Publications-Theses
Article View/Open
Publication Export
-
題名 以生態系統觀點探討區塊鏈技術應用於健康資料治理
Analyzing Application of Blockchain in Health Data Governance from Ecosystem Perspective作者 林姿妤
Lin, Tzu-Yu貢獻者 李沛錞
Lee, Pei-Chun
林姿妤
Lin, Tzu-Yu關鍵詞 電子健康記錄
健康資料交換
資料治理
生態系統觀點
區塊鏈技術
Electronic health record
Health information exchange
Data governance
Ecosystem perspective
Blockchain technology日期 2022 上傳時間 1-Aug-2022 17:43:59 (UTC+8) 摘要 遵循有效的資料治理架構為機構間協調進行健康資料交換奠定基礎，而區塊鏈技術可解決健康資料互操作性、隱私與安全問題，成為健康資料交換發展的推手，然而，科技典範轉移往往為產業生態帶來變動，有鑑於此，本研究旨在以生態系統觀點、援引資料生態系統理論，並分別由組織治理角度與技術角度，進行以下探討：（1）探討區塊鏈技術應用於健康資料治理之效益、困境與挑戰；（2）探討區塊鏈技術應用於健康資料治理實際產生之影響，並輔以個案分析、專家訪談法，獲得區塊鏈技術應用於健康資料治理，對於不同組織帶來的效益、挑戰與影響之全面性理解，以掌握可能產生之變動並及早擬定策略。研究結果顯示，儘管不同層級組織機構所組成的醫療區塊鏈生態系統，各有其發展焦點與目標，但透過不同性質參與者的共同努力，可幫助生態系統擴展並創造異質化價值。其次，不同層級組織機構將區塊鏈技術應用於健康資料治理，實際上獲得了不一樣的效益，換言之，也將面臨不同的困境與挑戰，因此，建立不同機構間的共識，才能充分發揮區塊鏈價值。再者，在不改變現有機制的原則之下，區塊鏈技術的導入，將能幫助醫療產業於組織治理方面與醫療科技方面的突破，因此對於區塊鏈技術之採用應建立於現有技術之上，並同時考慮患者、醫療服務提供者、醫療科技公司、研究機構與政府等不同屬性機構對於健康資料與醫療服務需求，以有效帶動醫療區塊鏈生態統的擴展。
Following an effective data governance framework lays the foundation for health information exchange among organizations, and blockchain technology can address health information interoperability, privacy, and security issues, and become a driving force for the development of health information exchange. This study aims to:(1) Explore the benefits, dilemmas and challenges of applying blockchain technology to health data governance; (2) Explore the actual impacts of applying blockchain technology to health data governance. So as to obtain a comprehensive understanding of the benefits, challenges and impacts of applying blockchain technology to health data governance from the perspective of organizational governance and the perspective of technology, using case studies and interviews to figure out the benefits, challenges, and impacts of blockchain technology in health data governance for different organizations, so that we can grasp the possible changes and formulate strategies early.The results of the study show that although different levels of medical blockchain ecosystems with their own development focus and goals, the joint efforts of participants of different nature can help the ecosystem to expand and create heterogeneous values. Secondly, different levels of organizations apply blockchain technology to health data governance, which actually obtains different benefits, in other words, they will face different dilemmas and challenges. Furthermore, the introduction of blockchain technology can help the medical industry to make breakthroughs in governance and medical technology, and drive the expansion of medical blockchain ecosystem.參考文獻 中文文獻王宏仁. (2018). 北醫轉診病歷區塊鏈應用上線，小診所也能即時查詢病患全病歷. iThome.林建佑. (2021). 智慧醫療+區塊鏈創新應用趨勢. 雙週刊. https://www.trademag.org.tw/page/newsid1/?id=7840123&iz=6施鑫澤;林裕洋. (2018). 北醫翻轉智慧醫療概念. CIO Taiwan. https://sites.google.com/a/cio.com.tw/cio-interview/home/tmuh-chen-rui-jie科技產業資訊室. (2020). WHO與愛沙尼亞合作開發區塊鏈技術疫苗證書. 財團法人國家實驗研究院科技政策研究與資訊中心. https://iknow.stpi.narl.org.tw/Post/Read.aspx?PostID=17123陳芳毓. (2020). 智慧醫療&台北醫學大學附設醫院院長陳瑞杰. 未來城市. https://futurecity.cw.com.tw/article/1712富邦人壽. (2021). 富邦人壽攜手北醫串接就診資料傳輸 醫療險理賠E鍵免紙本單據 https://www.fubon.com/life/about-us/announcement/news/fu-bang-ren-shou-xie-shou-bei-yi-chuan-jie-jiu-zhen-zi-liao-chuan-shu--yi-liao-xian-li-peiE-jian-mian-zhi-ben-chan-ju詹智安. (2021). 建立區塊鏈可行的商業模式 https://www.hbrtaiwan.com/mentor/20806/build-blockchain-business臺北醫學大學附設醫院. (2018). 北醫附醫分級醫療暨區塊鏈啟動. 臺北醫學大學附設醫院官方網站. https://www.tmuh.org.tw/single/3776臺北醫學大學附設醫院. (2019). 智慧醫療提升醫療品質－北醫附醫特色參展 展示智慧健康照護生活圈成果. 附醫新聞. http://203.71.86.70/handle/987654321/57791臺北醫學大學附設醫院. (2021). 2021台灣醫療科技展 臺北醫學大學附設醫院展覽介紹. 臺北醫學大學附設醫院. https://www.tmuh.org.tw/news/info/6408臺北醫學大學附設醫院資訊室. (2020). iTPASS APP全面升級 就醫記錄完整掌握 打造個人健康管家. 臺北醫學大學附設醫院健康報, 一月刊.蔡志宏, & 林劍秋. (2018). AI+5G：數位成長催化劑. 國土及公共治理季刊, 8(4), 20-29.衛生福利部. (2019). 近日22家醫療院所遭勒索病毒攻擊事件處理說明. https://www.mohw.gov.tw/fp-4343-49147-1.html盧沛樺. (2017). 從醫院到養豬場，你不知道的人都在玩區塊鏈. 天下雜誌. https://www.cw.com.tw/article/5121332外文文獻Abraham, R., Schneider, J., & Brocke, J. v. (2019). Data governance: A conceptual framework, structured review, and research agenda. International Journal of Information Management, 49, 424-438.Abu-elezz, I., Hassan, A., Nazeemudeen, A., Househ, M., & Abd-alrazaq, A. (2020). The benefits and threats of blockchain technology in healthcare: A scoping review. International Journal of Medical Informatics, 142, 104246. https://doi.org/https://doi.org/10.1016/j.ijmedinf.2020.104246Ahmed, S. R., Amer, M. M., & Killawi, A. (2017). The ecosystems perspective in social work: Implications for culturally competent practice with American Muslims. Journal of Religion & Spirituality in Social Work: Social Thought, 36(1-2), 48-72. https://doi.org/10.1080/15426432.2017.1311245Ahram, T., Sargolzaei, A., Sargolzaei, S., Daniels, J., & Amaba, B. (2017, 8-10 June 2017). Blockchain technology innovations. 2017 IEEE Technology & Engineering Management Conference (TEMSCON),Akhlaq, A., Sheikh, A., & Pagliari, C. (2016). Defining health information exchange: scoping review of published definitions. BMJ Health & Care Informatics, 23(4), 684. https://doi.org/10.14236/jhi.v23i4.838Ali, S. R., Bryce, J., Tan, L. E., Hiort, O., Pereira, A. M., van den Akker, E. L. T., Appelman-Dijkstra, N. M., Bertherat, J., Cools, M., Dekkers, O. M., Kodra, Y., Persani, L., Smyth, A., Smythe, C., Taruscio, D., & Ahmed, S. F. (2020). The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes. International journal of environmental research and public health, 17(23), 8743. https://doi.org/10.3390/ijerph17238743Angraal, S., Krumholz, H. M., & Schulz, W. L. (2017). Blockchain Technology. Circulation: Cardiovascular Quality and Outcomes, 10(9), e003800. https://doi.org/10.1161/CIRCOUTCOMES.117.003800Arellano, A. M., Dai, W., Wang, S., Jiang, X., & Ohno-Machado, L. (2018). Privacy Policy and Technology in Biomedical Data Science. Annual review of biomedical data science, 1, 115-129. https://doi.org/10.1146/annurev-biodatasci-080917-013416Attaran, M. (2022). Blockchain technology in healthcare: Challenges and opportunities. International Journal of Healthcare Management, 15(1), 70-83. https://doi.org/10.1080/20479700.2020.1843887Attaran, M., & Gunasekaran, A. (2019). Blockchain-enabled technology: the emerging technology set to reshape and decentralise many industries. International Journal of Applied Decision Sciences, 12(4), 424-444. https://doi.org/10.1504/IJADS.2019.102642Attard, J., Orlandi, F., & Auer, S. (2016, 13-16 Oct. 2016). Data Value Networks: Enabling a New Data Ecosystem. 2016 IEEE/WIC/ACM International Conference on Web Intelligence (WI),Attard, J., Orlandi, F., & Auer, S. (2016). Data value networks: Enabling a new data ecosystem. Web Intelligence (WI), 2016 IEEE/WIC/ACM International Conference on,Ballard, C., Compert, C., Jesionowski, T., Milman, I., Plants, B., Rosen, B., & Smith, H. (2014). Information Governance Principles and Practices for a Big Data Landscape. IBM.Bloomrosen, M., Berner, E. S., & Section Editors for the, I. Y. S. o. H. I. M. (2018). Findings from 2017 on Health Information Management. Yearbook of medical informatics, 27(1), 67-73. https://doi.org/10.1055/s-0038-1667072Booth, G. S., & Gehrie, E. A. (2021). Non-fungible tokens: Stem cell transplantation in the blockchain. Transfusion and Apheresis Science, 60(5), 103196. https://doi.org/https://doi.org/10.1016/j.transci.2021.103196Borgman, H., Heier, H., Bahli, B., & Boekamp, T. (2016, 5-8 Jan. 2016). Dotting the I and Crossing (out) the T in IT Governance: New Challenges for Information Governance. 2016 49th Hawaii International Conference on System Sciences (HICSS),Bourne, P. E., Lorsch, J. R., & Green, E. D. (2015). Perspective: Sustaining the big-data ecosystem. Nature, 527(7576), S16-S17.Bruhn, J. G., & Rebach, H. M. (2014). The Contemporary Challenges of Caregiving. In J. G. Bruhn & H. M. Rebach (Eds.), The Sociology of Caregiving (pp. 1-14). Springer Netherlands. https://doi.org/10.1007/978-94-017-8857-1_1Case, D. O. (2007). Looking for Information：A Survey of Research on Information Seeking, Needs, and Behavior. Academic Press.Chang, S. E., & Chen, Y. (2020). Blockchain in Health Care Innovation: Literature Review and Case Study From a Business Ecosystem Perspective. J Med Internet Res, 22(8), e19480. https://doi.org/10.2196/19480Chen, H., & Huang, X. (2018). Will Blockchain Technology Transform Healthcare and Biomedical Sciences? EC pharmacology and toxicology, 6(11), 910-911. https://pubmed.ncbi.nlm.nih.gov/31460519https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6711478/Chen, H. S., Jarrell, J. T., Carpenter, K. A., Cohen, D. S., & Huang, X. (2019). Blockchain in Healthcare: A Patient-Centered Model. Biomedical journal of scientific & technical research, 20(3), 15017-15022. https://pubmed.ncbi.nlm.nih.gov/31565696https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6764776/Cheong, L. K., & Chang, V. (2007). The Need for Data Governance: A Case Stud ACIS 2007 Proceedings, http://aisel.aisnet.org/acis2007/100?utm_source=aisel.aisnet.org%2Facis2007%2F100&utm_medium=PDF&utm_campaign=PDFCoverPagesClim, A., Zota, R. D., & Tinica, G. (2019). Big Data in home healthcare: A new frontier in personalized medicine. Medical emergency services and prediction of hypertension risks. International Journal of Healthcare Management, 12(3), 241-249. https://doi.org/10.1080/20479700.2018.1548158Collins, S. A., Gesner, E., Morgan, S., Mar, P., Maviglia, S., Colburn, D., Tierney, D., & Rocha, R. (2015). A Practical Approach to Governance and Optimization of Structured Data Elements. Stud Health Technol Inform, 216, 7-11.Czachorowski, K., Solesvik, M., & Kondratenko, Y. (2019). The Application of Blockchain Technology in the Maritime Industry. In V. Kharchenko, Y. Kondratenko, & J. Kacprzyk (Eds.), Green IT Engineering: Social, Business and Industrial Applications (pp. 561-577). Springer International Publishing. https://doi.org/10.1007/978-3-030-00253-4_24de Freitas, C., Amorim, M., Machado, H., Leão Teles, E., Baptista, M. J., Renedo, A., Provoost, V., & Silva, S. (2021). Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research. BMJ open, 11(3), e044289-e044289. https://doi.org/10.1136/bmjopen-2020-044289de Haes, S., & van Grembergen, W. (2009). An Exploratory Study into IT Governance Implementations and its Impact on Business/IT Alignment [Article]. Information Systems Management, 26(2), 123-137. https://doi.org/10.1080/10580530902794786De Pietro, C., & Francetic, I. (2018). E-health in Switzerland: The laborious adoption of the federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy, 122(2), 69-74. https://doi.org/https://doi.org/10.1016/j.healthpol.2017.11.005Diana, W. (2013). IG 101:What is Information Governance? https://library.ahima.org/doc?oid=300881#.YV_flWRBy3IDIGITIMES. (2020). 整合區塊鏈與醫療 民眾取回病歷自主權. https://www.digitimes.com.tw/iot/article.asp?cat=130&cat1=40&cat2=15&id=0000594838_FPJ73FOZ4YG60H79RL10PDing, L., Lebo, T., & Erickson, J. S. (2011). TWC LOGD: A portal for linked open government data ecosystems. Journal of Web Semantics, 9(3), 325-333. https://doi.org/10.1016/j.websem.2011.06.002Don Tapscott, Alex Tapscott, & Forum, W. E. (2017). Realizing the Potential of Blockchain (A Multistakeholder Approach tothe Stewardship of Blockchain andCryptocurrencies, Issue.Dowling, M. (2021). Is non-fungible token pricing driven by cryptocurrencies? Finance Research Letters, 102097. https://doi.org/https://doi.org/10.1016/j.frl.2021.102097Downing, N. L., Adler-Milstein, J., Palma, J. P., Lane, S., Eisenberg, M., Sharp, C., Northern California, H. I. E. C., & Longhurst, C. A. (2017). Health information exchange policies of 11 diverse health systems and the associated impact on volume of exchange. Journal of the American Medical Informatics Association : JAMIA, 24(1), 113-122. https://doi.org/10.1093/jamia/ocw063Dreibelbis, A., Hechler, E., Milman, I., Oberhofer, M., Run, P. v., & Wolfson, D. (2008). Enterprise master data management: an SOA approach to managing core information. IBM PRESS.Ekblaw, A., Azaria, A., Halamka, J. D., MD, Lippman, A., Lab, M. M., & Center, B. I. D. M. (2016). A Case Study for Blockchain in Healthcare:“MedRec” prototype for electronic health records and medical research data2nd International Conference on Open & Big Data 2016, Vienna, Austria.Esmaeilzadeh, P., & Mirzaei, T. (2018). Comparison of consumers’ perspectives on different health information exchange (HIE) mechanisms: an experimental study. International Journal of Medical Informatics, 119, 1-7. https://doi.org/https://doi.org/10.1016/j.ijmedinf.2018.08.007Esmaeilzadeh, P., & Mirzaei, T. (2019). The Potential of Blockchain Technology for Health Information Exchange: Experimental Study From Patients` Perspectives. JOURNAL OF MEDICAL INTERNET RESEARCH, 21(6). https://doi.org/10.2196/14184Esmaeilzadeh, P., & Sambasivan, M. (2016). Health Information Exchange (HIE): A literature review, assimilation pattern and a proposed classification for a new policy approach. Journal of Biomedical Informatics, 64, 74-86. https://doi.org/https://doi.org/10.1016/j.jbi.2016.09.011EY. (2022). Iintelligent Health Ecosystem Flagship.Filipova, A. A. (2015). Health Information Exchange Capabilities in Skilled Nursing Facilities. CIN: Computers, Informatics, Nursing, 33(8). https://journals.lww.com/cinjournal/Fulltext/2015/08000/Health_Information_Exchange_Capabilities_in.5.aspxFleissner, B., Jasti, K., & Ales, J. (2014). The Importance of Data Governance in Healthcare: WHITE PAPER.Forrest, C. B., Glade, G. B., Baker, A. E., Bocian, A., von Schrader, S., & Starfield, B. (2000). Coordination of Specialty Referrals and Physician Satisfaction With Referral Care. Archives of Pediatrics & Adolescent Medicine, 154(5), 499-506. https://doi.org/10.1001/archpedi.154.5.499Fothergill, B. T., Knight, W., Stahl, B. C., & Ulnicane, I. (2019). Responsible Data Governance of Neuroscience Big Data. Frontiers in neuroinformatics, 13, 28-28. https://doi.org/10.3389/fninf.2019.00028FROST & SULLIVAN, & IBM. (2021). IBM digital health pass.Fu, X., Wojak, A., Neagu, D., Ridley, M., & Travis, K. (2011). Data governance in predictive toxicology: A review. Journal of Cheminformatics, 3(24).Gartner. (2018). Information governance. www.gartner.com/it-glossary/information-governance/Gaynor, M., Tuttle-Newhall, J., Parker, J., Patel, A., & Tang, C. (2020). Adoption of Blockchain in Health Care. J Med Internet Res, 22(9), e17423. https://doi.org/10.2196/17423Germann, S., & Jasper, U. (2020). Realising the benefits of data driven digitalisation without ignoring the risks: health data governance for health and human rights. mHealth, 6, 34-34. https://doi.org/10.21037/mhealth-2019-di-11Gerring, J. (2004). What Is a Case Study and What Is It Good for? American Political Science Review, 98(2), 341-354. https://doi.org/10.1017/S0003055404001182Gordon, W. J., & Catalini, C. (2018). Blockchain Technology for Healthcare: Facilitating the Transition to Patient-Driven Interoperability. Computational and Structural Biotechnology Journal, 16, 224-230. https://doi.org/https://doi.org/10.1016/j.csbj.2018.06.003Gostin, L. O., Cohen, I. G., & Shaw, J. (2021). Digital Health Passes in the Age of COVID-19: Are “Vaccine Passports” Lawful and Ethical? JAMA, 325(19), 1933-1934. https://doi.org/10.1001/jama.2021.5283Grimstad, T., & Myrseth, P. (2011, 6-8 May 2011). Information governance as a basis for cross-sector e-services in public administration. 2011 International Conference on E-Business and E-Government (ICEE),Guardtime. (2019). EY, Sensyne Health and Guardtime to use AI and blockchain to link health care reimbursement and actual patient outcomes. Guardtime. https://guardtime.com/blog/ey-sensyne-health-and-guardtime-to-use-ai-and-blockchain-to-link-health-care-reimbursement-and-actual-patient-outcomesGuardtime. (2020). MEASURING OUTCOMES USING REAL WORLD EVIDENCE WITHOUT DATA SHARING. Guardtime. https://guardtime.com/healthGuardtime. (2022). VACCINEGUARD END TO END VISIBILITY FOR THE PHARMACEUTICAL VALUE CHAIN. Guardtime. https://guardtime.com/vaccineguardGuichard, F. (2017). Recent advances in metacommunities and meta-ecosystem theories [version 1; peer review: 2 approved]. F1000Research, 6(610). https://doi.org/10.12688/f1000research.10758.1H.Y., K., & J.-S., C. (2018). Data governance framework for big data implementation with NPS Case Analysis in Korea. Journal of Business and Retail Management Research, 12(3), 36 - 46.Haes, S. D., & Grembergen, W. V. (2005, 6-6 Jan. 2005). IT Governance Structures, Processes and Relational Mechanisms: Achieving IT/Business Alignment in a Major Belgian Financial Group. Proceedings of the 38th Annual Hawaii International Conference on System Sciences,Harrison, T. M., Pardo, T. A., & Cook, M. (2012). Creating open government ecosystems: A research and development agenda. Future Internet, 4(4), 900.Hasselgren, A., Kralevska, K., Gligoroski, D., Pedersen, S. A., & Faxvaag, A. (2020). Blockchain in healthcare and health sciences—A scoping review. International Journal of Medical Informatics, 134, 104040. https://doi.org/https://doi.org/10.1016/j.ijmedinf.2019.104040Heath, M. L., & Porter, T. H. (2019). Physician leadership and health information exchange: literature review. BMJ health & care informatics, 26(1), e100080. https://doi.org/10.1136/bmjhci-2019-100080Heimstädt, M., Saunderson, F., & Heath, T. (2014). Conceptualizing open data ecosystems: A timeline analysis of open data development in the uk. CeDEM14: Conference for E-Democracy an Open Government,Heston, T. (2017). A Case Study in Blockchain Healthcare Innovation. Authorea Working Paper No AUTHOREA_213011_3643634.Holmes, J. H. (2016). Privacy, Security, and Patient Engagement: The Changing Health Data Governance Landscape. EGEMS (Washington, DC), 4(2), 1261-1261. https://doi.org/10.13063/2327-9214.1261Hovenga, E. J. S., & Grain, H. (2013). Health data and data governance. Article in Studies in Health Technology and Informatics, 193, 67-92.IBM. (2019). Aetna, Anthem, Health Care Service Corporation, PNC Bank and IBM announce collaboration to establish blockchain-based ecosystem for the healthcare industry. https://tinyurl.com/y3tej8x7Immonen, A., Palviainen, M., & Ovask, E. (2014). Requirements of an open data based business ecosystem. IEEE Access, 2, 88-103.Immonen, A., Palviainen, M., & Ovaska, E. (2014). Requirements of an open data based business ecosystem. IEEE Access, 2, 88-103.Jetley, G., & Zhang, H. (2019). Electronic health records in IS research: Quality issues, essential thresholds and remedial actions. Decision Support Systems, 126, 113137. https://doi.org/https://doi.org/10.1016/j.dss.2019.113137Ji, H., Yoo, S., Heo, E.-Y., Hwang, H., & Kim, J.-W. (2017). Technology and Policy Challenges in the Adoption and Operation of Health Information Exchange Systems. Healthcare informatics research, 23(4), 314-321. https://doi.org/10.4258/hir.2017.23.4.314Jones, K. H., Ford, E. M., Lea, N., Griffiths, L. J., Hassan, L., Heys, S., Squires, E., & Nenadic, G. (2020). Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper. JOURNAL OF MEDICAL INTERNET RESEARCH, 22(6), e16760-e16760. https://doi.org/10.2196/16760Jose Jacobo, Z., Vaquer, L., Jose-Norberto, M., MaciÁ, F., GarrigÓS, I., Fuster, A., & Jose Vicente, C. (2016). The university as an open data ecosystem. International Journal of Design & Nature and Ecodynamics, 11(3), 250-257. https://doi.org/http://dx.doi.org/10.2495/DNE-V11-N3-250-257Khatri, V., & Brown, C. V. (2010). Designing data governance. Commun. ACM, 53(1), 148–152. https://doi.org/10.1145/1629175.1629210Kim, E., Rubinstein, S. M., Nead, K. T., Wojcieszynski, A. P., Gabriel, P. E., & Warner, J. L. (2019). The Evolving Use of Electronic Health Records (EHR) for Research. Seminars in Radiation Oncology, 29(4), 354-361. https://doi.org/https://doi.org/10.1016/j.semradonc.2019.05.010Kloss, L. L. (2013). Leading innovation in enterprise information governance. J AHIMA, 84(9), 34-38.Kruse, C. S., Kristof, C., Jones, B., Mitchell, E., & Martinez, A. (2016). Barriers to Electronic Health Record Adoption: a Systematic Literature Review. Journal of Medical Systems, 40(12), 252-252. https://doi.org/10.1007/s10916-016-0628-9Kuo, T.