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題名 智能障礙者雙老家庭照顧負荷、家庭復原力與家庭生活品質之相關性探討
Relationships between care burden, family resilience and family quality of life of the double-ageing families with intellectual disabilities作者 潘季瑤
Pan, Chi Yao貢獻者 宋麗玉
潘季瑤
Pan, Chi Yao關鍵詞 智能障礙者
雙老家庭
照顧負荷
家庭復原力
家庭生活品質
Intellectual disability
Double-ageing family
Care burden
Family resilience
Family quality of life日期 2018 上傳時間 2-Mar-2018 11:56:45 (UTC+8) 摘要 本研究旨在探討智能障礙者雙老家庭之照顧負荷、家庭復原力與家庭生活品質的關係,並檢驗家庭復原力對照顧負荷與家庭生活品質之調節情形。 本研究採取問卷調查法,採便利取樣方式進行資料蒐集工作,研究對象為79戶雙老家庭。資料分析以t考驗、單因子變異數分析、皮爾森積差相關分析與階層迴歸分析進行。研究主要結果如下:一、雙老家庭的照顧負荷程度高,然家庭復原力及家庭生活品質的現況表現也普遍較高;二、照顧負荷與家庭復原力具有顯著負相關;三、照顧負荷與家庭生活品質具有顯著的負相關;四、家庭復原力與家庭生活品質具有顯著的正相關;五、家庭復原力可調節照顧負荷對家庭生活品質之負向效果。 本研究根據問卷調查結果,提出實務與後續研究之建議。
The purpose of this study was to probe into the relations between care burden, family resilience and family quality of life of the double-ageing families that contain old parents and their children with intellectual disability, and to examine the moderating effects of the family resilience of care burden and the family quality of life. A questionnaire survey was used in the study which recruited 79 double-ageing families. The data of questionnaire survey were analyzed by t-test, one-way ANOVA, Pearson product-moment analysis, and hierarchical regression analysis. The results of the study were described as the followings:1.Care burden of caregiver is in high-level;Family resilience and family quality of life levels of double-ageing families are positive, between mid-level and high-level.2.There was significant negative correlation between care burden and family resilience.3.There was significant negative correlation between care burden and family quality of life.4.There was significant positive correlation between family resilience and family quality of life.5.The family resilience moderated the negative effects of the family quality of life caused from care burden. 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國立政治大學
社會工作研究所
