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題名 基因資訊運用管制政策工具之研究
作者 蔣佳雯
貢獻者 施能傑
蔣佳雯
關鍵詞 基因資訊
政策工具
基因歧視
基因隱私
日期 2002
上傳時間 14-Sep-2009 13:01:44 (UTC+8)
摘要 基因資訊可能使得個人與外界間的互動產生風險與不確定的情形,也就是擁有這樣資訊的個人若得知自己身上帶著有缺陷的基因,或是可能有某種疾病的家族性遺傳時,個人往往基於保護自己的前提下而不願意去公開或是刻意隱瞞這樣的資訊,這也就是基因資訊不對稱的情形。基因資訊所引發的問題可以概括為兩種:(1)基因資訊隱私:個人本身為基因資訊的唯一擁有者,雇主因為掌握不到基因資訊,在人力資源管理上可能會使得雇主雇用到不適任的員工;另外,保險公司若沒有基因資訊,則它將在原本須承擔的風險之外再承受更多額外的風險成本。(2)基因資訊公開:若個人的基因資訊得以公開或是被他人所取得,則一旦這樣的資訊被不當使用,在工作職場上,雇主可能會將患有某種疾病或潛藏某種疾病基因的人排除在職場之外;另外一種情形是發生在保險,身上帶有某種基因缺陷的個人,往往是保險公司所不願提供保險的對象 。
     準此,因著基因資訊所致之基因隱私與基因歧視情形的發生以及對於個人在工作權以及財產權(保險)上的不利益,或是因為基因資訊不對稱,造成雇主或是保險公司的相對弱勢,擬於本論文研究探討的問題敘述如下:
     (1) 基因資訊運用管制的目的?基因資訊運用的類型為何?基因資訊運用可能引發的議題有哪些?
     (2) 隨著基因科技的進展,透過基因測試的進行,可以幫助人類瞭解自己的基因組成。但這樣的基因資訊如運用在侵害個人隱私或是因此而遭到差別對待時,又該如何確保基因隱私權以及避免基因歧視?
     (3) 為確保基因隱私權以及避免基因歧視,政府或管制機關該如何設計與選擇管制基因資訊運用的有效政策工具?
"目次
     
     第一章 緒論 1
     第一節 研究背景 1
     第二節 研究問題 4
     第三節 研究方法與研究範圍限制 5
     第四節 重要名詞界定 7
     第二章 基因資訊運用管制的立論 11
     第一節 基因資訊運用暨其對稱性 11
     第二節 政府介入基因資訊管制的立論基礎 15
     第三節 基因資訊管制的立論理由 25
     第四節 基因資訊運用管制之政策辯證 31
     第三章 基因隱私保護的管制面向 35
     第一節 基因隱私之相關管制議題 35
     第二節 基因隱私權的保障 54
     第四章 減少基因歧視的管制面向 65
     第一節 基因歧視禁止之理論探討 65
     第二節 英美關於基因歧視立法的介紹 72
     第五章 基因資訊運用管制政策工具類型與選擇 79
     第一節 基因資訊運用管制的政策工具 79
     第二節 基因資訊運用管制政策工具選擇的評估標準 90
     第六章 基因資料庫與我國現行的基因資訊管制機制 107
     第一節 政策規劃 107
     第二節 政策工具的配套與評估 116
     第三節 保險領域基因資訊管制的建議 126
     第七章 結論與建議 133
     第一節 研究發現 133
     第二節 研究建議 136
     參考書目 147
參考文獻 參考書目
牛頓編輯部
民89 基因大狂潮,台北:牛頓。
毛慶生、朱敬一等 (二版)
民88 經濟學,台北:華泰,頁237-279。
江晃榮
民90 不可思議的生物科技,台北:世茂。
朱敬一、戴華
民86 教育鬆綁,台北:遠流,頁7-30。
吳定
民83 公共政策(全),台北:華視文化事業。
1994 Regulation: Legal Form and Economic Theory. Oxford: Clarendon Press.
Pagnataro, Marisa Anne
2001 “Genetic Discrimination and the Workplace: Employee’s Right to Privacy v. Employer’s Need to Know”, American Business Law Journal, 39: 139-185.
Roberts, Jeffery Scott
1999 Medical Decision Making in Individual at Risk for Alzheimer’s Disease: The Case of Predictive Testing, Ph.D. Dissertation, University of Michigan (Unpublished).
Rothstein, Mark A.
1998 “Genetic Privacy and Confidentiality: Why They Are So Hard to Protect”, Journal of Law, Medicine, and Ethics, 26:198-204.
Rothstein, Mark A., Besty D. Gelb and Steven G. Craig
1998 “Protecting Genetic Privacy by Permitting Employer Access only to Job-Related Employee Medical Information: Analysis of Unique Minnesota Law”, American Journal of Law & Medicine, 24(4): 399-416.
何建志
Beckwith, Jon and Joseph S. Alper
Rothenberg, Karen et al.
1997 “Genetic Information and the Workplace: Legislative Approaches and Policy Challenges”, Science, 275: 1755-1757.
Salamon, Lester M.
1989 Beyond Privatization: The Tool of Government Action. Washington, D.C.: The Urban Institution Press.
2002 The Tools of Government: A Guide to new Governance. New York: Oxford University Press.
Savas, Emanuel S
1987 Privatization : Tthe Key to Better Government. Chatham, N.J. : Chatham House Publishers.
Secretary’s Advisory Committee on Testing, SACGT
2000 Enhancing the Oversight of Genetic Tests: Recommendations of the SACGT. Source: http://www4.od.nih.gov/oba/sacgt.htm
Schneider, Anne I. and Helen M. Ingram
1998 “Reconsidering Genetic Antidiscrimination Legislation”, Journal of Law, Medicine & Ethics, 26: 205-210.
民89a 「就業基因歧視的法理問題與因應之道」,發表於第一屆「基因科技之法律管制體系與社會衝擊研究」研討會 (2000.03.12),頁1-28。
1990 “Behavioral Assumptions of Policy Tools”, Journal of Politics, 52: 510-529.
Shapira, Zur
1997 Organizational Decision Making, New York: Cambridge University Press.
Sparrow, Malcolm K.
2000 The Regulatory Craft: Controlling Risks, Solving Problems, and Managing Compliance. Washington D.C.: Brookings Institution Press.
Strum, Philippa
1998 Privacy: The Debate in the United States Since 1945. Orlando, Tx: Harcourt Brace & Company.
Thompson, Alison K. and Ruth F. Chadwick
1999 Genetic Information: Acquisition, Access, and Control. New York: Kluwer Academic.
Bemelmans-Videc, Marie-Louise, Ray C. Rist and Evert Vedung
Thompson, B.
民89b 「基因隱私法範本」,載於生物科技與法律研究通訊第七期,頁6-21。
1998 “Time for Reassessment of Use of All Medical Information by UK Insurers”, The Lancet, 352: 1216-1218.
Troy, Edwin S. Flores
1997 “The Genetic Privacy Act: An Analysis of Privacy and Research Concerns”, Journal of Law, Medicine & Ethics, 25: 256-272.
Vertzberger, Yaacov Y. I.
1998 Risk Taking and Decisionmaking: Foreign Military Intervention Decisions. Stanford, CA: Stanford University Press.
Vivacqua, Judy
2000 Genetics and Insurance: A Question of Justice. Master Dissertation, University of St. Michael’s College (Unpublished).