-T., Kim, H.-E., & Ohno-Machado, L. (2017). Blockchain distributed ledger technologies for biomedical and health care applications. Journal of the American Medical Informatics Association, 24(6), 1211-1220. https://doi.org/10.1093/jamia/ocx068Kuo, T.-T., Rojas, H. Z., & Ohno-Machado, L. (2019). Comparison of blockchain platforms: a systematic review and healthcare examples. JOURNAL OF THE AMERICA MEDICAL INFORMATICS ASSOCIATION, 26(5), 462–478. https://doi.org/10.1093/jamia/ocy185Kvale, S. (2011). Introduction to Interview Research. SAGE Publications, Ltd https://doi.org/https://dx.doi.org/10.4135/9781849208963Lam, K., Iqbal, F. M., Purkayastha, S., & Kinross, J. M. (2021). Investigating the Ethical and Data Governance Issues of Artificial Intelligence in Surgery: Protocol for a Delphi Study. JMIR research protocols, 10(2), e26552-e26552. https://doi.org/10.2196/26552Landi, H. (2019). Aetna, IBM launching new blockchain healthcare network. Fierce Healthcare. https://www.fiercehealthcare.com/health-tech/progyny-boosts-profit-projections-2022-more-employers-eye-fertility-benefitsLaney, D. (2001). 3D data management: Controlling data volume, velocity and variety (META Group Research Note, Issue.Lee, Y., Madnick, S. E., Wang, R. Y., Wang, F., & Zhang, H. (2014). A Cubic Framework for the Chief Data Officer: Succeeding in a World of Big Data. Massachusetts Institute of Technology. Engineering Systems Division. http://hdl.handle.net/1721.1/103027Leeming, G., Cunningham, J., & Ainsworth, J. (2019). A Ledger of Me: Personalizing Healthcare Using Blockchain Technology [Review]. Frontiers in Medicine, 6. https://doi.org/10.3389/fmed.2019.00171Liaw, S. T., Pearce, C., Liyanage, H., Liaw, G. S., & de Lusignan, S. (2014). An integrated organisation-wide data quality management and information governance framework: theoretical underpinnings. Inform Prim Care, 21(4), 199-206. https://doi.org/10.14236/jhi.v21i4.87Liive, R. (2020). How the world’s leading blockchain company Guardtime turns trust into digital truth from its Tallinn office. Life in Estonia. https://investinestonia.com/how-the-worlds-leading-blockchain-company-guardtime-turns-trust-into-digital-truth-from-its-tallinn-office/Lindman, J., Kinnari, T., & Rossi, M. (2016). Business roles in the emerging open-data ecosystem. IEEE Software, 33(5), 54-59.Linn, L. A., & Martha B. Koo, M. D. (2016). Blockchain For Health Data and Its Potential Use in Health IT and Health Care Related ResearchLo, Y.-S., Yang, C.-Y., Chien, H.-F., Chang, S.-S., Lu, C.-Y., & Chen, R.-J. (2019). Blockchain-Enabled iWellChain Framework Integration With the National Medical Referral System: Development and Usability Study. JOURNAL OF MEDICAL INTERNET RESEARCH, 21(12), e13563-e13563. https://doi.org/10.2196/13563Lu, C., Batista, D., Hamouda, H., & Lemieux, V. (2020). Consumers` Intentions to Adopt Blockchain-Based Personal Health Records and Data Sharing: Focus Group Study. JMIR formative research, 4(11), e21995-e21995. https://doi.org/10.2196/21995Mackey, T. K., Kuo, T.-T., Gummadi, B., Clauson, K. A., Church, G., Grishin, D., Obbad, K., Barkovich, R., & Palombini, M. (2019). ‘Fit-for-purpose?’ – challenges and opportunities for applications of blockchain technology in the future of healthcare. BMC Medicine, 17(1), 68. https://doi.org/10.1186/s12916-019-1296-7Malhotra, A., O’Neill, H., & Stowell, P. (2022). Thinking strategically about blockchain adoption and risk mitigation. Business Horizons, 65(2), 159-171. https://doi.org/https://doi.org/10.1016/j.bushor.2021.02.033Marco Iansiti, R. L. (2004). Strategy as Ecology. Harvard Business Review Home. https://hbr.org/2004/03/strategy-as-ecologyMattaini, M. A., & Meyer, C. H. (2002). The ecosystems perspective: Implications for practice. Foundations of social work practice: A graduate text, 3.McGhin, T., Choo, K.-K. R., Liu, C. Z., & He, D. (2019). Blockchain in healthcare applications: Research challenges and opportunities. Journal of Network and Computer Applications, 135, 62-75. https://doi.org/https://doi.org/10.1016/j.jnca.2019.02.027Meinert, E., Alturkistani, A., Foley, K. A., Osama, T., Car, J., Majeed, A., Van Velthoven, M., Wells, G., & Brindley, D. (2019). Blockchain Implementation in Health Care: Protocol for a Systematic Review. JMIR research protocols, 8(2), e10994-e10994. https://doi.org/10.2196/10994Mercado-Lara, E., & Gil-Garcia, J. R. (2014). Open government and data intermediaries: the case of aiddata. the 15th Annual International Conference on Digital Government Research,Merriam, S. B. (2002). Introduction to qualitative research. John Wiley & Sons, Inc.Miller, J. (2021). How Blockchain Can Be Used for Personal Health Record Storage and Security: OJNI. On - Line Journal of Nursing Informatics, 25(2). https://login.autorpa.lib.nccu.edu.tw/login?url=https://www.proquest.com/scholarly-journals/how-blockchain-can-be-used-personal-health-record/docview/2621687383/se-2http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=https://nccu.primo.exlibrisgroup.com/openurl/886NCCU_INST/886NCCU_INST:886NCCU_INST?url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&genre=article&sid=ProQ:ProQ%3Ahealthcompleteshell&atitle=How+Blockchain+Can+Be+Used+for+Personal+Health+Record+Storage+and+Security%3A+OJNI&title=On+-+Line+Journal+of+Nursing+Informatics&issn=10899758&date=2021-07-01&volume=25&issue=2&spage=&au=Miller%2C+J&isbn=&jtitle=On+-+Line+Journal+of+Nursing+Informatics&btitle=&rft_id=info:eric/&rft_id=info:doi/Milne, R., & Brayne, C. (2020). We need to think about data governance for dementia research in a digital era. Alzheimer`s research & therapy, 12(1), 17-17. https://doi.org/10.1186/s13195-020-0584-yMithani, S. S., Bota, A. B., Zhu, D. T., & Wilson, K. (2022). A scoping review of global vaccine certificate solutions for COVID-19. Human Vaccines & Immunotherapeutics, 18(1), 1-12. https://doi.org/10.1080/21645515.2021.1969849Moore, J. F. (1993). Predators and prey: a new ecology of competition. Harv Bus Rev, 71(3), 75-86.Morabito, V. (2015). Big Data and Analytics. Strategic and Organizational Impacts. https://doi.org/10.1007/978-3-319-10665-6Mosley, M., Brackett, M. H., Earley, S., & Henderson, D. (2013). DAMA guide to the data management body of knowledge [2010]. Technics Publications.Newman, D., & Logan, D. (2006). Governance Is an Essential Building Block for Enterprise Information ManagementNomura, S., Sakamoto, H., Ishizuka, A., Katsuma, Y., Akashi, H., & Miyata, H. (2020). Ongoing debate on data governance principles for achieving Universal Health Coverage: a proposal to post-G20 Osaka Summit meetings. Global health action, 13(1), 1859822-1859822. https://doi.org/10.1080/16549716.2020.1859822NORTAL. (2021a). Digital Discussion: the likelyhood of digitalizing the U.S. healthcare ecosyste. NORTAL. https://nortal.com/blog/digital-discussion-digital-healthcare/NORTAL. (2021b). Helping to restore travel once again. NORTAL HQ. https://nortal.com/blog/helping-to-restore-travel-once-again/Novikov, S. P., Kazakov, O. D., Kulagina, N. A., & Azarenko, N. Y. (2018, 24-28 Sept. 2018). Blockchain and Smart Contracts in a Decentralized Health Infrastructure. 2018 IEEE International Conference "Quality Management, Transport and Information Security, Information Technologies" (IT&QM&IS),Ogden, G., Bergström;, R., & Aavik, A. (2019). Guardtime Health White Paper (Guardtime Health Issue. https://m.guardtime.com/files/Guardtime_whitepaper_A4_april_web.pdfOjo, A., & Adebayo, S. (2017). Blockchain as a Next Generation Government Information Infrastructure: A Review of Initiatives in D5 Countries. In A. Ojo & J. Millard (Eds.), Government 3.0 – Next Generation Government Technology Infrastructure and Services: Roadmaps, Enabling Technologies & Challenges (pp. 283-298). Springer International Publishing. https://doi.org/10.1007/978-3-319-63743-3_11Oliveira, M. I. S., & Lóscio, B. F. (2018). What is a data ecosystem? Proceedings of the 19th Annual International Conference on Digital Government Research: Governance in the Data Age, Delft, The Netherlands. https://doi.org/10.1145/3209281.3209335ONC. (2019). What is an electronic health record (EHR)? The Office of the National Coordinator for Health Information Technology. https://www.healthit.gov/faq/what-electronic-health-record-ehrOtto, B., Wende, K., Schmidt, A., & Osl, P. (2007). Research Platform Alexandria 18th Australasian Conference on Information Systems (ACIS),Panwar, A., Bhatnagar, V., Khari, M., Salehi, A. W., & Gupta, G. (2022). A Blockchain Framework to Secure Personal Health Record (PHR) in IBM Cloud-Based Data Lake. Computational Intelligence and Neuroscience, 2022, 3045107. https://doi.org/10.1155/2022/3045107Payne, T. H., Lovis, C., Gutteridge, C., Pagliari, C., Natarajan, S., Yong, C., & Zhao, L.