基因醫療之新權利義務觀：自主權與社會正義之協調--基因醫療之新權利義務觀：生醫資料庫中的個人自主與社會

Abstract

In this paper, the author attempts to analyze the rights and duties in biobank research by first identifying the various interests of different stakeholders in this kind of research. Then he discusses whether the paradigm of individual autonomy and informed consent established in traditional research settings should be reexamined while applied to biobank research. Finally, he remarks on the role of government and the necessity of setting up some mechanisms in this kind of project. Attention is given not only to individuals, personal rights, and substantive justice, but also groups/communities, public interest, and procedural justice.