Warfel, William J., Peter Mikolaj and Alex Hamwi
1998 Carrots, Sticks & Sermons: Policy Instruments & Their Evaluation. New Brunswick, New Jersey: Transaction Publishers.
1998 “Genetic Information and Risk Classification in Individual Life and Health Insurance”, Journal of American Society of CLU & ChFC, 44-52.
Wilson, James Q.
民91 「基因資訊與保險:社會政策與法理分析」,發表於第三屆「基因科技與法律研討會」 (2002.6.27),頁1-32。
1980 The Politics of Regulation. New York: Basic Books.
Wong, Josephine G. and Felice Lieh-Mak
2001 “Genetic Discrimination and Mental Illness: A Case Report ”, Journal of Medical Ethics, 27: 393-397.
Woodside, Kenneth
1986 “Policy Instrument and the Study if Public Policy”, Canadian Journal of Political Science, 19: 775-793.
Other Links
─英文網站
Bennett, Colin J.
http://www.ama-assn.org/
http://www.bio.org/bioethics/discrimination.asp
http://clinton4.nara.gov/WH/New/html/20000208.html
林淑卿
http://www.eeoc.gov/35th/thelaw/13145.html
http://frwebgate.access.gpo.gov/
http://www.geneticalliance.org/
http://www.girinst.org/
http://www.genome.gov/
http://www.house.gov/
1992 Regulating Privacy: Data Protection and Policy in Europe and United States. New York: Cornell University Press.
http://www.law.pitt.edu/mdethics/
http://www.nahu.org/government/issues/genetic_discrimination/
http://netec.mcc.ac.uk/BibEc/data/Papers/fthkobeeb112.html
http://www.ornl.gov/hgmis/elsi/elsi.html
民86 毒品防制政策之問題界定:社會建構的觀點,政大公行所碩士論文,未出版。
http://www.senate.gov/~labor/hearings/july00hrg/072000wt/072000wt.htm
─中文網站
http://www.bio.idv.tw/
http://biolaw.law.ntu.edu.tw/
http://forums.chinatimes.com.tw/special/gene/main.htm
1998 “Regulating the Computer: Comparing Policy Instruments in Europe and the United States”, European Journal of Political Research, 16: 437-466.
http://gcg.nhri.org.tw/gcg/gcg-intro.htm
http://gene-program-office.mc.ntu.edu.tw/
林子儀
民90 「從保障隱私權觀點論基因資訊的利用與法的規制」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-26。
林國明
民90 「風險政治、公共領域與基因科技政策的民主參與」,發表於第二屆基因科技之法律管制體系與社會衝擊研究研討會 (2001.6.10),頁1-22。
施能傑
民88 「政策執行的要素分析」,載於研考雙月刊,第23卷第4期,頁6-14。
段重祺
民81 歐美四國醫療政策之比較,台北﹕保成文化事業
Blanck, Peter David
范宜芳
民88 美國「失依兒童家庭救助」計畫之研究:政策變遷的觀點,政大公行所碩士論文,未出版。
紀佳伶
民87 電子化/網路化政府資訊內容隱私權之研究,政大公行所碩士論文,未出版。
洪鴻智
民89 「公共選擇與環境風險設施管制政策工具的選擇」,載於都市與計劃,第27卷第一期,頁47-63。
時報文教基金會
民90 打開潘朵拉的盒子?─基因科技的人文議題,台北:時報。
財團法人台灣醫界聯盟基金會 & 行政院衛生署
民90 基因治療與臨床試驗研討會─務實取向的共識凝聚,台北。
2000 Employment Disability, and the Americans with Disabilities Act: Issues in Law, Public Policy, and Research. Evanston, Ill.: Northwestern University Press.
翁興利、施能傑、官有垣、鄭麗嬌
民87 公共政策,台北:空大。
翁秉霖、鄭信男、邱華賢譯 (Barnum原著)
民90 生物科技概論,台北:學富文化。
郭淑貞
民89 科技領域的風險決策之研究─以德國法為中心,台大法研所碩士論文,未出版。
許文源
民89 我國非法外勞管制政策之研究─政策執行理論之觀點,政大公行所博士論文,未出版。
陳櫻琴
民89 「管制革新之法律基礎與政策調適」,發表於中央研究院主辦管制革新學術研討會,頁1-48。
Bressers, Hans Th. A. & Laurence J. O’Toole, Jr.
陳恆鈞等譯 (Weimer & Vining原著)
民91 政策分析:概念與實踐,台北:韋伯文化。
黃明輝
民89 成本效益分析在我國行政法上應用可能性之研究,台北大學法研所碩士論文,未出版。
福田雅章
民90 「人類基因研究過程中之人權與人性尊嚴的保障─告知後同意是真能發揮作用」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-8。
葉俊榮
民82 環境政策與法律,台北:月旦,頁133-168。
民86 環境理性與制度抉擇,台北:三民。
民88a 「政府再造與制度興革:以環境影響評估為例」,載於經社法制論叢,第23期。
吳英明
民88b 全球環境議題─台灣觀點,台北:巨流,頁129-146
民89 行政法案例分析與研究方法,台北:元照。
民90 「生物科技法律人才與研究議題取向」,載於生物技術與法律研究通訊第九期,頁32-41。
雷文玫
民89 「歧視有理?美國管制商業健康保險運用基因資訊之研究」,載於中原財經法學第五期,頁433-465。
齊力文譯 (Davidson原著)
民90 生態經濟大狂潮,台北:經濟新潮。
蔡宗珍
民89a 「程序導向的基因科技立法必要性與其規範內涵初探」,載於生物科技與法律研究通訊第一期,頁1-6。
民89b 「基因科技法的規範架構初論」,收錄於2000年基因科技之法律管制體制與社會衝擊研究研討會資料,頁1-11。
1998 “The Selection of Policy Instruments: a Network-Based Perspective”, Journal of Public Policy, 18(3): 213-239.
民88c 「從憲法觀點論基因科技管制立法的基本課題」載於生命倫理與法律課程網站http://biolaw.law.ntu.edu.tw/BioInstitute/BioCourse.htm ,頁1-9。
民88d 「公法上之比例原則初論─以德國法的發展為中心─」,載於政大法學評論第62期,頁75-103。
民90 「基因科技安全管制法草案評析」,發表於第二屆基因科技之法律管制體系與社會衝擊研究研討會。
蔡宗珍譯
民89 「德國基因科技管制法 (下)」,載於生物科技與法律研究通訊第五期,頁33-41。
蔡宗珍校訂(賴志強、李佳玟譯)
民88 「德國基因科技管制法 (中)」,載於生物科技與法律研究通訊第三期,頁35-41。
蔡甫昌
民90 「基因治療與複製的倫理議題初探」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-15。
蔡宗羲
British Medical Association(BMA)
民84 「公共政策體制與放鬆管制的經濟分析」,載於經濟論壇,第1卷第一期,頁101-109。
劉昭博
民88 資訊不對稱性與政府投機行為之研究,政大公行所碩士論文,未出版。
鄭博仁、謝燦堂
民89 健康密碼:探索人類基因奧秘,台北:聯合文學。
賴志強、李佳玟譯
民88 「德國基因科技管制法 (上)」,收錄於生物科技與法律研究通訊第二期,頁38-46。
鍾芳樺
民89 「基因科技的風險問題─法律對基因科技的風險觀察與調控」,收錄於2000年基因科技之法律管制體制與社會衝擊研究研討會資料,頁1-13。
鍾芳樺、黃舒芃
1998 Human Genetics: Choice and Responsibility. New York: Oxford University Press.
民89 「德國與奧地利基因科技法之初步比較」,收錄於生物科技與法律研究通訊第五期,頁22-32。
Atkinson, Michael M. and Robert A. Nigol
1989 “Selecting Policy Instruments: Neo-Institutional and Rational Choice Interpretations of Automobile Insurance in Ontario”, Canadian Journal of Political Science, 22(1): 107-135.
