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題名 青少年時期發病之躁鬱症患者的主觀經驗回溯
People with adolescence-onset bipolar disorder: Personal stories in retrospect作者 邱思語
Chiu, Ssu Yu貢獻者 楊佩榮
Yang, Pei Jung
邱思語
Chiu, Ssu Yu關鍵詞 躁鬱症青少年
主觀經驗
汙名
詮釋現象學
Adolescents with bipolar disorder
Personal stories
Stigma
Hermeneutic phenomenology日期 2018 上傳時間 1-Jun-2018 15:53:27 (UTC+8) 摘要 現今的社會對於躁鬱症認識有限,躁鬱症患者的經驗仍然不被重視,甚至遭受到負面的偏見與責難。青少年時期正處於生理心理社會蓬勃發展的階段,若是遭逢躁鬱症初次發病,很可能會影響到青少年時期各面向的發展進程。 本研究運用詮釋現象學研究方法,深度訪談三位從青少年時期發病並且已進入成人早期的躁鬱症患者,透過他們主觀地回溯過往的經驗,看見他們在青春期發病以來在日常生活、人際互動上的經驗,並且探究在青春期遭遇躁鬱症發病,將會對他們的發展帶來什麼樣的衝擊和影響,他們在適應的過程中又是如何看待這段生病的經歷。最後,從受訪者的角度出發,給予實際的建議幫助他人可以適切地與正經歷躁鬱症的青少年相處。 研究發現,三位受訪者在青少年階段發病都經歷到生理心理社會層面的衝擊與轉變,尤其面臨到兩大方面的困擾,第一方面的困擾是疾病本身的生理症狀、藥物副作用帶來的失能狀態,影響到他們日常生活的運作和人際關係的品質。第二方面的困擾來自於大環境的價值觀和結構,包括社會普遍對於躁鬱症經驗缺乏認知而帶來的社會汙名,以及社會制度的缺失帶來的結構性汙名,進而使得他們內化這些汙名而形成自我汙名的感受。然而,三位受訪者在與躁鬱症和環境抗衡的過程中,都透過思索生病意義和重新塑造自己,找到與躁鬱症的共存之道。
In today’s society, there is limited understanding of bipolar disorder (BD). The life experience of BD patients is not yet being fully heard and understood. Furthermore, some even face accusation and negative bias in their surroundings. Adolescence is a period in life when young people flourish socially, physiologically and psychologically. Adolescence-onset BD might affect the progress of their development in various aspects. This thesis used the method of hermeneutic phenomenology. In-depth interviews were conducted with three young adults with adolescence-onset BD. The interviewees described their personal experience with BD during their adolescent years. The significance of such retrospection is as follows: 1) understanding of their daily and social experience since the onset of BD in adolescence; 2) understanding of the effects of adolescence-onset BD on their development; 3) understanding of their views being a patient and the way they adapted to BD; and 4) from their standpoints, proposing recommendations for practice on ways to appropriately interact with adolescents experiencing BD. This investigation discovered that the three interviewees, since the onset of BD in their adolescence, had encountered changes and challenges in social, physiological and psychological aspects. There were two types of difficulties in particular. First, physiological symptoms of BD and side-effects of medication disempowered them, and adversely affected their daily functioning and quality of social life. Second, the difficulty they experienced traced back to the values and institutions of society as a whole. For instance, social and structural stigma, originating from a lack of understanding of BD and deficiencies in the social institutions, led to internalization of social stigma. While wrestling with BD and the social world, the three interviewees had managed to reflect on the meaning of being ill, reframed their perspective of lives and found ways to live with BD.參考文獻 壹、中文部分丁凡譯(2006)。躁鬱症完全手冊(原作者:E.F. Torrey & M.B. Knable)。臺北:心靈工坊。(原著出版年:2002)丁凡譯(2010)。是躁鬱,不是叛逆:青少年躁鬱症完全手冊(原作者:D.J. Miklowitz & E.L. George)。臺北:心靈工坊。(原著出版年:2008)人權公約施行監督聯盟(2017月8月20日)。什麼是障礙?誰是障礙者?上篇。人權公約施行監督聯盟【CRPD星期天】專欄。2018年2月15日,取自:http://covenantswatch.org.tw /crpd/crpd-sunday/王仕圖、吳慧敏(2003)。深度訪談與案例演練。載於齊力、林本炫(主編),質性研究方法與資料分析(頁95-113)。嘉義:南華大學社會教育學研究所。王育瑜、謝儒賢(2015)。需求評估的假象,社會控制的事實:身心障礙鑑定評估新制的批判。社區發展季刊,150,頁123-133。王國羽(2015年1月23日)。臺灣障礙者的需求是什麼?從ICF談起。巷口仔社會學。2018年2月15日,取自:www.lea-test.fi/en/assessme/imp_vis/images/ big/2.jpg包凡一、王湲譯(1992)。人類本性與社會秩序(原作者:C. H. 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國立政治大學
社會工作研究所