-P. (2019). Status of health information exchange: a comparison of six countries. Journal of global health, 9(2), 0204279-0204279. https://doi.org/10.7189/jogh.09.020427Pike, & Capobianco. (2020). Antitrust and the trust machine. http://www.oecd.org/daf/competition/antitrust-and-the-trust-machine-2020.pdfPollock, R. (2011). Building the (open) data ecosystem. Open Knowledge Foundation Blog. https://blog.okfn.org/2011/03/31/building-the-open-data-ecosystem/POOLA, G. (2018). Why you should think twice before jumping on the blockchain bandwago. Nortal. https://nortal.com/blog/think-before-jumping-blockchain/Porsdam Mann, S., Savulescu, J., Ravaud, P., & Benchoufi, M. (2020). Blockchain, consent and prosent for medical research. Journal of medical ethics, 47(4), 244-250. https://doi.org/10.1136/medethics-2019-105963Price, W. N., 2nd, & Cohen, I. G. (2019). Privacy in the age of medical big data. Nature medicine, 25(1), 37-43. https://doi.org/10.1038/s41591-018-0272-7Qin Wang, R. L., Qi Wang,Shiping Chen. (2021). Non-Fungible Token (NFT): Overview, Evaluation, Opportunities and Challenges. CoRR. https://arxiv.org/abs/2105.07447Quito, A. (2021). More than 450 airlines can now use IBM’s blockchain-based vaccine passport. QUARTZ. https://qz.com/2036529/more-than-450-airlines-can-now-use-ibms-digital-health-pass/Ramelson, H., Nederlof, A., Karmiy, S., Neri, P., Kiernan, D., Krishnamurthy, R., Allen, A., & Bates, D. W. (2018). Closing the loop with an enhanced referral management system. Journal of the American Medical Informatics Association : JAMIA, 25(6), 715-721. https://doi.org/10.1093/jamia/ocy004Rasouli, M. R., Angappa Gunasekaran, D. N. D., Trienekens, J. J. M., Kusters, R. J., & Grefen, P. W. P. J. (2016). Information governance requirements in dynamic business networking. Industrial Management & Data Systems, 116(7), 1356-1379. https://doi.org/10.1108/imds-06-2015-0260Richesson, R. L. (2020). Learning health systems, embedded research, and data standards-recommendations for healthcare system leaders. JAMIA open, 3(4), 488-491. https://doi.org/10.1093/jamiaopen/ooaa046Roman-Belmonte, J. M., De la Corte-Rodriguez, H., & Rodriguez-Merchan, E. C. (2018). How blockchain technology can change medicine. Postgraduate Medicine, 130(4), 420-427. https://doi.org/10.1080/00325481.2018.1472996Romero, R. A., & Young, S. D. (2022). Ethical perspectives in sharing digital data for public health surveillance before and shortly after the onset of the Covid-19 pandemic. Ethics & Behavior, 32(1), 22-31. https://doi.org/10.1080/10508422.2021.1884079Rosenbaum, S. (2010). Data Governance and Stewardship: Designing Data Stewardship Entities and Advancing Data Access. Health Services research, 45(5), 1442-1455. https://doi.org/ https://doi.org/10.1111/j.1475-6773.2010.01140.xRoth, C. J., Lannum, L. M., & Joseph, C. L. (2016). Enterprise Imaging Governance: HIMSS-SIIM Collaborative White Paper. JOURNAL OF DIGITAL IMAGING, 29(5), 539–546. https://doi.org/10.1007/s10278-016-9883-zRubin, G. D., & Abramson, R. G. (2018). Creating Value through Incremental Innovation: Managing Culture, Structure, and Process. Radiology, 288(2), 330-340. https://doi.org/10.1148/radiol.2018171239Sadoughi, F., Nasiri, S., & Ahmadi, H. (2018). The impact of health information exchange on healthcare quality and cost-effectiveness: A systematic literature review. Computer Methods and Programs in Biomedicine, 161, 209-232. https://doi.org/https://doi.org/10.1016/j.cmpb.2018.04.023Schalkwyk, F. V., Willmers, M., & McNaughton, M. (2016). Viscous open data: The roles of intermediaries in an open data ecosystem. Information Technology for Development, 22(sup1), 68–83.Schroeder, S. A., & Frist, W. (2013). Phasing Out Fee-for-Service Payment. the New England journal of medicine, 368, 2029-2032. https://doi.org/10.1056/NEJMsb1302322Shabani, M. (2019). Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems? Journal of the American Medical Informatics Association, 26(1), 76-80. https://doi.org/10.1093/jamia/ocy149Shae, Z. Y., & Tsai, J. J. P. (2021, 13-15 Dec. 2021). On the Design of Medical Data Ecosystem for Improving Healthcare Research and Commercial Incentive. 2021 IEEE Third International Conference on Cognitive Machine Intelligence (CogMI),Sharon, T., & Lucivero, F. (2019). Introduction to the Special Theme: The expansion of the health data ecosystem – Rethinking data ethics and governance. Big Data & Society, 6(2). https://doi.org/https://doi.org/10.1177/2053951719852969Shepherd, E., & West, V. (2003). Are ISO 15489‐1:2001 and ISAD(G) compatible? Part 1. Records Management Journal, 13(1).Silverman, D. (2020). Qualitative Research. SAGE.Spence, P. (2022). How you can create value in an intelligent health ecosystem. EY Global Health Sciences and Wellness Industry. https://www.ey.com/en_gl/life-sciences/how-you-can-create-value-in-an-intelligent-health-ecosystemSung, S.-F., Hsieh, C.-Y., & Hu, Y.-H. (2020). Two Decades of Research Using Taiwan’s National Health Insurance Claims Data: Bibliometric and Text Mining Analysis on PubMed. J Med Internet Res, 22(6), e18457. https://doi.org/10.2196/18457Tallon, P. P., Ramirez, R. V., & Short, J. E. (2013). The Information Artifact in IT Governance: Toward a Theory of Information Governance. Journal of Management Information Systems 30(3), 141-178. https://doi.org/https://doi.org/10.2753/MIS0742-1222300306Tan, L., Tivey, D., Kopunic, H., Babidge, W., Langley, S., & Maddern, G. (2020). Part 2: Blockchain technology in health care. ANZ J Surg, 90(12), 2415-2419. https://doi.org/10.1111/ans.16455Taylor, T. (2018). What does the Hancock Health Hack tell us about remote vendor access? Secure Link. https://www.securelink.com/blog/hancock-health-hack-tell-us-remote-vendor-access/Thomas, G. (2006). Alpha males and data disasters : the case for data governance. Orlando, FL : Brass Cannon Press, 2006.Tiwana, A., Konsynski, B., & Venkatraman, N. (2014). Special Issue: Information Technology and Organizational Governance: The IT Governance Cube. Journal of Management Information Systems, 30(3), 7-12. https://doi.org/10.2753/MIS0742-1222300301Tseng, C. H., Chen, R.-J., Tsai, S.-Y., Wu, T.-R., Tsaur, W.-J., Chiu, H.-W., Yang, C.-Y., & Lo, Y.-S. (2022). Exploring the COVID-19 Pandemic as a Catalyst for Behavior Change Among Patient Health Record App Users in Taiwan: Development and Usability Study. J Med Internet Res, 24(1), e33399. https://doi.org/10.2196/33399Velmovitsky, P. E., Bublitz, F. M., Fadrique, L. X., & Morita, P. P. (2021). Blockchain Applications in Health Care and Public Health: Increased Transparency. JMIR Med Inform, 9(6), e20713. https://doi.org/10.2196/20713Vest, J. R., Jr., T. R. C., & Kaushal, R. (2013). Challenges, Alternatives, and Paths to Sustainability for Health Information Exchange Efforts. Journal of Medical Systems, 37.Vimalananda, V. G., Gupte, G., Seraj, S. M., Orlander, J., Berlowitz, D., Fincke, B. G., & Simon, S. R. (2015). Electronic consultations (e-consults) to improve access to specialty care: a systematic review and narrative synthesis. J Telemed Telecare, 21(6), 323-330. https://doi.org/10.1177/1357633x15582108Washington, L. (2015). Information Governance Offers a Strategic Approach for Healthcare (2015 Update). J AHIMA 86(11).Weber, K., Otto, B., & Österle, H. (2009). One Size Does Not Fit All---A Contingency Approach to Data Governance. J. Data and Information Quality, 1(1), Article 4. https://doi.org/10.1145/1515693.1515696Weller, A. (2008). Data governance: Supporting datacentric risk management. Journal of Securities Operations and Custody, 1(3), 250-262.Williams, C., Mostashari, F., Mertz, K., Hogin, E., & Atwal, P. (2012). From the Office of the National Coordinator: the strategy for advancing the exchange of health information. Health affairs, 31(3), 886. https://doi.org/10.1377/hlthaff.2011.1314Winter, J. S., & Davidson, E. (2019). Big data governance of personal health information and challenges to contextual integrity. The Information Society, 35(1), 36-51. https://doi.org/10.1080/01972243.2018.1542648Wu, T.-Y., Majeed, A., & Kuo, K. N. (2010). An overview of the healthcare system in Taiwan. London journal of primary care, 3(2), 115-119. https://doi.org/10.1080/17571472.2010.11493315Yaqoob, I., Salah, K., Jayaraman, R., & Al-Hammadi, Y. (2021). Blockchain for healthcare data management: opportunities, challenges, and future recommendations. Neural Computing and Applications. https://doi.org/10.1007/s00521-020-05519-wYi, L., Hao, A., Hu, M., Huang, P., Yuan, H., & Xing, M. (2015). Construction and Application of a Refined Hospital Management Chain. Cell Biochemistry and Biophysics, 72(1), 19-22. https://doi.org/10.1007/s12013-014-0395-5Zhang, P., White, J., Schmidt, D. C., Lenz, G., & Rosenbloom, S. T. (2018). FHIRChain: Applying Blockchain to Securely and Scalably Share Clinical Data. Computational and Structural Biotechnology Journal, 16, 267-278. https://doi.org/https://doi.org/10.1016/j.csbj.2018.07.004Zhao, Y. (2017). Research on Enterprise Flat Management Mode under the Network Economy circumstance 9th International Economics, Management and Education Technology Conference, Taiyuan, China.Zheng, K., Liu, Y., Dai, C., Duan, Y., & Huang, X. (2018, 19-21 Oct. 2018). Model Checking PBFT Consensus Mechanism in Healthcare Blockchain Network. 2018 9th International Conference on Information Technology in Medicine and Education (ITME),Zhuang, Y., Chen, Y.-W., Shae, Z.-Y., & Shyu, C.-R. (2020). Generalizable Layered Blockchain Architecture for Health Care Applications: Development, Case Studies, and Evaluation. JOURNAL OF MEDICAL INTERNET RESEARCH, 22(7). https://doi.org/10.2196/19029Zhuang, Y., Sheets, L. R., Chen, Y. W., Shae, Z. Y., Tsai, J. J. P., & Shyu, C. R. (2020). A Patient-Centric Health Information Exchange Framework Using Blockchain Technology. IEEE Journal of Biomedical and Health Informatics, 24(8), 2169-2176. https://doi.org/10.1109/JBHI.2020.2993072Zuiderwijk, A., Janssen, M., Kaa, G. v. d., & Poulis, K. (2016). The wicked problem of commercial value creation in open data ecosystems: Policy guidelines for governments. Inf. Polity, 21, 223-236. 描述 碩士
國立政治大學
圖書資訊與檔案學研究所