Bardach, Eugene and R. A. Kagan
1982 Going by the Book: The Problem of Regulatory Unreasonableness”. Philadelphia: Temple University Press.
Bartels, Dianne Mary
2001 Genetics in Health Care: Ethical Challenges in Interactions of Family Systems and Health Systems. Ph.D. Dissertation, University of Minnesota (Unpublished).
Brown, Stuart M.
2003 Essentials of Medical Genomics. New Jersey: Wiley-Liss.
Clinton, William J.
2000 “Executive Order 13145─To Prohibit Discrimination in Federal Employment Based on Genetic Information”, Weekly Compilation of Presidential Documents, 36(6):244-247.
Colby, Jeremy A.
1998 “An Analysis of Genetic Discrimination Legislation Proposed by the 105th Congress”, American Journal of Law & Medicine, 34(4): 443-480.
Cooter, Robert and Thomas Ulen
民80 「從政府管制論環境保護管制」,載於中山社會科學季刊,第六卷第四期。
1997 Law and Economics. Reading, Massachusetts: Addison-Wesley.
Dunn, William
1991 Public Policy Analysis: An Introduction. Englewood Cliffs, New Jersey: Prentice Hall
Fischel, William A.
1995 Regulatory Takings: Law, Economics, and Politics. Cambridge, Mass.: Harvard University Press.
Frye-Penfold, Cynthia B.S.
2000 Responses from Genetic Counselors about the Potential of Insurance Discrimination in Cancer Genetic Counseling. Master Dissertation, Sarah Lawrence College(Unpublished).
Goldberg, Hene V., JD
2001 “Genetic Information Privacy and Discrimination”, Health Care Manager, 20(1): 19-28.
Green, Ronald M. and Mathew A. Thomas
李震山
1998 “DNA: Five Distinguishing Features for Policy Analysis”, Harvard Journal of Law & Technology, 11: 571.
Guasch, J. Luis and Robert W. Hahn
1999 “The Cost and Benefit of Regulation: Implications for Developing Countries”, The World Bank Observer, 14(1): 137-158.
Haider-Markel, Donald P.
1998 “The Politics of Social Regulatory Policy: State and Federal Hate Crime Policy and Implementation Effort”, Political Research Quarterly, 51(1): 69-88.
Harkness, Lorrie
2000 Ethics of Decisions in Public Schools: A Study on Principles Educational Leaders Use to Make Decisions When Faced With Moral Dilemmas Related to The Use of Genetic Technology. Ph.D. Dissertation, University of Colorado at Denver (Unpublished)
Harrington, L. K.
1996 “Ethics and Public Policy Analysis: Stakeholders’ Interests and Regulatory Policy”, Journal of Business Ethics,15: 373-382.
Harrison, E. Frank
民90 「基因資訊利用與基本權利保障─以資訊隱私權及研究自由為例」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-16。
1999 The Managerial Decision-Making Process. Boston: Houghton Mifflin Company.
HGC
2001 “Whose Hands on Your Genes: Analysis of Responses to the tick ox summary section”, http://www.hgc.gov.uk/bisiness_cosultation2.htm
Hill, Mark A. and Stephen S. Rich
2000 “ Genetic Privacy Laws and Patient’s Fear of Discrimination by Health Insurers: The View from Genetic Counselors”, Journal of Law, Medicine & Ethics, 28: 245-257.
Hood, Christopher C
1983 The Tools of Government. London: MacMillan.
Hubbard, Ruth and Elijah Wald
1999 Exploding the Gene Myth. Boston: Beacon Press.
Huggins, Rachel
李建良
2000 Can Genetic Justice Survive? DNA Technology and Social Control in the 21st Century. Master Dissertation, Department of Sociology and Anthropology, Concordia University Montreal, Quebec, Canada (Unpublished).
Josefson, Dwborah
2000 “Clinton Outlaws Genetic Discrimination in Federal Jobs”, British Medical Journal, 320: 468.
Kaveny, M. Cathleen
1999 “Jurisprudence and Genetics”, Theological Studies, 60: 135-147.
Keefer, Christopher M.
1999 “Bridging the Gap Between Life Insurer and Consumer in the Genetic Testing Era: The RF Proposal”, Indian Law Journal, 74: 1374-1397.
Kogelnik, Andreas Matthias
1998 Biological Information Management with Application to Human Genome Data. Ph.D. Dissertation, Georgia Institute of Technology (Unpublished).
Linders, Stephen H. and B. Guy Peters
民89 「法律制度與社會控制:法治國家中法律控制能力及其界限之問題初探」,收錄於林繼文編政治制度,頁49-94。
1990 “Instruments of Governments: Perceptions and Contexts”, Journal of Public Policy, 9(1): 35-58.
Long, Clarisa
1999 Genetic Testing and Use of Information. Washington D.C.: The AEI Press.
Low, Lowrence, Suzanne King, and Tom Wilkie
1998 “Genetic Discrimination in Life Insurance: Empirical Evidence From A Cross Sectional Survey of Genetic Support Groups in the UK”, British Medical Journal, 317:1632-1634.
Macklin, Ruth
“Privacy and Control of Genetic Information”.
http://www.bumc.bu.edu/www/sph/lw/pvl/book2/9-Privacy%20and%20Control.pdf
McDonald, Lee-Anne C.
2000 Multi-disease Genes: The Future of Genetic Counseling. Master Dissertation, Sarah Lawrence College (Unpublished).
杜默譯 (法蘭西斯•福山原著)
McKenzie, Donna M.
1999 Genetic Testing for Delayed Onset Disease: A Feminist Theological Virtue Approach. Ph.D. Dissertation, Berkley, C.A.(Unpublished).
Mcllroy, Elaine Christina
2001 Privacy, Confidentiality and Genetic Database: A Modified Rights Approach. Master Dissertation, Graduate Department of Law, University of Toronto, Canada (Unpublished).
Miller, Paul S.
1998 “Genetic Discrimination in the Workplace”, Journal of Law, Medicine, and Ethics, 26: 189-197.
Nossal, Gustav et al.
1990 Human Genetic Information: Science, Law and Ethics. New York: John Wiley & Sons.
Nutt, Paul C.