101264014資料來源 http://thesis.lib.nccu.edu.tw/record/#G1012640141 資料類型 thesis dc.contributor.advisor 楊佩榮 zh_TW dc.contributor.advisor Yang, Pei Jung en_US dc.contributor.author (Authors) 邱思語 zh_TW dc.contributor.author (Authors) Chiu, Ssu Yu en_US dc.creator (作者) 邱思語 zh_TW dc.creator (作者) Chiu, Ssu Yu en_US dc.date (日期) 2018 en_US dc.date.accessioned 1-Jun-2018 15:53:27 (UTC+8) - dc.date.available 1-Jun-2018 15:53:27 (UTC+8) - dc.date.issued (上傳時間) 1-Jun-2018 15:53:27 (UTC+8) - dc.identifier (Other Identifiers) G1012640141 en_US dc.identifier.uri (URI) http://nccur.lib.nccu.edu.tw/handle/140.119/117435 - dc.description (描述) 碩士 zh_TW dc.description (描述) 國立政治大學 zh_TW dc.description (描述) 社會工作研究所 zh_TW dc.description (描述) 101264014 zh_TW dc.description.abstract (摘要) 現今的社會對於躁鬱症認識有限,躁鬱症患者的經驗仍然不被重視,甚至遭受到負面的偏見與責難。青少年時期正處於生理心理社會蓬勃發展的階段,若是遭逢躁鬱症初次發病,很可能會影響到青少年時期各面向的發展進程。 本研究運用詮釋現象學研究方法,深度訪談三位從青少年時期發病並且已進入成人早期的躁鬱症患者,透過他們主觀地回溯過往的經驗,看見他們在青春期發病以來在日常生活、人際互動上的經驗,並且探究在青春期遭遇躁鬱症發病,將會對他們的發展帶來什麼樣的衝擊和影響,他們在適應的過程中又是如何看待這段生病的經歷。最後,從受訪者的角度出發,給予實際的建議幫助他人可以適切地與正經歷躁鬱症的青少年相處。 研究發現,三位受訪者在青少年階段發病都經歷到生理心理社會層面的衝擊與轉變,尤其面臨到兩大方面的困擾,第一方面的困擾是疾病本身的生理症狀、藥物副作用帶來的失能狀態,影響到他們日常生活的運作和人際關係的品質。第二方面的困擾來自於大環境的價值觀和結構,包括社會普遍對於躁鬱症經驗缺乏認知而帶來的社會汙名,以及社會制度的缺失帶來的結構性汙名,進而使得他們內化這些汙名而形成自我汙名的感受。然而,三位受訪者在與躁鬱症和環境抗衡的過程中,都透過思索生病意義和重新塑造自己,找到與躁鬱症的共存之道。 zh_TW dc.description.abstract (摘要) In today’s society, there is limited understanding of bipolar disorder (BD). The life experience of BD patients is not yet being fully heard and understood. Furthermore, some even face accusation and negative bias in their surroundings. Adolescence is a period in life when young people flourish socially, physiologically and psychologically. Adolescence-onset BD might affect the progress of their development in various aspects. This thesis used the method of hermeneutic phenomenology. In-depth interviews were conducted with three young adults with adolescence-onset BD. The interviewees described their personal experience with BD during their adolescent years. The significance of such retrospection is as follows: 1) understanding of their daily and social experience since the onset of BD in adolescence; 2) understanding of the effects of adolescence-onset BD on their development; 3) understanding of their views being a patient and the way they adapted to BD; and 4) from their standpoints, proposing recommendations for practice on ways to appropriately interact with adolescents experiencing BD. This investigation discovered that the three interviewees, since the onset of BD in their adolescence, had encountered changes and challenges in social, physiological and psychological aspects. There were two types of difficulties in particular. First, physiological symptoms of BD and side-effects of medication disempowered them, and adversely affected their daily functioning and quality of social life. Second, the difficulty they experienced traced back to the values and institutions of society as a whole. For instance, social and structural stigma, originating from a lack of understanding of BD and deficiencies in the social institutions, led to internalization of social stigma. While wrestling with BD and the social world, the three interviewees had managed to reflect on the meaning of being ill, reframed their perspective of lives and found ways to live with BD. en_US dc.description.tableofcontents 第一章 緒論第一節 研究緣起與問題意識 3第二節 研究目的與研究問題 7第二章 文獻探討第一節 躁鬱症與青少年 8第二節 躁鬱症青少年的心理社會發展脈絡 26第三節 精神疾病與汙名 38第三章 研究設計第一節 研究典範與研究方法 49第二節 研究對象邀請與研究工具 56第三節 研究分析方法、分析架構與嚴謹度 69第四節 研究倫理 74第四章 生命(病)的滋味─三位躁鬱症受訪者的故事第一節 在苦難中遇見上帝的小愷 76第二節 體會更寬廣生命的小雪 97第三節 重新拿回人生主導權的小咚咚 119第五章 研究分析與討論第一節 生活形體 140第二節 生活關係 150第三節 生活空間 164第四節 生活時間 178第五節 與躁鬱症青少年同行 193第六章 結論與建議第一節 結論 197第二節 研究省思與建議 202第三節 研究限制與建議 208參考文獻 210附件一 研究同意書 219附件二 訪談大綱 220表1 受訪者基本資料與訪談資料表 59表2 病程資料表 60表3 服藥經歷表 61表4 就學歷程表 62 zh_TW dc.format.extent 2793760 bytes - dc.format.mimetype application/pdf - dc.source.uri (資料來源) http://thesis.lib.nccu.edu.tw/record/#G1012640141 en_US dc.subject (關鍵詞) 躁鬱症青少年 zh_TW dc.subject (關鍵詞) 主觀經驗 zh_TW dc.subject (關鍵詞) 汙名 zh_TW dc.subject (關鍵詞) 詮釋現象學 zh_TW dc.subject (關鍵詞) Adolescents with bipolar disorder en_US dc.subject (關鍵詞) Personal stories en_US dc.subject (關鍵詞) Stigma en_US dc.subject (關鍵詞) Hermeneutic phenomenology en_US dc.title (題名) 青少年時期發病之躁鬱症患者的主觀經驗回溯 zh_TW dc.title (題名) People with adolescence-onset bipolar disorder: Personal stories in retrospect en_US dc.type (資料類型) thesis en_US dc.relation.reference (參考文獻) 壹、中文部分丁凡譯(2006)。躁鬱症完全手冊(原作者:E.F. 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