102264006資料來源 http://thesis.lib.nccu.edu.tw/record/#G0102264006 資料類型 thesis dc.contributor.advisor 宋麗玉 zh_TW dc.contributor.author (Authors) 潘季瑤 zh_TW dc.contributor.author (Authors) Pan, Chi Yao en_US dc.creator (作者) 潘季瑤 zh_TW dc.creator (作者) Pan, Chi Yao en_US dc.date (日期) 2018 en_US dc.date.accessioned 2-Mar-2018 11:56:45 (UTC+8) - dc.date.available 2-Mar-2018 11:56:45 (UTC+8) - dc.date.issued (上傳時間) 2-Mar-2018 11:56:45 (UTC+8) - dc.identifier (Other Identifiers) G0102264006 en_US dc.identifier.uri (URI) http://nccur.lib.nccu.edu.tw/handle/140.119/116118 - dc.description (描述) 碩士 zh_TW dc.description (描述) 國立政治大學 zh_TW dc.description (描述) 社會工作研究所 zh_TW dc.description (描述) 102264006 zh_TW dc.description.abstract (摘要) 本研究旨在探討智能障礙者雙老家庭之照顧負荷、家庭復原力與家庭生活品質的關係,並檢驗家庭復原力對照顧負荷與家庭生活品質之調節情形。 本研究採取問卷調查法,採便利取樣方式進行資料蒐集工作,研究對象為79戶雙老家庭。資料分析以t考驗、單因子變異數分析、皮爾森積差相關分析與階層迴歸分析進行。研究主要結果如下:一、雙老家庭的照顧負荷程度高,然家庭復原力及家庭生活品質的現況表現也普遍較高;二、照顧負荷與家庭復原力具有顯著負相關;三、照顧負荷與家庭生活品質具有顯著的負相關;四、家庭復原力與家庭生活品質具有顯著的正相關;五、家庭復原力可調節照顧負荷對家庭生活品質之負向效果。 本研究根據問卷調查結果,提出實務與後續研究之建議。 zh_TW dc.description.abstract (摘要) The purpose of this study was to probe into the relations between care burden, family resilience and family quality of life of the double-ageing families that contain old parents and their children with intellectual disability, and to examine the moderating effects of the family resilience of care burden and the family quality of life. A questionnaire survey was used in the study which recruited 79 double-ageing families. The data of questionnaire survey were analyzed by t-test, one-way ANOVA, Pearson product-moment analysis, and hierarchical regression analysis. The results of the study were described as the followings:1.Care burden of caregiver is in high-level;Family resilience and family quality of life levels of double-ageing families are positive, between mid-level and high-level.2.There was significant negative correlation between care burden and family resilience.3.There was significant negative correlation between care burden and family quality of life.4.There was significant positive correlation between family resilience and family quality of life.5.The family resilience moderated the negative effects of the family quality of life caused from care burden. Based on the results from the questionnaire survey, some suggestions for practice and future studies were proposed. en_US dc.description.tableofcontents 第一章 緒論………………………………………………………………1 第一節 研究背景與動機 ………………………………………………2 第二節 研究目的 ………………………………………………5 第三節 研究問題 ………………………………………………5 第四節 名詞定義 ………………………………………………6 第二章 文獻探討…………………………………………………………8 第一節 智能障礙者雙老家庭 ……………………………………8 第二節 照顧負荷與相關研究 ……………………………………17 第三節 家庭復原力與相關研究 ……………………………………26 第四節 家庭生活品質與相關研究 ……………………………………42 第三章 研究方法…………………………………………………………55 第一節 研究架構與研究假設 ……………………………………55 第二節 研究對象與研究工具 ……………………………………57 第三節 資料蒐集過程 ………………………………………………63 第四節 資料分析 ………………………………………………66 第五節 研究倫理 ………………………………………………67 第四章 研究結果 ………………………………………………68 第一節 研究對象基本資料與研究量表之分布 ………………68 第二節 中高齡智障者及照顧者基本資料、照顧者負荷、家庭復原力歷程與家庭生活品質之關聯情形 ………………………………………79 第三節 家庭復原力歷程對於照顧者負荷影響家庭生活品質之調節效果 …105 第五章 結論與建議………………………………………………………108 第一節 研究結論 ………………………………………………108 第二節 研究限制 ………………………………………………110 第三節 建議 …………………………………………………………112 參考文獻……………………………………………………………………118 中文部分 …………………………………………………………118 英文部分 …………………………………………………………121 附錄…………………………………………………………………………125 zh_TW dc.format.extent 2089163 bytes - dc.format.mimetype application/pdf - dc.source.uri (資料來源) http://thesis.lib.nccu.edu.tw/record/#G0102264006 en_US dc.subject (關鍵詞) 智能障礙者 zh_TW dc.subject (關鍵詞) 雙老家庭 zh_TW dc.subject (關鍵詞) 照顧負荷 zh_TW dc.subject (關鍵詞) 家庭復原力 zh_TW dc.subject (關鍵詞) 家庭生活品質 zh_TW dc.subject (關鍵詞) Intellectual disability en_US dc.subject (關鍵詞) Double-ageing family en_US dc.subject (關鍵詞) Care burden en_US dc.subject (關鍵詞) Family resilience en_US dc.subject (關鍵詞) Family quality of life en_US dc.title (題名) 智能障礙者雙老家庭照顧負荷、家庭復原力與家庭生活品質之相關性探討 zh_TW dc.title (題名) Relationships between care burden, family resilience and family quality of life of the double-ageing families with intellectual disabilities en_US dc.type (資料類型) thesis en_US dc.relation.reference (參考文獻) 一、 中文部分王國羽譯(2000)。老年與智能障礙者延長壽命與促進健康摘要報告:國際智能障礙科學研究學會。國際促進智障者融入社會協會。王國羽(2003)。中老年身心障礙者安置轉銜機制規劃之研究:以心智障礙者為例。台北: 內政部社會司委託研究報告。王國羽、張簡儷詩(2006 )。居家中老年智障者健康照護資源利用與相關問題:兩個時間點的觀察。發表於台灣社會福利學會主編。台灣社會福利學會年會暨國際學術研討會手冊。嘉義:台灣社會福利學會。王國羽(2007)。居家中老年智障者的照顧問題:性別、居住安排與相關論述。身心障礙研究,5 (1) ,1-29。王文娟(2011)。智能障礙者雙老家庭壓力負荷之初探。身心障礙研究,9。王月伶、王文玲(2004)。家庭復原力模式之臨床應用-協助一位呼吸器依賴病患家庭調適之護理經驗。長庚護理,15(1),90-98。王瀞儀(2015)。智能障礙之中高齡主要照顧者的未來安老規劃。國立成功大學老年學研究所碩士論文,未出版,台南市。古思潔(2016)。家庭復原力與父母身心健康狀況之相關研究:以發展遲緩兒童家庭為例。私立長榮大學社會工作學系碩士論文,未出版,台南市。江麗美、李淑珺、陳厚愷譯(2008)。家族再生:逆境中的家庭韌力與療癒(原作者: Forma Walsh)。臺北:心靈工坊。呂錦綸(2009)。雙重老化智障者家庭照顧負擔與社會支持之研究。私立東吳大學社會工作學系碩士論文,未出版,臺北市。宋麗玉(2002)。精神病患照顧者負荷量表之發展與驗證—以實務應用為取向。社會政策與社會工作學刊,6(1),61-100。宋麗玉、施教裕(2009)。優勢觀點—社會工作理論與實務。臺北:洪葉文化。宋雅雯、金繼春(2012)。以家庭調整與適應反應模式照顧一個有疾病危機之核心家庭。嘉基護理,12(1),15-23。 吳麗英(2007)。成年智能障礙者家庭生活品質現況之研究。