1992 Strategic Management of Public and Third Sector Organization: A Handbook for Leaders. San Francisco: Jossey-Bass.
民91 後人類未來,台北:時報。
Ogus, Anthony
描述 碩士
國立政治大學
公共行政研究所
89256018
91
資料來源 http://thesis.lib.nccu.edu.tw/record/#G0089256018
資料類型 thesis
dc.contributor.advisor 施能傑zh_TW
dc.contributor.author (Authors) 蔣佳雯zh_TW
dc.creator (作者) 蔣佳雯zh_TW
dc.date (日期) 2002en_US
dc.date.accessioned 14-Sep-2009 13:01:44 (UTC+8)-
dc.date.available 14-Sep-2009 13:01:44 (UTC+8)-
dc.date.issued (上傳時間) 14-Sep-2009 13:01:44 (UTC+8)-
dc.identifier (Other Identifiers) G0089256018en_US
dc.identifier.uri (URI) https://nccur.lib.nccu.edu.tw/handle/140.119/32057-
dc.description (描述) 碩士zh_TW
dc.description (描述) 國立政治大學zh_TW
dc.description (描述) 公共行政研究所zh_TW
dc.description (描述) 89256018zh_TW
dc.description (描述) 91zh_TW
dc.description.abstract (摘要) 基因資訊可能使得個人與外界間的互動產生風險與不確定的情形,也就是擁有這樣資訊的個人若得知自己身上帶著有缺陷的基因,或是可能有某種疾病的家族性遺傳時,個人往往基於保護自己的前提下而不願意去公開或是刻意隱瞞這樣的資訊,這也就是基因資訊不對稱的情形。基因資訊所引發的問題可以概括為兩種:(1)基因資訊隱私:個人本身為基因資訊的唯一擁有者,雇主因為掌握不到基因資訊,在人力資源管理上可能會使得雇主雇用到不適任的員工;另外,保險公司若沒有基因資訊,則它將在原本須承擔的風險之外再承受更多額外的風險成本。(2)基因資訊公開:若個人的基因資訊得以公開或是被他人所取得,則一旦這樣的資訊被不當使用,在工作職場上,雇主可能會將患有某種疾病或潛藏某種疾病基因的人排除在職場之外;另外一種情形是發生在保險,身上帶有某種基因缺陷的個人,往往是保險公司所不願提供保險的對象 。
     準此,因著基因資訊所致之基因隱私與基因歧視情形的發生以及對於個人在工作權以及財產權(保險)上的不利益,或是因為基因資訊不對稱,造成雇主或是保險公司的相對弱勢,擬於本論文研究探討的問題敘述如下:
     (1) 基因資訊運用管制的目的?基因資訊運用的類型為何?基因資訊運用可能引發的議題有哪些?
     (2) 隨著基因科技的進展,透過基因測試的進行,可以幫助人類瞭解自己的基因組成。但這樣的基因資訊如運用在侵害個人隱私或是因此而遭到差別對待時,又該如何確保基因隱私權以及避免基因歧視?
     (3) 為確保基因隱私權以及避免基因歧視,政府或管制機關該如何設計與選擇管制基因資訊運用的有效政策工具?
zh_TW
dc.description.abstract (摘要) "目次
     
     第一章 緒論 1
     第一節 研究背景 1
     第二節 研究問題 4
     第三節 研究方法與研究範圍限制 5
     第四節 重要名詞界定 7
     第二章 基因資訊運用管制的立論 11
     第一節 基因資訊運用暨其對稱性 11
     第二節 政府介入基因資訊管制的立論基礎 15
     第三節 基因資訊管制的立論理由 25
     第四節 基因資訊運用管制之政策辯證 31
     第三章 基因隱私保護的管制面向 35
     第一節 基因隱私之相關管制議題 35
     第二節 基因隱私權的保障 54
     第四章 減少基因歧視的管制面向 65
     第一節 基因歧視禁止之理論探討 65
     第二節 英美關於基因歧視立法的介紹 72
     第五章 基因資訊運用管制政策工具類型與選擇 79
     第一節 基因資訊運用管制的政策工具 79
     第二節 基因資訊運用管制政策工具選擇的評估標準 90
     第六章 基因資料庫與我國現行的基因資訊管制機制 107
     第一節 政策規劃 107
     第二節 政策工具的配套與評估 116
     第三節 保險領域基因資訊管制的建議 126
     第七章 結論與建議 133
     第一節 研究發現 133
     第二節 研究建議 136
     參考書目 147
-
dc.description.tableofcontents 目次
     
     第一章 緒論 1
     第一節 研究背景 1
     第二節 研究問題 4
     第三節 研究方法與研究範圍限制 5
     第四節 重要名詞界定 7
     第二章 基因資訊運用管制的立論 11
     第一節 基因資訊運用暨其對稱性 11
     第二節 政府介入基因資訊管制的立論基礎 15
     第三節 基因資訊管制的立論理由 25
     第四節 基因資訊運用管制之政策辯證 31
     第三章 基因隱私保護的管制面向 35
     第一節 基因隱私之相關管制議題 35
     第二節 基因隱私權的保障 54
     第四章 減少基因歧視的管制面向 65
     第一節 基因歧視禁止之理論探討 65
     第二節 英美關於基因歧視立法的介紹 72
     第五章 基因資訊運用管制政策工具類型與選擇 79
     第一節 基因資訊運用管制的政策工具 79
     第二節 基因資訊運用管制政策工具選擇的評估標準 90
     第六章 基因資料庫與我國現行的基因資訊管制機制 107
     第一節 政策規劃 107
     第二節 政策工具的配套與評估 116
     第三節 保險領域基因資訊管制的建議 126
     第七章 結論與建議 133
     第一節 研究發現 133
     第二節 研究建議 136
     參考書目 147
zh_TW
dc.language.iso en_US-
dc.source.uri (資料來源) http://thesis.lib.nccu.edu.tw/record/#G0089256018en_US
dc.subject (關鍵詞) 基因資訊zh_TW
dc.subject (關鍵詞) 政策工具zh_TW
dc.subject (關鍵詞) 基因歧視zh_TW
dc.subject (關鍵詞) 基因隱私zh_TW
dc.title (題名) 基因資訊運用管制政策工具之研究zh_TW
dc.type (資料類型) thesisen
dc.relation.reference (參考文獻) 參考書目zh_TW
dc.relation.reference (參考文獻) 牛頓編輯部zh_TW
dc.relation.reference (參考文獻) 民89 基因大狂潮,台北:牛頓。zh_TW
dc.relation.reference (參考文獻) 毛慶生、朱敬一等 (二版)zh_TW
dc.relation.reference (參考文獻) 民88 經濟學,台北:華泰,頁237-279。zh_TW
dc.relation.reference (參考文獻) 江晃榮zh_TW
dc.relation.reference (參考文獻) 民90 不可思議的生物科技,台北:世茂。zh_TW
dc.relation.reference (參考文獻) 朱敬一、戴華zh_TW
dc.relation.reference (參考文獻) 民86 教育鬆綁,台北:遠流,頁7-30。zh_TW
dc.relation.reference (參考文獻) 吳定zh_TW
dc.relation.reference (參考文獻) 民83 公共政策(全),台北:華視文化事業。zh_TW
dc.relation.reference (參考文獻) 1994 Regulation: Legal Form and Economic Theory. Oxford: Clarendon Press.zh_TW
dc.relation.reference (參考文獻) Pagnataro, Marisa Annezh_TW
dc.relation.reference (參考文獻) 2001 “Genetic Discrimination and the Workplace: Employee’s Right to Privacy v. Employer’s Need to Know”, American Business Law Journal, 39: 139-185.zh_TW
dc.relation.reference (參考文獻) Roberts, Jeffery Scottzh_TW
dc.relation.reference (參考文獻) 1999 Medical Decision Making in Individual at Risk for Alzheimer’s Disease: The Case of Predictive Testing, Ph.D. Dissertation, University of Michigan (Unpublished).zh_TW
dc.relation.reference (參考文獻) Rothstein, Mark A.zh_TW
dc.relation.reference (參考文獻) 1998 “Genetic Privacy and Confidentiality: Why They Are So Hard to Protect”, Journal of Law, Medicine, and Ethics, 26:198-204.zh_TW
dc.relation.reference (參考文獻) Rothstein, Mark A., Besty D. Gelb and Steven G. Craigzh_TW
dc.relation.reference (參考文獻) 1998 “Protecting Genetic Privacy by Permitting Employer Access only to Job-Related Employee Medical Information: Analysis of Unique Minnesota Law”, American Journal of Law & Medicine, 24(4): 399-416.zh_TW
dc.relation.reference (參考文獻) 何建志zh_TW
dc.relation.reference (參考文獻) Beckwith, Jon and Joseph S. Alperzh_TW
