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題名 七〇世代HIV感染者生命歷程初探
Exploring the Life Course of People Living with HIV/AIDS born in the 1970s作者 陳冠志
Chen, Kuan-Chih貢獻者 宋麗玉
Song, li-yu
陳冠志
Chen, Kuan-Chih關鍵詞 生命歷程理論
復元觀點
HIV感染者
共存
Life course theory
Recovery perspective
PLWHA
Coexisting日期 2022 上傳時間 1-Jun-2022 16:36:12 (UTC+8) 摘要 一九九七年雞尾酒療法問世，讓人類與HIV的對抗展開了新的一頁，雖然感染HIV仍然是無法痊癒的疾病，但是病毒可以被控制到不會發病的程度，這意味著感染HIV已經變成一種慢性病。在這個情況下有愈來愈多的HIV感染者邁入人生的中老年階段，在與疾病共存的過程中發展出對於HIV相關事件的因應方式及意義建構，因此本研究試圖從生命歷程理論的角度去捕捉HIV感染者在與疾病共存過程中的生命經驗，並描繪他們的復元歷程，主要聚焦在七〇世代的男同志HIV感染者。本研究深度訪談七位七〇世代的男同志HIV感染者，以主題分析法來分析他們的生命經驗。研究結果主要分為三個部分，前兩個是他們所遇到的HIV相關事件以及對於這些事件的因應方式，這兩個部分都分別分為醫療層面及生活層面來討論，醫療層面包含就醫態度與資源、醫療特殊事件、醫療上的行動及服藥策略；生活面則包含知道感染後的感受、交友狀況、伴侶關係、回顧過去經驗、目前重視的事情、政策環境的影響、出H櫃的原則與策略、加入民間協會及對感情觀的影響等主題。第三個部分是他們經歷這些事件之後的復元歷程，浮現的議題包含民間協會在過程中扮演重要的角色、社會汙名的影響、感染者身份認同是過程也是結果、生活圈的轉變及期待回饋社會。最後則針對這些主題來討論並提出研究建議及限制。
Since the highly active antiretroviral therapy (HAART) came into the world, it opened a new life for people living with HIV/AIDS (PLWHA). By taking the medication, the virus can be suppressed to a certain amount that will not lead to AIDS, which means people who got infected by HIV have become a chronic condition. Under this circumstance, more and more PLWHA reach middle or older age, constructing their life meaning and developing coping strategies in terms of coexisting with the virus. The purpose of this thesis is to capture the experience of PLWHA when coexist with HIV, and depict their recovery course, mainly focus on PLWHA born in the 1970s with the self-identity as gay men.This research is a qualitative research which 7 in-depth interviews were completed with PLWHA who self-identified as gay men and born in the 1970s. Thematic analysis method was carried out to identify the themes of their life experience. The results are divided into 3 parts, the first part is the HIV-related events the interviewees encountered, including themes such as the attitude toward medication, friendship and the influence of the social context. The second part is the coping strategies they developed and the meaning in terms of HIV-related experience they construct, including themes such as HIV status revealing and the pill-taking strategies. The third part is the recovery course they experienced, including some issues such as the impact of social stigma, and the important role that the community plays. 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國立政治大學
社會工作研究所
105264009資料來源 http://thesis.lib.nccu.edu.tw/record/#G0105264009 資料類型 thesis dc.contributor.advisor 宋麗玉 zh_TW dc.contributor.advisor Song, li-yu en_US dc.contributor.author (Authors) 陳冠志 zh_TW dc.contributor.author (Authors) Chen, Kuan-Chih en_US dc.creator (作者) 陳冠志 zh_TW dc.creator (作者) Chen, Kuan-Chih en_US dc.date (日期) 2022 en_US dc.date.accessioned 1-Jun-2022 16:36:12 (UTC+8) - dc.date.available 1-Jun-2022 16:36:12 (UTC+8) - dc.date.issued (上傳時間) 1-Jun-2022 16:36:12 (UTC+8) - dc.identifier (Other Identifiers) G0105264009 en_US dc.identifier.uri (URI) http://nccur.lib.nccu.edu.tw/handle/140.119/140226 - dc.description (描述) 碩士 zh_TW dc.description (描述) 國立政治大學 zh_TW dc.description (描述) 社會工作研究所 zh_TW dc.description (描述) 105264009 zh_TW dc.description.abstract (摘要) 一九九七年雞尾酒療法問世，讓人類與HIV的對抗展開了新的一頁，雖然感染HIV仍然是無法痊癒的疾病，但是病毒可以被控制到不會發病的程度，這意味著感染HIV已經變成一種慢性病。在這個情況下有愈來愈多的HIV感染者邁入人生的中老年階段，在與疾病共存的過程中發展出對於HIV相關事件的因應方式及意義建構，因此本研究試圖從生命歷程理論的角度去捕捉HIV感染者在與疾病共存過程中的生命經驗，並描繪他們的復元歷程，主要聚焦在七〇世代的男同志HIV感染者。本研究深度訪談七位七〇世代的男同志HIV感染者，以主題分析法來分析他們的生命經驗。研究結果主要分為三個部分，前兩個是他們所遇到的HIV相關事件以及對於這些事件的因應方式，這兩個部分都分別分為醫療層面及生活層面來討論，醫療層面包含就醫態度與資源、醫療特殊事件、醫療上的行動及服藥策略；生活面則包含知道感染後的感受、交友狀況、伴侶關係、回顧過去經驗、目前重視的事情、政策環境的影響、出H櫃的原則與策略、加入民間協會及對感情觀的影響等主題。