七〇世代HIV感染者生命歷程初探

Abstract

一九九七年雞尾酒療法問世，讓人類與HIV的對抗展開了新的一頁，雖然感染HIV仍然是無法痊癒的疾病，但是病毒可以被控制到不會發病的程度，這意味著感染HIV已經變成一種慢性病。在這個情況下有愈來愈多的HIV感染者邁入人生的中老年階段，在與疾病共存的過程中發展出對於HIV相關事件的因應方式及意義建構，因此本研究試圖從生命歷程理論的角度去捕捉HIV感染者在與疾病共存過程中的生命經驗，並描繪他們的復元歷程，主要聚焦在七〇世代的男同志HIV感染者。\n\n本研究深度訪談七位七〇世代的男同志HIV感染者，以主題分析法來分析他們的生命經驗。研究結果主要分為三個部分，前兩個是他們所遇到的HIV相關事件以及對於這些事件的因應方式，這兩個部分都分別分為醫療層面及生活層面來討論，醫療層面包含就醫態度與資源、醫療特殊事件、醫療上的行動及服藥策略；生活面則包含知道感染後的感受、交友狀況、伴侶關係、回顧過去經驗、目前重視的事情、政策環境的影響、出H櫃的原則與策略、加入民間協會及對感情觀的影響等主題。第三個部分是他們經歷這些事件之後的復元歷程，浮現的議題包含民間協會在過程中扮演重要的角色、社會汙名的影響、感染者身份認同是過程也是結果、生活圈的轉變及期待回饋社會。最後則針對這些主題來討論並提出研究建議及限制。

Since the highly active antiretroviral therapy (HAART) came into the world, it opened a new life for people living with HIV/AIDS (PLWHA). By taking the medication, the virus can be suppressed to a certain amount that will not lead to AIDS, which means people who got infected by HIV have become a chronic condition. Under this circumstance, more and more PLWHA reach middle or older age, constructing their life meaning and developing coping strategies in terms of coexisting with the virus. The purpose of this thesis is to capture the experience of PLWHA when coexist with HIV, and depict their recovery course, mainly focus on PLWHA born in the 1970s with the self-identity as gay men.\n\nThis research is a qualitative research which 7 in-depth interviews were completed with PLWHA who self-identified as gay men and born in the 1970s. Thematic analysis method was carried out to identify the themes of their life experience. The results are divided into 3 parts, the first part is the HIV-related events the interviewees encountered, including themes such as the attitude toward medication, friendship and the influence of the social context. The second part is the coping strategies they developed and the meaning in terms of HIV-related experience they construct, including themes such as HIV status revealing and the pill-taking strategies. The third part is the recovery course they experienced, including some issues such as the impact of social stigma, and the important role that the community plays. Lastly, this thesis gives some suggestions to the future researchers and the PLWHA.