國立嘉義大學家庭研究所碩士論文,未出版,嘉義市。吳慧英(1995)。殘障子女的父母親壓力與其因應策略。特教園丁,10(4),28-31。李汶軒(2013)。家庭照顧者親職化經驗、照顧負荷與健康狀態之關係。淡江大學教育心理與諮商研究所碩士論文,未出版,新北市。 李雅敏﹙2005﹚。身心障礙者家庭之復原力。台東特教,21,8-15。汪麗真(1993)。自閉症兒童母親教養壓力、親職角色適應與教養服務需求之研究。中國文化大學兒童福利研究所碩士論文,未出版,臺北市。利翠珊、蕭英玲(2008)。家庭壓力與韌性。應用心理研究,38,15-16。周耕妃(2014)。抉擇之愛~雙重老化智能障礙者家庭父母之愛與痛。東海大學社會工作系碩士論文,未出版,台中。周月清(2007)。老年婦女照顧負擔與社會支持之研究─以智障者和精神障礙者老年女性照顧者為例。內政部委託報告。林昭吟、林季平(2004)。身心障礙者提前老化現象與健康照護需求之研究。內政部委託研究計畫(編號093-000000AU631-001)。林昀蓉(2001)。接受居家照護老人主要照顧者之照顧負荷、生活品質及其相關因素探討。臺北護理學院碩士論文,未出版,臺北市。林惠琦(1997)。社區精神分裂病患主要照顧者之負荷、社會支持與心理健康。高雄醫學院護理研究所碩士論文,未出版,高雄市。 邱皓政(2010)。量化研究與統計分析:SPSS(PASW)資料分析範例解析(五版)。臺北:五南。姚開屏(2002)。台灣版世界衛生組織生活品質問卷之發展與應用。臺灣醫學,6(2),193-200。唐紀絜(2005)。台灣地區發展遲緩兒童家庭生活品質之研究。國立彰化師範大學特殊教育系博士論文,未出版,彰化縣。唐紀絜、林宏熾、林金定、陳英進、羅淑珍、簡言軒(2005):特殊幼兒家庭生活品質測量工具之發展-臺灣經驗。身心障礙研究季刊,3(1), 33-53。馬先芝(2003),照顧者負荷之概念分析。護理雜誌,50(2),82-85。孫淑柔(2009)。成年智障者的支持與主要照顧者的負擔及滿意度之研究。2009 年台灣教育學術研討會:社會變遷中的教育發展,新竹:國立新竹教育大學。高寶蓮(1998)。裘馨型肌肉失養症患孩父母親的社會支持、照顧負荷與生活品質的相關探討。高雄醫學院護理研究所碩士論文,未出版,高雄市。許素彬(2007)。特殊幼兒之家庭生活品質分析。東吳社會工作學報,17, 137-169。陳伶珠(2008)。中高齡長期障礙者老化經驗與老年生活期待之研究。國立暨南國際大學社會政策與社會工作學系博士論文,未出版,南投縣。陳伶珠(2011)。雙重老化智能障礙者家庭照顧經驗初探。台灣高齡服務管理學刊,1(1),138-165。陳美花(2006)。身心障礙福利機構管理者對智障老人照顧需求認知之研究。私立實踐大學家庭研究與兒童發展研究所碩士論文,未出版,臺北市。陳政智、陳玠汝(2015)。我們必須面對的議題:智能障礙者及照顧者雙重老化衍生的需求。社區發展季刊,149,311-326。陳奕齡(2001)。初探智障者老化之相關健康與照顧議題。國立中正大學社會福利系碩士論文,未出版,嘉義縣。陳淑瑜(2003)。父母或主要照顧者參與智障子女未來規劃之調查研究。特殊教育研究學刊,25,85-106。陳怡婷、簡吟芳(2008)。家族治療的曙光-家庭韌力初探。諮商與輔導,274,2-6。陳綺雯、林秋菊(2008)。運用家庭調整與適應反應模式於一位愛滋病患家庭之照顧。護理雜誌,55(2),104-109。郭孟亭、林藍萍、林金定(2014)。智能障礙者雙老家庭之照顧者憂鬱情形及相關因素探討。身心障礙研究,12(4),207-220。陶歡歡(2009)。復原力研究的回顧。襄樊職業技術學院學報,8(5):80-84。張恒豪、顏詩耕(2011)。從慈善邁向權利: 臺灣身心障礙福利的發展與挑戰。社區發展季刊,113,402-416。張恆豪、王靜儀(2016)。從「殘障」到「身心障礙」:障礙標籤與論述的新聞內容分析。台灣社會學,31,1-41。張艾寧(2007)。影響社區成年智障者及其家庭使用福利服務之相關因素探討-以新竹市為例。東吳大學社會工作學系碩士論文,未出版,臺北市。張庭瑋(2008)。「甜蜜的負荷」?家庭對於中高齡智障家人的照顧轉銜。台灣大學社會科學院社會工作研究所碩士論文,未出版,臺北市。張秀玉(2003)。從社會工作力量觀點探討身心障礙兒童對家庭的影響。社區發展季刊,102,293-301。馮士軒(2014)。自閉症學生家長親職壓力、壓力因應與家庭生活品質關係之研究。國立彰化師範大學特殊教育系博士論文,未出版,彰化縣。楊蔭芝(2005)。成年智障者家庭壓力因應之研究。國立高雄師範大學碩士論文,未出版,高雄市。趙善如(2006)。家庭資源對單親家庭生活品質影響之探究:以高雄市為例。台大社會學刊,13,109-172。劉淑芬(2008)。視力受損者家庭韌力之研究。國立屏東教育大學碩士論文,未出版,屏東縣。鄭雅莉(譯)(2007)。智能障礙—定義、分類和支持系統(原作者American Association on Mental Retardation, AAMR)。台北:合記圖書出版社。(原著出版年:2002)。 鄭麗珍(2008)。高風險家庭的家庭韌力: 敗部復活。應用心理研究,39,8-12。鄭維瑄等譯(2004)。家庭壓力。Patrick C. 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