109155005資料來源 http://thesis.lib.nccu.edu.tw/record/#G0109155005 資料類型 thesis dc.contributor.advisor 李沛錞 zh_TW dc.contributor.advisor Lee, Pei-Chun en_US dc.contributor.author (Authors) 林姿妤 zh_TW dc.contributor.author (Authors) Lin, Tzu-Yu en_US dc.creator (作者) 林姿妤 zh_TW dc.creator (作者) Lin, Tzu-Yu en_US dc.date (日期) 2022 en_US dc.date.accessioned 1-Aug-2022 17:43:59 (UTC+8) - dc.date.available 1-Aug-2022 17:43:59 (UTC+8) - dc.date.issued (上傳時間) 1-Aug-2022 17:43:59 (UTC+8) - dc.identifier (Other Identifiers) G0109155005 en_US dc.identifier.uri (URI) http://nccur.lib.nccu.edu.tw/handle/140.119/141144 - dc.description (描述) 碩士 zh_TW dc.description (描述) 國立政治大學 zh_TW dc.description (描述) 圖書資訊與檔案學研究所 zh_TW dc.description (描述) 109155005 zh_TW dc.description.abstract (摘要) 遵循有效的資料治理架構為機構間協調進行健康資料交換奠定基礎，而區塊鏈技術可解決健康資料互操作性、隱私與安全問題，成為健康資料交換發展的推手，然而，科技典範轉移往往為產業生態帶來變動，有鑑於此，本研究旨在以生態系統觀點、援引資料生態系統理論，並分別由組織治理角度與技術角度，進行以下探討：（1）探討區塊鏈技術應用於健康資料治理之效益、困境與挑戰；（2）探討區塊鏈技術應用於健康資料治理實際產生之影響，並輔以個案分析、專家訪談法，獲得區塊鏈技術應用於健康資料治理，對於不同組織帶來的效益、挑戰與影響之全面性理解，以掌握可能產生之變動並及早擬定策略。研究結果顯示，儘管不同層級組織機構所組成的醫療區塊鏈生態系統，各有其發展焦點與目標，但透過不同性質參與者的共同努力，可幫助生態系統擴展並創造異質化價值。其次，不同層級組織機構將區塊鏈技術應用於健康資料治理，實際上獲得了不一樣的效益，換言之，也將面臨不同的困境與挑戰，因此，建立不同機構間的共識，才能充分發揮區塊鏈價值。再者，在不改變現有機制的原則之下，區塊鏈技術的導入，將能幫助醫療產業於組織治理方面與醫療科技方面的突破，因此對於區塊鏈技術之採用應建立於現有技術之上，並同時考慮患者、醫療服務提供者、醫療科技公司、研究機構與政府等不同屬性機構對於健康資料與醫療服務需求，以有效帶動醫療區塊鏈生態統的擴展。 zh_TW dc.description.abstract (摘要) Following an effective data governance framework lays the foundation for health information exchange among organizations, and blockchain technology can address health information interoperability, privacy, and security issues, and become a driving force for the development of health information exchange. This study aims to:(1) Explore the benefits, dilemmas and challenges of applying blockchain technology to health data governance; (2) Explore the actual impacts of applying blockchain technology to health data governance. So as to obtain a comprehensive understanding of the benefits, challenges and impacts of applying blockchain technology to health data governance from the perspective of organizational governance and the perspective of technology, using case studies and interviews to figure out the benefits, challenges, and impacts of blockchain technology in health data governance for different organizations, so that we can grasp the possible changes and formulate strategies early.The results of the study show that although different levels of medical blockchain ecosystems with their own development focus and goals, the joint efforts of participants of different nature can help the ecosystem to expand and create heterogeneous values. Secondly, different levels of organizations apply blockchain technology to health data governance, which actually obtains different benefits, in other words, they will face different dilemmas and challenges. Furthermore, the introduction of blockchain technology can help the medical industry to make breakthroughs in governance and medical technology, and drive the expansion of medical blockchain ecosystem. en_US dc.description.tableofcontents 目次-I圖目次-III表目次-IV第一章 緒論-1第一節 研究背景與動機-1第二節 研究目的-6第三節 研究問題-6第四節 研究範圍與限制-7第五節 名詞釋義-8第六節 本研究價值與貢獻-10第二章 文獻探討-11第一節 資料生態系統理論-11第二節 資料治理-20第三節 區塊鏈技術應用於健康資料治理-47第四節 區塊鏈技術應用於健康資料治理之實際個案-53第三章 研究設計與實施-56第一節 研究架構-56第二節 研究設計-57第三節 研究對象與工具-62第四節 資料蒐集與處理-65第五節 小結-70第六節 研究步驟與流程-72第四章 研究結果-74第一節 個案分析之研究結果-75第二節 專家訪談之研究結果-121第五章 結論-133第一節 研究結論-133第二節 未來研究方向與建議-144參考文獻-147附錄一 訪談同意函-170附錄二 訪談大綱-171 zh_TW dc.format.extent 5899187 bytes - dc.format.mimetype application/pdf - dc.source.uri (資料來源) http://thesis.lib.nccu.edu.tw/record/#G0109155005 en_US dc.subject (關鍵詞) 電子健康記錄 zh_TW dc.subject (關鍵詞) 健康資料交換 zh_TW dc.subject (關鍵詞) 資料治理 zh_TW dc.subject (關鍵詞) 生態系統觀點 zh_TW dc.subject (關鍵詞) 區塊鏈技術 zh_TW dc.subject (關鍵詞) Electronic health record en_US dc.subject (關鍵詞) Health information exchange en_US dc.subject (關鍵詞) Data governance en_US dc.subject (關鍵詞) Ecosystem perspective en_US dc.subject (關鍵詞) Blockchain technology en_US dc.title (題名) 以生態系統觀點探討區塊鏈技術應用於健康資料治理 zh_TW dc.title (題名) Analyzing Application of Blockchain in Health Data Governance from Ecosystem Perspective en_US dc.type (資料類型) thesis en_US dc.relation.reference (參考文獻) 中文文獻王宏仁. (2018). 北醫轉診病歷區塊鏈應用上線，小診所也能即時查詢病患全病歷. iThome.林建佑. (2021). 智慧醫療+區塊鏈創新應用趨勢. 雙週刊. https://www.trademag.org.tw/page/newsid1/?id=7840123&iz=6施鑫澤;林裕洋. (2018). 北醫翻轉智慧醫療概念. CIO Taiwan. https://sites.google.com/a/cio.com.tw/cio-interview/home/tmuh-chen-rui-jie科技產業資訊室. (2020). WHO與愛沙尼亞合作開發區塊鏈技術疫苗證書. 財團法人國家實驗研究院科技政策研究與資訊中心. https://iknow.stpi.narl.org.tw/Post/Read.aspx?PostID=17123陳芳毓. (2020). 智慧醫療&台北醫學大學附設醫院院長陳瑞杰. 未來城市. https://futurecity.cw.com.tw/article/1712富邦人壽. (2021). 富邦人壽攜手北醫串接就診資料傳輸 醫療險理賠E鍵免紙本單據 https://www.fubon.com/life/about-us/announcement/news/fu-bang-ren-shou-xie-shou-bei-yi-chuan-jie-jiu-zhen-zi-liao-chuan-shu--yi-liao-xian-li-peiE-jian-mian-zhi-ben-chan-ju詹智安. (2021). 建立區塊鏈可行的商業模式 https://www.hbrtaiwan.com/mentor/20806/build-blockchain-business臺北醫學大學附設醫院. (2018). 北醫附醫分級醫療暨區塊鏈啟動. 臺北醫學大學附設醫院官方網站. https://www.tmuh.org.tw/single/3776臺北醫學大學附設醫院. (2019). 智慧醫療提升醫療品質－北醫附醫特色參展 展示智慧健康照護生活圈成果. 附醫新聞. http://203.71.86.70/handle/987654321/57791臺北醫學大學附設醫院. (2021). 2021台灣醫療科技展 臺北醫學大學附設醫院展覽介紹. 臺北醫學大學附設醫院. https://www.tmuh.org.tw/news/info/6408臺北醫學大學附設醫院資訊室. (2020). iTPASS APP全面升級 就醫記錄完整掌握 打造個人健康管家. 臺北醫學大學附設醫院健康報, 一月刊.蔡志宏, & 林劍秋. (2018). AI+5G：數位成長催化劑. 國土及公共治理季刊, 8(4), 20-29.衛生福利部. (2019). 近日22家醫療院所遭勒索病毒攻擊事件處理說明. https://www.mohw.gov.tw/fp-4343-49147-1.html盧沛樺. (2017). 從醫院到養豬場，你不知道的人都在玩區塊鏈. 天下雜誌. https://www.cw.com.tw/article/5121332外文文獻Abraham, R., Schneider, J., & Brocke, J. v. (2019). Data governance: A conceptual framework, structured review, and research agenda. International Journal of Information Management, 49, 424-438.Abu-elezz, I., Hassan, A., Nazeemudeen, A., Househ, M., & Abd-alrazaq, A. (2020). The benefits and threats of blockchain technology in healthcare: A scoping review. International Journal of Medical Informatics, 142, 104246. https://doi.org/https://doi.org/10.1016/j.ijmedinf.2020.104246Ahmed, S. R., Amer, M. M., & Killawi, A. (2017). The ecosystems perspective in social work: Implications for culturally competent practice with American Muslims. Journal of Religion & Spirituality in Social Work: Social Thought, 36(1-2), 48-72. https://doi.org/10.1080/15426432.2017.1311245Ahram, T., Sargolzaei, A., Sargolzaei, S., Daniels, J., & Amaba, B. (2017, 8-10 June 2017). Blockchain technology innovations. 2017 IEEE Technology & Engineering Management Conference (TEMSCON),Akhlaq, A., Sheikh, A., & Pagliari, C. (2016). Defining health information exchange: scoping review of published definitions. BMJ Health & Care Informatics, 23(4), 684. https://doi.org/10.14236/jhi.v23i4.838Ali, S. R., Bryce, J., Tan, L. E., Hiort, O., Pereira, A. M., van den Akker, E. L. T., Appelman-Dijkstra, N. M., Bertherat, J., Cools, M., Dekkers, O. M., Kodra, Y., Persani, L., Smyth, A., Smythe, C., Taruscio, D., & Ahmed, S. F. (2020). The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes. International journal of environmental research and public health, 17(23), 8743. https://doi.org/10.3390/ijerph17238743Angraal, S., Krumholz, H. M., & Schulz, W. L. (2017). Blockchain Technology. Circulation: Cardiovascular Quality and Outcomes, 10(9), e003800. https://doi.org/10.1161/CIRCOUTCOMES.117.003800Arellano, A. M., Dai, W., Wang, S., Jiang, X., & Ohno-Machado, L. (2018). Privacy Policy and Technology in Biomedical Data Science. Annual review of biomedical data science, 1, 115-129. https://doi.org/10.1146/annurev-biodatasci-080917-013416Attaran, M. (2022). Blockchain technology in healthcare: Challenges and opportunities. International Journal of Healthcare Management, 15(1), 70-83. https://doi.org/10.1080/20479700.2020.1843887Attaran, M., & Gunasekaran, A. (2019). Blockchain-enabled technology: the emerging technology set to reshape and decentralise many industries. International Journal of Applied Decision Sciences, 12(4), 424-444. https://doi.org/10.1504/IJADS.2019.102642Attard, J., Orlandi, F., & Auer, S. (2016, 13-16 Oct. 2016). Data Value Networks: Enabling a New Data Ecosystem. 2016 IEEE/WIC/ACM International Conference on Web Intelligence (WI),Attard, J., Orlandi, F., & Auer, S. (2016). Data value networks: Enabling a new data ecosystem. Web Intelligence (WI), 2016 IEEE/WIC/ACM International Conference on,Ballard, C., Compert, C., Jesionowski, T., Milman, I., Plants, B., Rosen, B., & Smith, H. (2014). Information Governance Principles and Practices for a Big Data Landscape. IBM.Bloomrosen, M., Berner, E. S., & Section Editors for the, I. Y. S. o. H. I. M. (2018). Findings from 2017 on Health Information Management. Yearbook of medical informatics, 27(1), 67-73. https://doi.org/10.1055/s-0038-1667072Booth, G. S., & Gehrie, E. A. (2021). Non-fungible tokens: Stem cell transplantation in the blockchain. Transfusion and Apheresis Science, 60(5), 103196. https://doi.org/https://doi.org/10.1016/j.transci.2021.103196Borgman, H., Heier, H., Bahli, B., & Boekamp, T. (2016, 5-8 Jan. 2016). Dotting the I and Crossing (out) the T in IT Governance: New Challenges for Information Governance. 2016 49th Hawaii International Conference on System Sciences (HICSS),Bourne, P. E., Lorsch, J. R., & Green, E. D. (2015). Perspective: Sustaining the big-data ecosystem. Nature, 527(7576), S16-S17.Bruhn, J. G., & Rebach, H. M. (2014). The Contemporary Challenges of Caregiving. In J. G. Bruhn & H. M. Rebach (Eds.), The Sociology of Caregiving (pp. 1-14). Springer Netherlands. https://doi.org/10.1007/978-94-017-8857-1_1Case, D. O. (2007). Looking for Information：A Survey of Research on Information Seeking, Needs, and Behavior. Academic Press.Chang, S. E., & Chen, Y. (2020). Blockchain in Health Care Innovation: Literature Review and Case Study From a Business Ecosystem Perspective. J Med Internet Res, 22(8), e19480. https://doi.org/10.2196/19480Chen, H., & Huang, X. (2018). Will Blockchain Technology Transform Healthcare and Biomedical Sciences? EC pharmacology and toxicology, 6(11), 910-911. https://pubmed.ncbi.nlm.nih.gov/31460519https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6711478/Chen, H. S., Jarrell, J. T., Carpenter, K. A., Cohen, D. S., & Huang, X. (2019). Blockchain in Healthcare: A Patient-Centered Model. Biomedical journal of scientific & technical research, 20(3), 15017-15022. https://pubmed.ncbi.nlm.nih.gov/31565696https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6764776/Cheong, L. K., & Chang, V. (2007). The Need for Data Governance: A Case Stud ACIS 2007 Proceedings, http://aisel.aisnet.org/acis2007/100?utm_source=aisel.aisnet.org%2Facis2007%2F100&utm_medium=PDF&utm_campaign=PDFCoverPagesClim, A., Zota, R. D., & Tinica, G. (2019). Big Data in home healthcare: A new frontier in personalized medicine. Medical emergency services and prediction of hypertension risks. International Journal of Healthcare Management, 12(3), 241-249. https://doi.org/10.1080/20479700.2018.1548158Collins, S. A., Gesner, E., Morgan, S., Mar, P., Maviglia, S., Colburn, D., Tierney, D., & Rocha, R. (2015). A Practical Approach to Governance and Optimization of Structured Data Elements. Stud Health Technol Inform, 216, 7-11.Czachorowski, K., Solesvik, M., & Kondratenko, Y. (2019). The Application of Blockchain Technology in the Maritime Industry. In V. Kharchenko, Y. Kondratenko, & J. Kacprzyk (Eds.), Green IT Engineering: Social, Business and Industrial Applications (pp. 561-577). Springer International Publishing. https://doi.org/10.1007/978-3-030-00253-4_24de Freitas, C., Amorim, M., Machado, H., Leão Teles, E., Baptista, M. J., Renedo, A., Provoost, V., & Silva, S. (2021). Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research. BMJ open, 11(3), e044289-e044289. https://doi.org/10.1136/bmjopen-2020-044289de Haes, S., & van Grembergen, W. (2009). An Exploratory Study into IT Governance Implementations and its Impact on Business/IT Alignment [Article]. Information Systems Management, 26(2), 123-137. https://doi.org/10.1080/10580530902794786De Pietro, C., & Francetic, I. (2018). E-health in Switzerland: The laborious adoption of the federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy, 122(2), 69-74. https://doi.org/https://doi.org/10.1016/j.healthpol.2017.11.005Diana, W. (2013). IG 101:What is Information Governance? https://library.ahima.org/doc?oid=300881#.YV_flWRBy3IDIGITIMES. (2020). 整合區塊鏈與醫療 民眾取回病歷自主權. https://www.digitimes.com.tw/iot/article.asp?cat=130&cat1=40&cat2=15&id=0000594838_FPJ73FOZ4YG60H79RL10PDing, L., Lebo, T., & Erickson, J. S. (2011). TWC LOGD: A portal for linked open government data ecosystems. Journal of Web Semantics, 9(3), 325-333. https://doi.org/10.1016/j.websem.2011.06.002Don Tapscott, Alex Tapscott, & Forum, W. E. (2017). Realizing the Potential of Blockchain (A Multistakeholder Approach tothe Stewardship of Blockchain andCryptocurrencies, Issue.Dowling, M. (2021). Is non-fungible token pricing driven by cryptocurrencies? Finance Research Letters, 102097. https://doi.org/https://doi.org/10.1016/j.frl.2021.102097Downing, N. L., Adler-Milstein, J., Palma, J. P., Lane, S., Eisenberg, M., Sharp, C., Northern California, H. I. E. C., & Longhurst, C. A. (2017). Health information exchange policies of 11 diverse health systems and the associated impact on volume of exchange. Journal of the American Medical Informatics Association : JAMIA, 24(1), 113-122. https://doi.org/10.1093/jamia/ocw063Dreibelbis, A., Hechler, E., Milman, I., Oberhofer, M., Run, P. v., & Wolfson, D. (2008). Enterprise master data management: an SOA approach to managing core information. IBM PRESS.Ekblaw, A., Azaria, A., Halamka, J. D., MD, Lippman, A., Lab, M. M., & Center, B. I. D. M. (2016). A Case Study for Blockchain in Healthcare:“MedRec” prototype for electronic health records and medical research data2nd International Conference on Open & Big Data 2016, Vienna, Austria.Esmaeilzadeh, P., & Mirzaei, T. (2018). Comparison of consumers’ perspectives on different health information exchange (HIE) mechanisms: an experimental study. International Journal of Medical Informatics, 119, 1-7. https://doi.org/https://doi.org/10.1016/j.ijmedinf.2018.08.007Esmaeilzadeh, P., & Mirzaei, T. (2019). The Potential of Blockchain Technology for Health Information Exchange: Experimental Study From Patients` Perspectives. JOURNAL OF MEDICAL INTERNET RESEARCH, 21(6). https://doi.org/10.2196/14184Esmaeilzadeh, P., & Sambasivan, M. (2016). Health Information Exchange (HIE): A literature review, assimilation pattern and a proposed classification for a new policy approach. Journal of Biomedical Informatics, 64, 74-86. https://doi.org/https://doi.org/10.1016/j.jbi.2016.09.011EY. (2022). Iintelligent Health Ecosystem Flagship.Filipova, A. A. (2015). Health Information Exchange Capabilities in Skilled Nursing Facilities. CIN: Computers, Informatics, Nursing, 33(8). https://journals.lww.com/cinjournal/Fulltext/2015/08000/Health_Information_Exchange_Capabilities_in.5.aspxFleissner, B., Jasti, K., & Ales, J. (2014). The Importance of Data Governance in Healthcare: WHITE PAPER.Forrest, C. B., Glade, G. B., Baker, A. E., Bocian, A., von Schrader, S., & Starfield, B. (2000). Coordination of Specialty Referrals and Physician Satisfaction With Referral Care. Archives of Pediatrics & Adolescent Medicine, 154(5), 499-506. https://doi.org/10.1001/archpedi.154.5.499Fothergill, B. T., Knight, W., Stahl, B. C., & Ulnicane, I. (2019). Responsible Data Governance of Neuroscience Big Data. Frontiers in neuroinformatics, 13, 28-28. https://doi.org/10.3389/fninf.2019.00028FROST & SULLIVAN, & IBM. (2021). IBM digital health pass.Fu, X., Wojak, A., Neagu, D., Ridley, M., & Travis, K. (2011). Data governance in predictive toxicology: A review. Journal of Cheminformatics, 3(24).Gartner. (2018). Information governance. www.gartner.com/it-glossary/information-governance/Gaynor, M., Tuttle-Newhall, J., Parker, J., Patel, A., & Tang, C. (2020). Adoption of Blockchain in Health Care. J Med Internet Res, 22(9), e17423. https://doi.org/10.2196/17423Germann, S., & Jasper, U. (2020). Realising the benefits of data driven digitalisation without ignoring the risks: health data governance for health and human rights. mHealth, 6, 34-34. https://doi.org/10.21037/mhealth-2019-di-11Gerring, J. (2004). What Is a Case Study and What Is It Good for? American Political Science Review, 98(2), 341-354. https://doi.org/10.1017/S0003055404001182Gordon, W. J., & Catalini, C. (2018). Blockchain Technology for Healthcare: Facilitating the Transition to Patient-Driven Interoperability. Computational and Structural Biotechnology Journal, 16, 224-230. https://doi.org/https://doi.org/10.1016/j.csbj.2018.06.003Gostin, L. O., Cohen, I. G., & Shaw, J. (2021). Digital Health Passes in the Age of COVID-19: Are “Vaccine Passports” Lawful and Ethical? JAMA, 325(19), 1933-1934. https://doi.org/10.1001/jama.2021.5283Grimstad, T., & Myrseth, P. (2011, 6-8 May 2011). Information governance as a basis for cross-sector e-services in public administration. 2011 International Conference on E-Business and E-Government (ICEE),Guardtime. (2019). EY, Sensyne Health and Guardtime to use AI and blockchain to link health care reimbursement and actual patient outcomes. Guardtime. https://guardtime.com/blog/ey-sensyne-health-and-guardtime-to-use-ai-and-blockchain-to-link-health-care-reimbursement-and-actual-patient-outcomesGuardtime. (2020). MEASURING OUTCOMES USING REAL WORLD EVIDENCE WITHOUT DATA SHARING. Guardtime. https://guardtime.com/healthGuardtime. (2022). VACCINEGUARD END TO END VISIBILITY FOR THE PHARMACEUTICAL VALUE CHAIN. Guardtime. https://guardtime.com/vaccineguardGuichard, F. (2017). Recent advances in metacommunities and meta-ecosystem theories [version 1; peer review: 2 approved]. F1000Research, 6(610). https://doi.org/10.12688/f1000research.10758.1H.Y., K., & J.-S., C. (2018). Data governance framework for big data implementation with NPS Case Analysis in Korea. Journal of Business and Retail Management Research, 12(3), 36 - 46.Haes, S. D., & Grembergen, W. V. (2005, 6-6 Jan. 2005). IT Governance Structures, Processes and Relational Mechanisms: Achieving IT/Business Alignment in a Major Belgian Financial Group. Proceedings of the 38th Annual Hawaii International Conference on System Sciences,Harrison, T. M., Pardo, T. A., & Cook, M. (2012). Creating open government ecosystems: A research and development agenda. Future Internet, 4(4), 900.Hasselgren, A., Kralevska, K., Gligoroski, D., Pedersen, S. A., & Faxvaag, A. (2020). Blockchain in healthcare and health sciences—A scoping review. International Journal of Medical Informatics, 134, 104040. https://doi.org/https://doi.org/10.1016/j.ijmedinf.2019.104040Heath, M. L., & Porter, T. H. (2019). Physician leadership and health information exchange: literature review. BMJ health & care informatics, 26(1), e100080. https://doi.org/10.1136/bmjhci-2019-100080Heimstädt, M., Saunderson, F., & Heath, T. (2014). Conceptualizing open data ecosystems: A timeline analysis of open data development in the uk. CeDEM14: Conference for E-Democracy an Open Government,Heston, T. (2017). A Case Study in Blockchain Healthcare Innovation. Authorea Working Paper No AUTHOREA_213011_3643634.Holmes, J. H. (2016). Privacy, Security, and Patient Engagement: The Changing Health Data Governance Landscape. EGEMS (Washington, DC), 4(2), 1261-1261. https://doi.org/10.13063/2327-9214.1261Hovenga, E. J. S., & Grain, H. (2013). Health data and data governance. Article in Studies in Health Technology and Informatics, 193, 67-92.IBM. (2019). Aetna, Anthem, Health Care Service Corporation, PNC Bank and IBM announce collaboration to establish blockchain-based ecosystem for the healthcare industry. https://tinyurl.com/y3tej8x7Immonen, A., Palviainen, M., & Ovask, E. (2014). Requirements of an open data based business ecosystem. IEEE Access, 2, 88-103.Immonen, A., Palviainen, M., & Ovaska, E. (2014). Requirements of an open data based business ecosystem. IEEE Access, 2, 88-103.Jetley, G., & Zhang, H. (2019). Electronic health records in IS research: Quality issues, essential thresholds and remedial actions. Decision Support Systems, 126, 113137. https://doi.org/https://doi.org/10.1016/j.dss.2019.113137Ji, H., Yoo, S., Heo, E.-Y., Hwang, H., & Kim, J.-W. (2017). Technology and Policy Challenges in the Adoption and Operation of Health Information Exchange Systems. Healthcare informatics research, 23(4), 314-321. https://doi.org/10.4258/hir.2017.23.4.314Jones, K. H., Ford, E. M., Lea, N., Griffiths, L. J., Hassan, L., Heys, S., Squires, E., & Nenadic, G. (2020). Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper. JOURNAL OF MEDICAL INTERNET RESEARCH, 22(6), e16760-e16760. https://doi.org/10.2196/16760Jose Jacobo, Z., Vaquer, L., Jose-Norberto, M., MaciÁ, F., GarrigÓS, I., Fuster, A., & Jose Vicente, C. (2016). The university as an open data ecosystem. International Journal of Design & Nature and Ecodynamics, 11(3), 250-257. https://doi.org/http://dx.doi.org/10.2495/DNE-V11-N3-250-257Khatri, V., & Brown, C. V. (2010). Designing data governance. Commun. ACM, 53(1), 148–152. https://doi.org/10.1145/1629175.1629210Kim, E., Rubinstein, S. M., Nead, K. T., Wojcieszynski, A. P., Gabriel, P. E., & Warner, J. L. (2019). The Evolving Use of Electronic Health Records (EHR) for Research. Seminars in Radiation Oncology, 29(4), 354-361. https://doi.org/https://doi.org/10.1016/j.semradonc.2019.05.010Kloss, L. L. (2013). Leading innovation in enterprise information governance. J AHIMA, 84(9), 34-38.Kruse, C. S., Kristof, C., Jones, B., Mitchell, E., & Martinez, A. (2016). Barriers to Electronic Health Record Adoption: a Systematic Literature Review. Journal of Medical Systems, 40(12), 252-252. https://doi.org/10.1007/s10916-016-0628-9Kuo, T.-T., Kim, H.-E., & Ohno-Machado, L. (2017). Blockchain distributed ledger technologies for biomedical and health care applications. Journal of the American Medical Informatics Association, 24(6), 1211-1220. https://doi.org/10.1093/jamia/ocx068Kuo, T.-T., Rojas, H. Z., & Ohno-Machado, L. (2019). Comparison of blockchain platforms: a systematic review and healthcare examples. JOURNAL OF THE AMERICA MEDICAL INFORMATICS ASSOCIATION, 26(5), 462–478. https://doi.org/10.1093/jamia/ocy185Kvale, S. (2011). Introduction to Interview Research. SAGE Publications, Ltd https://doi.org/https://dx.doi.org/10.4135/9781849208963Lam, K., Iqbal, F. M., Purkayastha, S., & Kinross, J. M. (2021). Investigating the Ethical and Data Governance Issues of Artificial Intelligence in Surgery: Protocol for a Delphi Study. JMIR research protocols, 10(2), e26552-e26552. https://doi.org/10.2196/26552Landi, H. (2019). Aetna, IBM launching new blockchain healthcare network. Fierce Healthcare. https://www.fiercehealthcare.com/health-tech/progyny-boosts-profit-projections-2022-more-employers-eye-fertility-benefitsLaney, D. (2001). 3D data management: Controlling data volume, velocity and variety (META Group Research Note, Issue.Lee, Y., Madnick, S. E., Wang, R. Y., Wang, F., & Zhang, H. (2014). A Cubic Framework for the Chief Data Officer: Succeeding in a World of Big Data. Massachusetts Institute of Technology. Engineering Systems Division. http://hdl.handle.net/1721.1/103027Leeming, G., Cunningham, J., & Ainsworth, J. (2019). A Ledger of Me: Personalizing Healthcare Using Blockchain Technology [Review]. Frontiers in Medicine, 6. https://doi.org/10.3389/fmed.2019.00171Liaw, S. T., Pearce, C., Liyanage, H., Liaw, G. S., & de Lusignan, S. (2014). An integrated organisation-wide data quality management and information governance framework: theoretical underpinnings. Inform Prim Care, 21(4), 199-206. https://doi.org/10.14236/jhi.v21i4.87Liive, R. (2020). How the world’s leading blockchain company Guardtime turns trust into digital truth from its Tallinn office. Life in Estonia. https://investinestonia.com/how-the-worlds-leading-blockchain-company-guardtime-turns-trust-into-digital-truth-from-its-tallinn-office/Lindman, J., Kinnari, T., & Rossi, M. (2016). Business roles in the emerging open-data ecosystem. IEEE Software, 33(5), 54-59.Linn, L. A., & Martha B. Koo, M. D. (2016). Blockchain For Health Data and Its Potential Use in Health IT and Health Care Related ResearchLo, Y.-S., Yang, C.-Y., Chien, H.-F., Chang, S.-S., Lu, C.-Y., & Chen, R.-J. (2019). Blockchain-Enabled iWellChain Framework Integration With the National Medical Referral System: Development and Usability Study. JOURNAL OF MEDICAL INTERNET RESEARCH, 21(12), e13563-e13563. https://doi.org/10.2196/13563Lu, C., Batista, D., Hamouda, H., & Lemieux, V. (2020). Consumers` Intentions to Adopt Blockchain-Based Personal Health Records and Data Sharing: Focus Group Study. JMIR formative research, 4(11), e21995-e21995. https://doi.org/10.2196/21995Mackey, T. K., Kuo, T.-T., Gummadi, B., Clauson, K. A., Church, G., Grishin, D., Obbad, K., Barkovich, R., & Palombini, M. (2019). ‘Fit-for-purpose?’ – challenges and opportunities for applications of blockchain technology in the future of healthcare. BMC Medicine, 17(1), 68. https://doi.org/10.1186/s12916-019-1296-7Malhotra, A., O’Neill, H., & Stowell, P. (2022). Thinking strategically about blockchain adoption and risk mitigation. Business Horizons, 65(2), 159-171. https://doi.org/https://doi.org/10.1016/j.bushor.2021.02.033Marco Iansiti, R. L. (2004). Strategy as Ecology. Harvard Business Review Home. https://hbr.org/2004/03/strategy-as-ecologyMattaini, M. A., & Meyer, C. H. (2002). The ecosystems perspective: Implications for practice. Foundations of social work practice: A graduate text, 3.McGhin, T., Choo, K.-K. R., Liu, C. Z., & He, D. (2019). Blockchain in healthcare applications: Research challenges and opportunities. Journal of Network and Computer Applications, 135, 62-75. https://doi.org/https://doi.org/10.1016/j.jnca.2019.02.027Meinert, E., Alturkistani, A., Foley, K. A., Osama, T., Car, J., Majeed, A., Van Velthoven, M., Wells, G., & Brindley, D. (2019). Blockchain Implementation in Health Care: Protocol for a Systematic Review. JMIR research protocols, 8(2), e10994-e10994. https://doi.org/10.2196/10994Mercado-Lara, E., & Gil-Garcia, J. R. (2014). Open government and data intermediaries: the case of aiddata. the 15th Annual International Conference on Digital Government Research,Merriam, S. B. (2002). Introduction to qualitative research. John Wiley & Sons, Inc.Miller, J. (2021). How Blockchain Can Be Used for Personal Health Record Storage and Security: OJNI. On - Line Journal of Nursing Informatics, 25(2). https://login.autorpa.lib.nccu.edu.tw/login?url=https://www.proquest.com/scholarly-journals/how-blockchain-can-be-used-personal-health-record/docview/2621687383/se-2http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=https://nccu.primo.exlibrisgroup.com/openurl/886NCCU_INST/886NCCU_INST:886NCCU_INST?url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&genre=article&sid=ProQ:ProQ%3Ahealthcompleteshell&atitle=How+Blockchain+Can+Be+Used+for+Personal+Health+Record+Storage+and+Security%3A+OJNI&title=On+-+Line+Journal+of+Nursing+Informatics&issn=10899758&date=2021-07-01&volume=25&issue=2&spage=&au=Miller%2C+J&isbn=&jtitle=On+-+Line+Journal+of+Nursing+Informatics&btitle=&rft_id=info:eric/&rft_id=info:doi/Milne, R., & Brayne, C. (2020). We need to think about data governance for dementia research in a digital era. Alzheimer`s research & therapy, 12(1), 17-17. https://doi.org/10.1186/s13195-020-0584-yMithani, S. S., Bota, A. B., Zhu, D. T., & Wilson, K. (2022). A scoping review of global vaccine certificate solutions for COVID-19. Human Vaccines & Immunotherapeutics, 18(1), 1-12. https://doi.org/10.1080/21645515.2021.1969849Moore, J. F. (1993). Predators and prey: a new ecology of competition. Harv Bus Rev, 71(3), 75-86.Morabito, V. (2015). Big Data and Analytics. Strategic and Organizational Impacts. https://doi.org/10.1007/978-3-319-10665-6Mosley, M., Brackett, M. H., Earley, S., & Henderson, D. (2013). DAMA guide to the data management body of knowledge [2010]. Technics Publications.Newman, D., & Logan, D. (2006). Governance Is an Essential Building Block for Enterprise Information ManagementNomura, S., Sakamoto, H., Ishizuka, A., Katsuma, Y., Akashi, H., & Miyata, H. (2020). Ongoing debate on data governance principles for achieving Universal Health Coverage: a proposal to post-G20 Osaka Summit meetings. Global health action, 13(1), 1859822-1859822. https://doi.org/10.1080/16549716.2020.1859822NORTAL. (2021a). Digital Discussion: the likelyhood of digitalizing the U.S. healthcare ecosyste. NORTAL. https://nortal.com/blog/digital-discussion-digital-healthcare/NORTAL. (2021b). Helping to restore travel once again. NORTAL HQ. https://nortal.com/blog/helping-to-restore-travel-once-again/Novikov, S. P., Kazakov, O. D., Kulagina, N. A., & Azarenko, N. Y. (2018, 24-28 Sept. 2018). Blockchain and Smart Contracts in a Decentralized Health Infrastructure. 2018 IEEE International Conference "Quality Management, Transport and Information Security, Information Technologies" (IT&QM&IS),Ogden, G., Bergström;, R., & Aavik, A. (2019). Guardtime Health White Paper (Guardtime Health Issue. https://m.guardtime.com/files/Guardtime_whitepaper_A4_april_web.pdfOjo, A., & Adebayo, S. (2017). Blockchain as a Next Generation Government Information Infrastructure: A Review of Initiatives in D5 Countries. In A. Ojo & J. Millard (Eds.), Government 3.0 – Next Generation Government Technology Infrastructure and Services: Roadmaps, Enabling Technologies & Challenges (pp. 283-298). Springer International Publishing. https://doi.org/10.1007/978-3-319-63743-3_11Oliveira, M. I. S., & Lóscio, B. F. (2018). What is a data ecosystem? Proceedings of the 19th Annual International Conference on Digital Government Research: Governance in the Data Age, Delft, The Netherlands. https://doi.org/10.1145/3209281.3209335ONC. (2019). What is an electronic health record (EHR)? The Office of the National Coordinator for Health Information Technology. https://www.healthit.gov/faq/what-electronic-health-record-ehrOtto, B., Wende, K., Schmidt, A., & Osl, P. (2007). Research Platform Alexandria 18th Australasian Conference on Information Systems (ACIS),Panwar, A., Bhatnagar, V., Khari, M., Salehi, A. W., & Gupta, G. (2022). A Blockchain Framework to Secure Personal Health Record (PHR) in IBM Cloud-Based Data Lake. Computational Intelligence and Neuroscience, 2022, 3045107. https://doi.org/10.1155/2022/3045107Payne, T. H., Lovis, C., Gutteridge, C., Pagliari, C., Natarajan, S., Yong, C., & Zhao, L.