第三個部分是他們經歷這些事件之後的復元歷程，浮現的議題包含民間協會在過程中扮演重要的角色、社會汙名的影響、感染者身份認同是過程也是結果、生活圈的轉變及期待回饋社會。最後則針對這些主題來討論並提出研究建議及限制。 zh_TW dc.description.abstract (摘要) Since the highly active antiretroviral therapy (HAART) came into the world, it opened a new life for people living with HIV/AIDS (PLWHA). By taking the medication, the virus can be suppressed to a certain amount that will not lead to AIDS, which means people who got infected by HIV have become a chronic condition. Under this circumstance, more and more PLWHA reach middle or older age, constructing their life meaning and developing coping strategies in terms of coexisting with the virus. The purpose of this thesis is to capture the experience of PLWHA when coexist with HIV, and depict their recovery course, mainly focus on PLWHA born in the 1970s with the self-identity as gay men.This research is a qualitative research which 7 in-depth interviews were completed with PLWHA who self-identified as gay men and born in the 1970s. Thematic analysis method was carried out to identify the themes of their life experience. The results are divided into 3 parts, the first part is the HIV-related events the interviewees encountered, including themes such as the attitude toward medication, friendship and the influence of the social context. The second part is the coping strategies they developed and the meaning in terms of HIV-related experience they construct, including themes such as HIV status revealing and the pill-taking strategies. The third part is the recovery course they experienced, including some issues such as the impact of social stigma, and the important role that the community plays. Lastly, this thesis gives some suggestions to the future researchers and the PLWHA. en_US dc.description.tableofcontents 第一章 緒論 1第一節 研究動機 1第二節 研究背景 4第三節 研究問題與目的 7第二章 文獻回顧 8第一節 生命歷程理論簡述 8第二節 七〇世代感染者的生命歷程研究 11第三章 研究設計 34第一節 研究取向 34第二節 研究參與者 36第三節 資料收集與分析 38第四節 嚴謹性 41第五節 研究倫理 43第四章 研究分析 47第一節 受訪者簡介 48第二節 受感染事件影響所形塑的生活樣態 51第三節 對感染事件的意義建構及採取的行動 69第四節 受訪者生命歷程與復元 83第五章 研究結論與建議 119第一節 研究結論與討論 119第二節 研究建議與限制 126參考文獻 129中文文獻 129英文文獻 138附件一 研究參與邀請函暨隱私保證書 151附件二 訪談大綱 153 zh_TW dc.format.extent 3077176 bytes - dc.format.mimetype application/pdf - dc.source.uri (資料來源) http://thesis.lib.nccu.edu.tw/record/#G0105264009 en_US dc.subject (關鍵詞) 生命歷程理論 zh_TW dc.subject (關鍵詞) 復元觀點 zh_TW dc.subject (關鍵詞) HIV感染者 zh_TW dc.subject (關鍵詞) 共存 zh_TW dc.subject (關鍵詞) Life course theory en_US dc.subject (關鍵詞) Recovery perspective en_US dc.subject (關鍵詞) PLWHA en_US dc.subject (關鍵詞) Coexisting en_US dc.title (題名) 七〇世代HIV感染者生命歷程初探 zh_TW dc.title (題名) Exploring the Life Course of People Living with HIV/AIDS born in the 1970s en_US dc.type (資料類型) thesis en_US dc.relation.reference (參考文獻) 中文文獻〈抗人類免疫缺乏病毒藥品處方使用規範〉（2020年12月）。https://www.cdc.gov.tw/File/Get/Rog3ryC6EQuF1hjBO_nHRw〈轟趴校園巡迴工作小組聲明新聞稿〉（2004），[A_0005_0002_0001_0002_0034]，收錄於臺灣法實證研究資料庫，法律文件資料庫。http://itdels.digital.ntu.edu.tw/Item.php?ID=A_0005_0002_0001_0002_0034丁志音與涂醒哲（2004）。傳染病照護的選擇性歧視：醫師及牙醫師的愛滋病專業倫理觀與照護意願。台灣公共衛生雜誌，23（1），45-58。http://dx.doi.org/10.6288/tjph2004-23-01-05丁李衡（2018）。台灣五年級男同志生命獨特使命的發展與追尋研究（未出版之碩士論文）。國立臺北教育大學教育學院心理與諮商學系。https://hdl.handle.net/11296/qmyqk6中華民國醫師公會全國聯合會（2017年7月21日）。聲明：醫療沒有歧視健全的資訊管道才能提供完善的準備。https://www.tma.tw/meeting/meeting_info.asp?/7334.html王永衛與顏慕雍（2007）。人類免疫缺乏病毒的雞尾酒療法。北市醫學雜誌，4（9_S），926-936。http://dx.doi.org/10.6200/tcmj.2007.4.9.17王立柔（2018年11月12日）。當法律落後科學時，HIV條例「傳染愛滋罰款」究竟保護了誰？。報導者。https://www.twreporter.org/a/hiv-infected-patient-rights王廷文（2013）。同志向家人現身前後互動關係變化歷程：系統觀點（未出版之碩士論文）。國立彰化師範大學輔導與諮商學系。 https://hdl.handle.net/11296/7gy8z3王佳煌、潘中道、蘇文賢與江吟梓（譯）（2014）。當代社會研究法：直化與量化取向（原作者：W. 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