dc.relation.reference (參考文獻) Rothenberg, Karen et al.zh_TW
dc.relation.reference (參考文獻) 1997 “Genetic Information and the Workplace: Legislative Approaches and Policy Challenges”, Science, 275: 1755-1757.zh_TW
dc.relation.reference (參考文獻) Salamon, Lester M.zh_TW
dc.relation.reference (參考文獻) 1989 Beyond Privatization: The Tool of Government Action. Washington, D.C.: The Urban Institution Press.zh_TW
dc.relation.reference (參考文獻) 2002 The Tools of Government: A Guide to new Governance. New York: Oxford University Press.zh_TW
dc.relation.reference (參考文獻) Savas, Emanuel Szh_TW
dc.relation.reference (參考文獻) 1987 Privatization : Tthe Key to Better Government. Chatham, N.J. : Chatham House Publishers.zh_TW
dc.relation.reference (參考文獻) Secretary’s Advisory Committee on Testing, SACGTzh_TW
dc.relation.reference (參考文獻) 2000 Enhancing the Oversight of Genetic Tests: Recommendations of the SACGT. Source: http://www4.od.nih.gov/oba/sacgt.htmzh_TW
dc.relation.reference (參考文獻) Schneider, Anne I. and Helen M. Ingramzh_TW
dc.relation.reference (參考文獻) 1998 “Reconsidering Genetic Antidiscrimination Legislation”, Journal of Law, Medicine & Ethics, 26: 205-210.zh_TW
dc.relation.reference (參考文獻) 民89a 「就業基因歧視的法理問題與因應之道」,發表於第一屆「基因科技之法律管制體系與社會衝擊研究」研討會 (2000.03.12),頁1-28。zh_TW
dc.relation.reference (參考文獻) 1990 “Behavioral Assumptions of Policy Tools”, Journal of Politics, 52: 510-529.zh_TW
dc.relation.reference (參考文獻) Shapira, Zurzh_TW
dc.relation.reference (參考文獻) 1997 Organizational Decision Making, New York: Cambridge University Press.zh_TW
dc.relation.reference (參考文獻) Sparrow, Malcolm K.zh_TW
dc.relation.reference (參考文獻) 2000 The Regulatory Craft: Controlling Risks, Solving Problems, and Managing Compliance. Washington D.C.: Brookings Institution Press.zh_TW
dc.relation.reference (參考文獻) Strum, Philippazh_TW
dc.relation.reference (參考文獻) 1998 Privacy: The Debate in the United States Since 1945. Orlando, Tx: Harcourt Brace & Company.zh_TW
dc.relation.reference (參考文獻) Thompson, Alison K. and Ruth F. Chadwickzh_TW
dc.relation.reference (參考文獻) 1999 Genetic Information: Acquisition, Access, and Control. New York: Kluwer Academic.zh_TW
dc.relation.reference (參考文獻) Bemelmans-Videc, Marie-Louise, Ray C. Rist and Evert Vedungzh_TW
dc.relation.reference (參考文獻) Thompson, B.zh_TW
dc.relation.reference (參考文獻) 民89b 「基因隱私法範本」,載於生物科技與法律研究通訊第七期,頁6-21。zh_TW
dc.relation.reference (參考文獻) 1998 “Time for Reassessment of Use of All Medical Information by UK Insurers”, The Lancet, 352: 1216-1218.zh_TW
dc.relation.reference (參考文獻) Troy, Edwin S. Floreszh_TW
dc.relation.reference (參考文獻) 1997 “The Genetic Privacy Act: An Analysis of Privacy and Research Concerns”, Journal of Law, Medicine & Ethics, 25: 256-272.zh_TW
dc.relation.reference (參考文獻) Vertzberger, Yaacov Y. I.zh_TW
dc.relation.reference (參考文獻) 1998 Risk Taking and Decisionmaking: Foreign Military Intervention Decisions. Stanford, CA: Stanford University Press.zh_TW
dc.relation.reference (參考文獻) Vivacqua, Judyzh_TW
dc.relation.reference (參考文獻) 2000 Genetics and Insurance: A Question of Justice. Master Dissertation, University of St. Michael’s College (Unpublished).zh_TW
dc.relation.reference (參考文獻) Warfel, William J., Peter Mikolaj and Alex Hamwizh_TW
dc.relation.reference (參考文獻) 1998 Carrots, Sticks & Sermons: Policy Instruments & Their Evaluation. New Brunswick, New Jersey: Transaction Publishers.zh_TW
dc.relation.reference (參考文獻) 1998 “Genetic Information and Risk Classification in Individual Life and Health Insurance”, Journal of American Society of CLU & ChFC, 44-52.zh_TW
dc.relation.reference (參考文獻) Wilson, James Q.zh_TW
dc.relation.reference (參考文獻) 民91 「基因資訊與保險:社會政策與法理分析」,發表於第三屆「基因科技與法律研討會」 (2002.6.27),頁1-32。zh_TW
dc.relation.reference (參考文獻) 1980 The Politics of Regulation. New York: Basic Books.zh_TW
dc.relation.reference (參考文獻) Wong, Josephine G. and Felice Lieh-Makzh_TW
dc.relation.reference (參考文獻) 2001 “Genetic Discrimination and Mental Illness: A Case Report ”, Journal of Medical Ethics, 27: 393-397.zh_TW
dc.relation.reference (參考文獻) Woodside, Kennethzh_TW
dc.relation.reference (參考文獻) 1986 “Policy Instrument and the Study if Public Policy”, Canadian Journal of Political Science, 19: 775-793.zh_TW
dc.relation.reference (參考文獻) Other Linkszh_TW
dc.relation.reference (參考文獻) ─英文網站zh_TW
dc.relation.reference (參考文獻) Bennett, Colin J.zh_TW
dc.relation.reference (參考文獻) http://www.ama-assn.org/zh_TW
dc.relation.reference (參考文獻) http://www.bio.org/bioethics/discrimination.aspzh_TW
dc.relation.reference (參考文獻) http://clinton4.nara.gov/WH/New/html/20000208.htmlzh_TW
dc.relation.reference (參考文獻) 林淑卿zh_TW
dc.relation.reference (參考文獻) http://www.eeoc.gov/35th/thelaw/13145.htmlzh_TW
dc.relation.reference (參考文獻) http://frwebgate.access.gpo.gov/zh_TW
dc.relation.reference (參考文獻) http://www.geneticalliance.org/zh_TW
dc.relation.reference (參考文獻) http://www.girinst.org/zh_TW
dc.relation.reference (參考文獻) http://www.genome.gov/zh_TW
