., & de Marinis, M. G. (2014). Losing a Parent: Analysis of the Literature on the Experiences and Needs of Adolescents Dealing With Grief. Journal of Hospice & Palliative Nursing 16(6), 362-373. Rando, T. A. (1993). Treatment of complicated mourning. Research Press. Reed, M. D. (1998). Predicting grief symptomatology among the suddenly bereaved. Suicide & Life: Threatening Behavior, 28(3), 285-301. Reed-Danahay, D. (1997). Introduction. In D. Reed-Danahay (Eds.). Auto/ Ethnography: Rewriting the self and the social (pp. 1-17). Berg. Richardson, L. (2000). Evaluating Ethnography. Qualitative Inquiry, 6(2), 253-255. Ricoeur, P. (1990). Time and Narrative (Vol. 3) (K. Blamey & D. Pellauer, Trans.). The University of Chicago Press. (Original work published 1988). Rogers, N. (1993). The Creative Connection: Expressive Arts as Healing. Science and Behavior Books. Romanoff, B. D., & Terenzio, M. (1998). Rituals and the grieving process. Death Studies, 22, 697-711. Rubin, S., Malkinson, R., & Wituzm, E. (2011). The two track model of bereavement: The double helix of research and clinical practice. In R. Neimeyer, D. Harris, H. Winokuer, &G. Thornton (Eds.), Grief and bereavement in contemporary society: Bridging research and practice (pp. 47‐56). Routledge. Sanders, C. (1999). Grief: The mourning after: Dealing with adult bereavement (2nd ed.). Wiley. Sarbin, T. R. (1986). The narrative as a root metaphor for psychology. In T. R. Sarbin (Ed.), Narrative psychology: The storied nature of human conduct (pp.3‐21). Praeger. Seligman, M. (1979). Strategies for helping parents of exceptional children: a guide for teachers. The Free Press. Seligman, M., & Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability (3rd ed.). Guilford Press. Shear, M. K., Simon, N., Wall, M., Zisook, S., Neimeyer, R., Duan, N., et al. (2011). Complicated grief and related bereavement issues for DSM-5. Depression and Anxiety, 28, 103-117. Smith, R. J. (1994). China’s cultural heritage: The Qing dynasty, 1644‐1912. Westview Press. Spry, T. (2001). Perfonning autoethnography: An embodied methodological praxis. Qualitative Inquiry, 7(6), 706‐732. Storr, A. (1972). The dynamics of creation. Secker & Warburg. Stroebe, M., Schut, H., & Strobe, W. (2005). Attachment in coping with Bereavement: A theoretical integration. Review of General Psychology, 9(1), 48‐66. Summers, C. R., White, K. R., & Summer, M. (1994). Siblings of children with a disability: A review and analysis of the empirical literature. Journal of Social Behavior & Personality, 9(5), 169‐184. Sundaresan, M., Nalin, R. (2017). Siblings of Children with disabilities: Views from Pilot Study. Journal Of Humanities And Social Science, 3, 20‐23. Thompson, N., & Cox, G.R. (Eds.). (2017). Handbook of the Sociology of Death, Grief, and Bereavement: A Guide to Theory and Practice (1st ed.). Routledge. Thompson, N., & Doka, K. J. (2017). Disenfranchised grief. In N. Thompson & G. R. Cox (Eds.), Handbook of the sociology of death, grief, and bereavement: A guide to theory and proactice (pp. 177-190). Routledge. Tracy, E. M., & Biegel, D. E. (1994). Preparing social workers for social network interventions in mental health practice. Journal of Teaching in Social Work, 10(1), 19-41. Turnbull, A. P., & Turnbull, R. H. (1990). Families, professional, and exceptionality: A special partnership (2nd ed.). Merrill Prentice Hall. Turnbull, A. R., Turnbull, Erwin, E. J., Soodak, L.C. & Shogren, K. A. (2010). Families, professional, and exceptionality: Positive outcomes through partnerships and trust (6th. ed.). Merrill Prentice Hall. Weenolsen, P. (1988). Transcendence of loss over the life span. Hemisphere Publishing Corp. Worden, J. W. (1998). Grief counseling and grief therapy: A handbook for the mental health practitioner (2nd ed.). New York, NY: Springer Publish Company. Worden, J. W. (2002). Grief counseling and grief therapy: A handbook for the mental health practitioner (3rd ed.). New York, NY: Springer Publish Company. Worden, J. W. (2009). Grief counseling and grief therapy: A handbook for the mental health practitioner (4th ed.). New York, NY: Springer Publish Company. Worden, J. W., & Winokuer, H. R. (2011). A task-based approach for counseling the bereaved. In R. A. Neimeyer, D. L. Harris, H. R. Winokuer, & G. F. Thornton (Eds.), Grief and bereavement in contemporary society: Bridging research and practice (pp. 57‐67). Routledge/Taylor & Francis Group. zh_TW