-P. (2019). Status of health information exchange: a comparison of six countries. Journal of global health, 9(2), 0204279-0204279. https://doi.org/10.7189/jogh.09.020427Pike, & Capobianco. (2020). Antitrust and the trust machine. http://www.oecd.org/daf/competition/antitrust-and-the-trust-machine-2020.pdfPollock, R. (2011). Building the (open) data ecosystem. Open Knowledge Foundation Blog. https://blog.okfn.org/2011/03/31/building-the-open-data-ecosystem/POOLA, G. (2018). Why you should think twice before jumping on the blockchain bandwago. Nortal. https://nortal.com/blog/think-before-jumping-blockchain/Porsdam Mann, S., Savulescu, J., Ravaud, P., & Benchoufi, M. (2020). Blockchain, consent and prosent for medical research. Journal of medical ethics, 47(4), 244-250. https://doi.org/10.1136/medethics-2019-105963Price, W. N., 2nd, & Cohen, I. G. (2019). Privacy in the age of medical big data. Nature medicine, 25(1), 37-43. https://doi.org/10.1038/s41591-018-0272-7Qin Wang, R. L., Qi Wang,Shiping Chen. (2021). Non-Fungible Token (NFT): Overview, Evaluation, Opportunities and Challenges. CoRR. https://arxiv.org/abs/2105.07447Quito, A. (2021). More than 450 airlines can now use IBM’s blockchain-based vaccine passport. QUARTZ. https://qz.com/2036529/more-than-450-airlines-can-now-use-ibms-digital-health-pass/Ramelson, H., Nederlof, A., Karmiy, S., Neri, P., Kiernan, D., Krishnamurthy, R., Allen, A., & Bates, D. W. (2018). Closing the loop with an enhanced referral management system. Journal of the American Medical Informatics Association : JAMIA, 25(6), 715-721. https://doi.org/10.1093/jamia/ocy004Rasouli, M. R., Angappa Gunasekaran, D. N. D., Trienekens, J. J. M., Kusters, R. J., & Grefen, P. W. P. J. (2016). Information governance requirements in dynamic business networking. Industrial Management & Data Systems, 116(7), 1356-1379. https://doi.org/10.1108/imds-06-2015-0260Richesson, R. L. (2020). Learning health systems, embedded research, and data standards-recommendations for healthcare system leaders. JAMIA open, 3(4), 488-491. https://doi.org/10.1093/jamiaopen/ooaa046Roman-Belmonte, J. M., De la Corte-Rodriguez, H., & Rodriguez-Merchan, E. C. (2018). How blockchain technology can change medicine. Postgraduate Medicine, 130(4), 420-427. https://doi.org/10.1080/00325481.2018.1472996Romero, R. A., & Young, S. D. (2022). Ethical perspectives in sharing digital data for public health surveillance before and shortly after the onset of the Covid-19 pandemic. Ethics & Behavior, 32(1), 22-31. https://doi.org/10.1080/10508422.2021.1884079Rosenbaum, S. (2010). Data Governance and Stewardship: Designing Data Stewardship Entities and Advancing Data Access. Health Services research, 45(5), 1442-1455. https://doi.org/ https://doi.org/10.1111/j.1475-6773.2010.01140.xRoth, C. J., Lannum, L. M., & Joseph, C. L. (2016). Enterprise Imaging Governance: HIMSS-SIIM Collaborative White Paper. JOURNAL OF DIGITAL IMAGING, 29(5), 539–546. https://doi.org/10.1007/s10278-016-9883-zRubin, G. D., & Abramson, R. G. (2018). Creating Value through Incremental Innovation: Managing Culture, Structure, and Process. Radiology, 288(2), 330-340. https://doi.org/10.1148/radiol.2018171239Sadoughi, F., Nasiri, S., & Ahmadi, H. (2018). The impact of health information exchange on healthcare quality and cost-effectiveness: A systematic literature review. Computer Methods and Programs in Biomedicine, 161, 209-232. https://doi.org/https://doi.org/10.1016/j.cmpb.2018.04.023Schalkwyk, F. V., Willmers, M., & McNaughton, M. (2016). Viscous open data: The roles of intermediaries in an open data ecosystem. Information Technology for Development, 22(sup1), 68–83.Schroeder, S. A., & Frist, W. (2013). Phasing Out Fee-for-Service Payment. the New England journal of medicine, 368, 2029-2032. https://doi.org/10.1056/NEJMsb1302322Shabani, M. (2019). Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems? Journal of the American Medical Informatics Association, 26(1), 76-80. https://doi.org/10.1093/jamia/ocy149Shae, Z. Y., & Tsai, J. J. P. (2021, 13-15 Dec. 2021). On the Design of Medical Data Ecosystem for Improving Healthcare Research and Commercial Incentive. 2021 IEEE Third International Conference on Cognitive Machine Intelligence (CogMI),Sharon, T., & Lucivero, F. (2019). Introduction to the Special Theme: The expansion of the health data ecosystem – Rethinking data ethics and governance. Big Data & Society, 6(2). https://doi.org/https://doi.org/10.1177/2053951719852969Shepherd, E., & West, V. (2003). Are ISO 15489‐1:2001 and ISAD(G) compatible? Part 1. Records Management Journal, 13(1).Silverman, D. (2020). Qualitative Research. SAGE.Spence, P. (2022). How you can create value in an intelligent health ecosystem. EY Global Health Sciences and Wellness Industry. https://www.ey.com/en_gl/life-sciences/how-you-can-create-value-in-an-intelligent-health-ecosystemSung, S.-F., Hsieh, C.-Y., & Hu, Y.-H. (2020). Two Decades of Research Using Taiwan’s National Health Insurance Claims Data: Bibliometric and Text Mining Analysis on PubMed. J Med Internet Res, 22(6), e18457. https://doi.org/10.2196/18457Tallon, P. P., Ramirez, R. V., & Short, J. E. (2013). The Information Artifact in IT Governance: Toward a Theory of Information Governance. Journal of Management Information Systems 30(3), 141-178. https://doi.org/https://doi.org/10.2753/MIS0742-1222300306Tan, L., Tivey, D., Kopunic, H., Babidge, W., Langley, S., & Maddern, G. (2020). Part 2: Blockchain technology in health care. ANZ J Surg, 90(12), 2415-2419. https://doi.org/10.1111/ans.16455Taylor, T. (2018). What does the Hancock Health Hack tell us about remote vendor access? Secure Link. https://www.securelink.com/blog/hancock-health-hack-tell-us-remote-vendor-access/Thomas, G. (2006). Alpha males and data disasters : the case for data governance. Orlando, FL : Brass Cannon Press, 2006.Tiwana, A., Konsynski, B., & Venkatraman, N. (2014). Special Issue: Information Technology and Organizational Governance: The IT Governance Cube. Journal of Management Information Systems, 30(3), 7-12. https://doi.org/10.2753/MIS0742-1222300301Tseng, C. H., Chen, R.-J., Tsai, S.-Y., Wu, T.-R., Tsaur, W.-J., Chiu, H.-W., Yang, C.-Y., & Lo, Y.-S. (2022). Exploring the COVID-19 Pandemic as a Catalyst for Behavior Change Among Patient Health Record App Users in Taiwan: Development and Usability Study. J Med Internet Res, 24(1), e33399. https://doi.org/10.2196/33399Velmovitsky, P. E., Bublitz, F. M., Fadrique, L. X., & Morita, P. P. (2021). Blockchain Applications in Health Care and Public Health: Increased Transparency. JMIR Med Inform, 9(6), e20713. https://doi.org/10.2196/20713Vest, J. R., Jr., T. R. C., & Kaushal, R. (2013). Challenges, Alternatives, and Paths to Sustainability for Health Information Exchange Efforts. Journal of Medical Systems, 37.Vimalananda, V. G., Gupte, G., Seraj, S. M., Orlander, J., Berlowitz, D., Fincke, B. G., & Simon, S. R. (2015). Electronic consultations (e-consults) to improve access to specialty care: a systematic review and narrative synthesis. J Telemed Telecare, 21(6), 323-330. https://doi.org/10.1177/1357633x15582108Washington, L. (2015). Information Governance Offers a Strategic Approach for Healthcare (2015 Update). J AHIMA 86(11).Weber, K., Otto, B., & Österle, H. (2009). One Size Does Not Fit All---A Contingency Approach to Data Governance. J. Data and Information Quality, 1(1), Article 4. https://doi.org/10.1145/1515693.1515696Weller, A. (2008). Data governance: Supporting datacentric risk management. Journal of Securities Operations and Custody, 1(3), 250-262.Williams, C., Mostashari, F., Mertz, K., Hogin, E., & Atwal, P. (2012). From the Office of the National Coordinator: the strategy for advancing the exchange of health information. Health affairs, 31(3), 886. https://doi.org/10.1377/hlthaff.2011.1314Winter, J. S., & Davidson, E. (2019). Big data governance of personal health information and challenges to contextual integrity. The Information Society, 35(1), 36-51. https://doi.org/10.1080/01972243.2018.1542648Wu, T.-Y., Majeed, A., & Kuo, K. N. (2010). An overview of the healthcare system in Taiwan. London journal of primary care, 3(2), 115-119. https://doi.org/10.1080/17571472.2010.11493315Yaqoob, I., Salah, K., Jayaraman, R., & Al-Hammadi, Y. (2021). Blockchain for healthcare data management: opportunities, challenges, and future recommendations. Neural Computing and Applications. https://doi.org/10.1007/s00521-020-05519-wYi, L., Hao, A., Hu, M., Huang, P., Yuan, H., & Xing, M. (2015). Construction and Application of a Refined Hospital Management Chain. Cell Biochemistry and Biophysics, 72(1), 19-22. https://doi.org/10.1007/s12013-014-0395-5Zhang, P., White, J., Schmidt, D. C., Lenz, G., & Rosenbloom, S. T. (2018). FHIRChain: Applying Blockchain to Securely and Scalably Share Clinical Data. Computational and Structural Biotechnology Journal, 16, 267-278. https://doi.org/https://doi.org/10.1016/j.csbj.2018.07.004Zhao, Y. (2017). Research on Enterprise Flat Management Mode under the Network Economy circumstance 9th International Economics, Management and Education Technology Conference, Taiyuan, China.Zheng, K., Liu, Y., Dai, C., Duan, Y., & Huang, X. (2018, 19-21 Oct. 2018). Model Checking PBFT Consensus Mechanism in Healthcare Blockchain Network. 2018 9th International Conference on Information Technology in Medicine and Education (ITME),Zhuang, Y., Chen, Y.-W., Shae, Z.-Y., & Shyu, C.-R. (2020). Generalizable Layered Blockchain Architecture for Health Care Applications: Development, Case Studies, and Evaluation. JOURNAL OF MEDICAL INTERNET RESEARCH, 22(7). https://doi.org/10.2196/19029Zhuang, Y., Sheets, L. R., Chen, Y. W., Shae, Z. Y., Tsai, J. J. P., & Shyu, C. R. (2020). A Patient-Centric Health Information Exchange Framework Using Blockchain Technology. IEEE Journal of Biomedical and Health Informatics, 24(8), 2169-2176. https://doi.org/10.1109/JBHI.2020.2993072Zuiderwijk, A., Janssen, M., Kaa, G. v. d., & Poulis, K. (2016). The wicked problem of commercial value creation in open data ecosystems: Policy guidelines for governments. Inf. Polity, 21, 223-236. zh_TW dc.identifier.doi (DOI) 10.6814/NCCU202200758 en_US