dc.relation.reference (參考文獻) http://www.house.gov/zh_TW
dc.relation.reference (參考文獻) 1992 Regulating Privacy: Data Protection and Policy in Europe and United States. New York: Cornell University Press.zh_TW
dc.relation.reference (參考文獻) http://www.law.pitt.edu/mdethics/zh_TW
dc.relation.reference (參考文獻) http://www.nahu.org/government/issues/genetic_discrimination/zh_TW
dc.relation.reference (參考文獻) http://netec.mcc.ac.uk/BibEc/data/Papers/fthkobeeb112.htmlzh_TW
dc.relation.reference (參考文獻) http://www.ornl.gov/hgmis/elsi/elsi.htmlzh_TW
dc.relation.reference (參考文獻) 民86 毒品防制政策之問題界定:社會建構的觀點,政大公行所碩士論文,未出版。zh_TW
dc.relation.reference (參考文獻) http://www.senate.gov/~labor/hearings/july00hrg/072000wt/072000wt.htmzh_TW
dc.relation.reference (參考文獻) ─中文網站zh_TW
dc.relation.reference (參考文獻) http://www.bio.idv.tw/zh_TW
dc.relation.reference (參考文獻) http://biolaw.law.ntu.edu.tw/zh_TW
dc.relation.reference (參考文獻) http://forums.chinatimes.com.tw/special/gene/main.htmzh_TW
dc.relation.reference (參考文獻) 1998 “Regulating the Computer: Comparing Policy Instruments in Europe and the United States”, European Journal of Political Research, 16: 437-466.zh_TW
dc.relation.reference (參考文獻) http://gcg.nhri.org.tw/gcg/gcg-intro.htmzh_TW
dc.relation.reference (參考文獻) http://gene-program-office.mc.ntu.edu.tw/zh_TW
dc.relation.reference (參考文獻) 林子儀zh_TW
dc.relation.reference (參考文獻) 民90 「從保障隱私權觀點論基因資訊的利用與法的規制」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-26。zh_TW
dc.relation.reference (參考文獻) 林國明zh_TW
dc.relation.reference (參考文獻) 民90 「風險政治、公共領域與基因科技政策的民主參與」,發表於第二屆基因科技之法律管制體系與社會衝擊研究研討會 (2001.6.10),頁1-22。zh_TW
dc.relation.reference (參考文獻) 施能傑zh_TW
dc.relation.reference (參考文獻) 民88 「政策執行的要素分析」,載於研考雙月刊,第23卷第4期,頁6-14。zh_TW
dc.relation.reference (參考文獻) 段重祺zh_TW
dc.relation.reference (參考文獻) 民81 歐美四國醫療政策之比較,台北﹕保成文化事業zh_TW
dc.relation.reference (參考文獻) Blanck, Peter Davidzh_TW
dc.relation.reference (參考文獻) 范宜芳zh_TW
dc.relation.reference (參考文獻) 民88 美國「失依兒童家庭救助」計畫之研究:政策變遷的觀點,政大公行所碩士論文,未出版。zh_TW
dc.relation.reference (參考文獻) 紀佳伶zh_TW
dc.relation.reference (參考文獻) 民87 電子化/網路化政府資訊內容隱私權之研究,政大公行所碩士論文,未出版。zh_TW
dc.relation.reference (參考文獻) 洪鴻智zh_TW
dc.relation.reference (參考文獻) 民89 「公共選擇與環境風險設施管制政策工具的選擇」,載於都市與計劃,第27卷第一期,頁47-63。zh_TW
dc.relation.reference (參考文獻) 時報文教基金會zh_TW
dc.relation.reference (參考文獻) 民90 打開潘朵拉的盒子?─基因科技的人文議題,台北:時報。zh_TW
dc.relation.reference (參考文獻) 財團法人台灣醫界聯盟基金會 & 行政院衛生署zh_TW
dc.relation.reference (參考文獻) 民90 基因治療與臨床試驗研討會─務實取向的共識凝聚,台北。zh_TW
dc.relation.reference (參考文獻) 2000 Employment Disability, and the Americans with Disabilities Act: Issues in Law, Public Policy, and Research. Evanston, Ill.: Northwestern University Press.zh_TW
dc.relation.reference (參考文獻) 翁興利、施能傑、官有垣、鄭麗嬌zh_TW
dc.relation.reference (參考文獻) 民87 公共政策,台北:空大。zh_TW
dc.relation.reference (參考文獻) 翁秉霖、鄭信男、邱華賢譯 (Barnum原著)zh_TW
dc.relation.reference (參考文獻) 民90 生物科技概論,台北:學富文化。zh_TW
dc.relation.reference (參考文獻) 郭淑貞zh_TW
dc.relation.reference (參考文獻) 民89 科技領域的風險決策之研究─以德國法為中心,台大法研所碩士論文,未出版。zh_TW
dc.relation.reference (參考文獻) 許文源zh_TW
dc.relation.reference (參考文獻) 民89 我國非法外勞管制政策之研究─政策執行理論之觀點,政大公行所博士論文,未出版。zh_TW
dc.relation.reference (參考文獻) 陳櫻琴zh_TW
dc.relation.reference (參考文獻) 民89 「管制革新之法律基礎與政策調適」,發表於中央研究院主辦管制革新學術研討會,頁1-48。zh_TW
dc.relation.reference (參考文獻) Bressers, Hans Th. A. & Laurence J. O’Toole, Jr.zh_TW
dc.relation.reference (參考文獻) 陳恆鈞等譯 (Weimer & Vining原著)zh_TW
dc.relation.reference (參考文獻) 民91 政策分析:概念與實踐,台北:韋伯文化。zh_TW
dc.relation.reference (參考文獻) 黃明輝zh_TW
dc.relation.reference (參考文獻) 民89 成本效益分析在我國行政法上應用可能性之研究,台北大學法研所碩士論文,未出版。zh_TW
dc.relation.reference (參考文獻) 福田雅章zh_TW
dc.relation.reference (參考文獻) 民90 「人類基因研究過程中之人權與人性尊嚴的保障─告知後同意是真能發揮作用」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-8。zh_TW
dc.relation.reference (參考文獻) 葉俊榮zh_TW
dc.relation.reference (參考文獻) 民82 環境政策與法律,台北:月旦,頁133-168。zh_TW
dc.relation.reference (參考文獻) 民86 環境理性與制度抉擇,台北:三民。zh_TW
dc.relation.reference (參考文獻) 民88a 「政府再造與制度興革:以環境影響評估為例」,載於經社法制論叢,第23期。zh_TW
dc.relation.reference (參考文獻) 吳英明zh_TW
dc.relation.reference (參考文獻) 民88b 全球環境議題─台灣觀點,台北:巨流,頁129-146zh_TW
dc.relation.reference (參考文獻) 民89 行政法案例分析與研究方法,台北:元照。zh_TW
dc.relation.reference (參考文獻) 民90 「生物科技法律人才與研究議題取向」,載於生物技術與法律研究通訊第九期,頁32-41。zh_TW
dc.relation.reference (參考文獻) 雷文玫zh_TW
dc.relation.reference (參考文獻) 民89 「歧視有理?美國管制商業健康保險運用基因資訊之研究」,載於中原財經法學第五期,頁433-465。zh_TW
dc.relation.reference (參考文獻) 齊力文譯 (Davidson原著)zh_TW
dc.relation.reference (參考文獻) 民90 生態經濟大狂潮,台北:經濟新潮。zh_TW
dc.relation.reference (參考文獻) 蔡宗珍zh_TW
dc.relation.reference (參考文獻) 民89a 「程序導向的基因科技立法必要性與其規範內涵初探」,載於生物科技與法律研究通訊第一期,頁1-6。zh_TW
dc.relation.reference (參考文獻) 民89b 「基因科技法的規範架構初論」,收錄於2000年基因科技之法律管制體制與社會衝擊研究研討會資料,頁1-11。zh_TW
dc.relation.reference (參考文獻) 1998 “The Selection of Policy Instruments: a Network-Based Perspective”, Journal of Public Policy, 18(3): 213-239.zh_TW
dc.relation.reference (參考文獻) 民88c 「從憲法觀點論基因科技管制立法的基本課題」載於生命倫理與法律課程網站http://biolaw.law.ntu.edu.tw/BioInstitute/BioCourse.htm ,頁1-9。zh_TW
dc.relation.reference (參考文獻) 民88d 「公法上之比例原則初論─以德國法的發展為中心─」,載於政大法學評論第62期,頁75-103。zh_TW
dc.relation.reference (參考文獻) 民90 「基因科技安全管制法草案評析」,發表於第二屆基因科技之法律管制體系與社會衝擊研究研討會。zh_TW
dc.relation.reference (參考文獻) 蔡宗珍譯zh_TW
dc.relation.reference (參考文獻) 民89 「德國基因科技管制法 (下)」,載於生物科技與法律研究通訊第五期,頁33-41。zh_TW
dc.relation.reference (參考文獻) 蔡宗珍校訂(賴志強、李佳玟譯)zh_TW
dc.relation.reference (參考文獻) 民88 「德國基因科技管制法 (中)」,載於生物科技與法律研究通訊第三期,頁35-41。zh_TW
dc.relation.reference (參考文獻) 蔡甫昌zh_TW
dc.relation.reference (參考文獻) 民90 「基因治療與複製的倫理議題初探」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-15。zh_TW
dc.relation.reference (參考文獻) 蔡宗羲zh_TW
dc.relation.reference (參考文獻) British Medical Association(BMA)zh_TW
dc.relation.reference (參考文獻) 民84 「公共政策體制與放鬆管制的經濟分析」,載於經濟論壇,第1卷第一期,頁101-109。zh_TW
dc.relation.reference (參考文獻) 劉昭博zh_TW
dc.relation.reference (參考文獻) 民88 資訊不對稱性與政府投機行為之研究,政大公行所碩士論文,未出版。zh_TW
dc.relation.reference (參考文獻) 鄭博仁、謝燦堂zh_TW
dc.relation.reference (參考文獻) 民89 健康密碼:探索人類基因奧秘,台北:聯合文學。zh_TW
dc.relation.reference (參考文獻) 賴志強、李佳玟譯zh_TW
dc.relation.reference (參考文獻) 民88 「德國基因科技管制法 (上)」,收錄於生物科技與法律研究通訊第二期,頁38-46。zh_TW
dc.relation.reference (參考文獻) 鍾芳樺zh_TW
dc.relation.reference (參考文獻) 民89 「基因科技的風險問題─法律對基因科技的風險觀察與調控」,收錄於2000年基因科技之法律管制體制與社會衝擊研究研討會資料,頁1-13。zh_TW
dc.relation.reference (參考文獻) 鍾芳樺、黃舒芃zh_TW
dc.relation.reference (參考文獻) 1998 Human Genetics: Choice and Responsibility. New York: Oxford University Press.zh_TW
dc.relation.reference (參考文獻) 民89 「德國與奧地利基因科技法之初步比較」,收錄於生物科技與法律研究通訊第五期,頁22-32。zh_TW
dc.relation.reference (參考文獻) Atkinson, Michael M. and Robert A. Nigolzh_TW
dc.relation.reference (參考文獻) 1989 “Selecting Policy Instruments: Neo-Institutional and Rational Choice Interpretations of Automobile Insurance in Ontario”, Canadian Journal of Political Science, 22(1): 107-135.zh_TW
dc.relation.reference (參考文獻) Bardach, Eugene and R. A. Kaganzh_TW
dc.relation.reference (參考文獻) 1982 Going by the Book: The Problem of Regulatory Unreasonableness”. Philadelphia: Temple University Press.zh_TW
dc.relation.reference (參考文獻) Bartels, Dianne Maryzh_TW
dc.relation.reference (參考文獻) 2001 Genetics in Health Care: Ethical Challenges in Interactions of Family Systems and Health Systems. Ph.D. Dissertation, University of Minnesota (Unpublished).zh_TW
dc.relation.reference (參考文獻) Brown, Stuart M.zh_TW
dc.relation.reference (參考文獻) 2003 Essentials of Medical Genomics. New Jersey: Wiley-Liss.zh_TW
dc.relation.reference (參考文獻) Clinton, William J.zh_TW
dc.relation.reference (參考文獻) 2000 “Executive Order 13145─To Prohibit Discrimination in Federal Employment Based on Genetic Information”, Weekly Compilation of Presidential Documents, 36(6):244-247.zh_TW
dc.relation.reference (參考文獻) Colby, Jeremy A.zh_TW
dc.relation.reference (參考文獻) 1998 “An Analysis of Genetic Discrimination Legislation Proposed by the 105th Congress”, American Journal of Law & Medicine, 34(4): 443-480.zh_TW
dc.relation.reference (參考文獻) Cooter, Robert and Thomas Ulenzh_TW
dc.relation.reference (參考文獻) 民80 「從政府管制論環境保護管制」,載於中山社會科學季刊,第六卷第四期。zh_TW
dc.relation.reference (參考文獻) 1997 Law and Economics. Reading, Massachusetts: Addison-Wesley.zh_TW
dc.relation.reference (參考文獻) Dunn, Williamzh_TW
dc.relation.reference (參考文獻) 1991 Public Policy Analysis: An Introduction. Englewood Cliffs, New Jersey: Prentice Hallzh_TW
dc.relation.reference (參考文獻) Fischel, William A.zh_TW
dc.relation.reference (參考文獻) 1995 Regulatory Takings: Law, Economics, and Politics. Cambridge, Mass.: Harvard University Press.zh_TW
dc.relation.reference (參考文獻) Frye-Penfold, Cynthia B.S.zh_TW
dc.relation.reference (參考文獻) 2000 Responses from Genetic Counselors about the Potential of Insurance Discrimination in Cancer Genetic Counseling. Master Dissertation, Sarah Lawrence College(Unpublished).zh_TW
dc.relation.reference (參考文獻) Goldberg, Hene V., JDzh_TW
dc.relation.reference (參考文獻) 2001 “Genetic Information Privacy and Discrimination”, Health Care Manager, 20(1): 19-28.zh_TW
dc.relation.reference (參考文獻) Green, Ronald M. and Mathew A. Thomaszh_TW
dc.relation.reference (參考文獻) 李震山zh_TW
dc.relation.reference (參考文獻) 1998 “DNA: Five Distinguishing Features for Policy Analysis”, Harvard Journal of Law & Technology, 11: 571.zh_TW
dc.relation.reference (參考文獻) Guasch, J. Luis and Robert W. Hahnzh_TW
dc.relation.reference (參考文獻) 1999 “The Cost and Benefit of Regulation: Implications for Developing Countries”, The World Bank Observer, 14(1): 137-158.zh_TW
dc.relation.reference (參考文獻) Haider-Markel, Donald P.zh_TW
dc.relation.reference (參考文獻) 1998 “The Politics of Social Regulatory Policy: State and Federal Hate Crime Policy and Implementation Effort”, Political Research Quarterly, 51(1): 69-88.zh_TW
dc.relation.reference (參考文獻) Harkness, Lorriezh_TW
dc.relation.reference (參考文獻) 2000 Ethics of Decisions in Public Schools: A Study on Principles Educational Leaders Use to Make Decisions When Faced With Moral Dilemmas Related to The Use of Genetic Technology. Ph.D. Dissertation, University of Colorado at Denver (Unpublished)zh_TW
dc.relation.reference (參考文獻) Harrington, L. K.zh_TW
dc.relation.reference (參考文獻) 1996 “Ethics and Public Policy Analysis: Stakeholders’ Interests and Regulatory Policy”, Journal of Business Ethics,15: 373-382.zh_TW
dc.relation.reference (參考文獻) Harrison, E. Frankzh_TW
dc.relation.reference (參考文獻) 民90 「基因資訊利用與基本權利保障─以資訊隱私權及研究自由為例」,發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26),頁1-16。zh_TW
dc.relation.reference (參考文獻) 1999 The Managerial Decision-Making Process. Boston: Houghton Mifflin Company.zh_TW
dc.relation.reference (參考文獻) HGCzh_TW
dc.relation.reference (參考文獻) 2001 “Whose Hands on Your Genes: Analysis of Responses to the tick ox summary section”, http://www.hgc.gov.uk/bisiness_cosultation2.htmzh_TW
dc.relation.reference (參考文獻) Hill, Mark A. and Stephen S. Richzh_TW
dc.relation.reference (參考文獻) 2000 “ Genetic Privacy Laws and Patient’s Fear of Discrimination by Health Insurers: The View from Genetic Counselors”, Journal of Law, Medicine & Ethics, 28: 245-257.zh_TW
dc.relation.reference (參考文獻) Hood, Christopher Czh_TW
dc.relation.reference (參考文獻) 1983 The Tools of Government. London: MacMillan.zh_TW
dc.relation.reference (參考文獻) Hubbard, Ruth and Elijah Waldzh_TW
dc.relation.reference (參考文獻) 1999 Exploding the Gene Myth. Boston: Beacon Press.zh_TW
dc.relation.reference (參考文獻) Huggins, Rachelzh_TW
dc.relation.reference (參考文獻) 李建良zh_TW
dc.relation.reference (參考文獻) 2000 Can Genetic Justice Survive? DNA Technology and Social Control in the 21st Century. Master Dissertation, Department of Sociology and Anthropology, Concordia University Montreal, Quebec, Canada (Unpublished).zh_TW
dc.relation.reference (參考文獻) Josefson, Dwborahzh_TW
dc.relation.reference (參考文獻) 2000 “Clinton Outlaws Genetic Discrimination in Federal Jobs”, British Medical Journal, 320: 468.zh_TW
dc.relation.reference (參考文獻) Kaveny, M. Cathleenzh_TW
dc.relation.reference (參考文獻) 1999 “Jurisprudence and Genetics”, Theological Studies, 60: 135-147.zh_TW
dc.relation.reference (參考文獻) Keefer, Christopher M.zh_TW
dc.relation.reference (參考文獻) 1999 “Bridging the Gap Between Life Insurer and Consumer in the Genetic Testing Era: The RF Proposal”, Indian Law Journal, 74: 1374-1397.zh_TW
dc.relation.reference (參考文獻) Kogelnik, Andreas Matthiaszh_TW
dc.relation.reference (參考文獻) 1998 Biological Information Management with Application to Human Genome Data. Ph.D. Dissertation, Georgia Institute of Technology (Unpublished).zh_TW
dc.relation.reference (參考文獻) Linders, Stephen H. and B. Guy Peterszh_TW
dc.relation.reference (參考文獻) 民89 「法律制度與社會控制:法治國家中法律控制能力及其界限之問題初探」,收錄於林繼文編政治制度,頁49-94。zh_TW
dc.relation.reference (參考文獻) 1990 “Instruments of Governments: Perceptions and Contexts”, Journal of Public Policy, 9(1): 35-58.zh_TW
dc.relation.reference (參考文獻) Long, Clarisazh_TW
dc.relation.reference (參考文獻) 1999 Genetic Testing and Use of Information. Washington D.C.: The AEI Press.zh_TW
dc.relation.reference (參考文獻) Low, Lowrence, Suzanne King, and Tom Wilkiezh_TW
dc.relation.reference (參考文獻) 1998 “Genetic Discrimination in Life Insurance: Empirical Evidence From A Cross Sectional Survey of Genetic Support Groups in the UK”, British Medical Journal, 317:1632-1634.zh_TW
dc.relation.reference (參考文獻) Macklin, Ruthzh_TW
dc.relation.reference (參考文獻) “Privacy and Control of Genetic Information”.zh_TW
dc.relation.reference (參考文獻) http://www.bumc.bu.edu/www/sph/lw/pvl/book2/9-Privacy%20and%20Control.pdfzh_TW
dc.relation.reference (參考文獻) McDonald, Lee-Anne C.zh_TW
dc.relation.reference (參考文獻) 2000 Multi-disease Genes: The Future of Genetic Counseling. Master Dissertation, Sarah Lawrence College (Unpublished).zh_TW
dc.relation.reference (參考文獻) 杜默譯 (法蘭西斯•福山原著)zh_TW
dc.relation.reference (參考文獻) McKenzie, Donna M.zh_TW
dc.relation.reference (參考文獻) 1999 Genetic Testing for Delayed Onset Disease: A Feminist Theological Virtue Approach. Ph.D. Dissertation, Berkley, C.A.(Unpublished).zh_TW
dc.relation.reference (參考文獻) Mcllroy, Elaine Christinazh_TW
dc.relation.reference (參考文獻) 2001 Privacy, Confidentiality and Genetic Database: A Modified Rights Approach. Master Dissertation, Graduate Department of Law, University of Toronto, Canada (Unpublished).zh_TW
dc.relation.reference (參考文獻) Miller, Paul S.zh_TW
dc.relation.reference (參考文獻) 1998 “Genetic Discrimination in the Workplace”, Journal of Law, Medicine, and Ethics, 26: 189-197.zh_TW
dc.relation.reference (參考文獻) Nossal, Gustav et al.zh_TW
dc.relation.reference (參考文獻) 1990 Human Genetic Information: Science, Law and Ethics. New York: John Wiley & Sons.zh_TW
dc.relation.reference (參考文獻) Nutt, Paul C.zh_TW
dc.relation.reference (參考文獻) 1992 Strategic Management of Public and Third Sector Organization: A Handbook for Leaders. San Francisco: Jossey-Bass.zh_TW
dc.relation.reference (參考文獻) 民91 後人類未來,台北:時報。zh_TW
dc.relation.reference (參考文獻) Ogus, Anthonyzh_TW